Abscess-Fistula Question

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 3/14/2009 8:49 PM (GMT -7)   
So as some of you might have read, I had a reacurring abscess after my last resection, it came back a total of 3 times, and now its turned into a fistula.  So now I have crap (litterally) coming out of a hole in my stomach right above my bellybutton...real cute.  My GI surgeon refused to believe it was a fistula, but my recent ER trip has proved him wrong.  I just had an appointment with him last week, and he told me I would basically have to deal with it until my Crohns is in remission, mind you I've never been in remission in the 7 years Ive had this disease.  He told me just to pack it and change it a couple times a day.  Im sorry but I refuse to believe nothing can be done to help this.  He said he will not do surgery until my Crohns is under control because that is what caused the fistula.  But his words right before that was it was caused from the amount of prednisone I was on when I had my surgery (60mg), Ive been off the prednisone for 3 months, and this fistula just appeared maybe 3 weeks ago.  He followed that by saying "This is not my fault! If I blew the surgery I would say so!"  Im thinking he thinks Im going to sue him, and thats why he doesnt want to touch me.  Ive noticed that while Im standing the drainage is minimal but while I sleep, lay down or am sitting, thats when its worse.  Ive been told to pack it, Ive also been told not to pack it...so far Ive been packing it because Im afraid it will close and then get extremely painful when theres enough gunk in it to push it open again.  Has anyone had this kind of fistula, and what did you do about it, did you pack it or not?  Did you have surgery to fix it, or did you just let it go?
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 3/14/2009 9:10 PM (GMT -7)   
I don't know anything about your medical situation, but if you could, i think it would be really smart to get a second opinion, from a gi doc totally unrelated to the one you have now.... I've had a totally similar (but medically unrelated to yours) situation in my past, and i learned it's smart to have another person weigh in.... what you are going thru sounds so hard!! You deserve someone on your side to help you out! ((HUG))!!!!

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 3/15/2009 2:14 AM (GMT -7)   
I would say the same thing.Get a second opinion.

Good Luck!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 3/15/2009 5:16 AM (GMT -7)   
Run -- don't walk -- to another doctor. The guy sounds like a jerk.
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/15/2009 5:39 AM (GMT -7)   
Hi Mag ...Yes I have had the same problem after my first surgery which was for a abdominal abscess .... It was open surgery and was left open to heal, so after it was healed up almost completely the fistula a wee hole would not close... the treatment I got was as you are doing to dress it , how big is the hole ? What I did was to go on Remicade and started B-12 it healed..now to continue on here after my resection which was a year later, I had the staples removed and there was a wee hole so they put a tiny ribbon thing in there and dressed it and a swab was done to check for infection which turned out postive for infection so I went on anrtibotics for a bit and after 10 days it cleared up and has remained healed. Your Dr. might be right in thinking they can heal it with meds ....but it took about 3 or 4 Remicade treatments for me...to get mine closed up ...lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13479
   Posted 3/15/2009 6:47 AM (GMT -7)   
Mag,
 
I developed a fistula this past March and it came out thru my old hysterectomy scar of all places. My gi immediately put me back on Remicade and a round of Flagyl. The Remicade took care of it and it closed up nicely and I have not had any more problems. We did not pack it either, just let it drain. It did not take all the long for the Remicade to kick in either.
 
I would highly suggest you get yourself another gi. The idiot you are with now seems more worried about him, instead of you, his patient. You do not leave a fistula untreated.
 
I hope you will get to a much better dr.
 
Susie


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 3/15/2009 11:20 AM (GMT -7)   
I have never been on Remicade, but I have been on Humira.  I stopped taking it a few months ago.  Does Humira have the same healing effects for a fistula as Remicade?  How did you dress the fistula, mine drains so much, and its right on my stomach, so its not like I could just wear a pad if it was down there.  My skin is SO irritated from using the tape, it bleeds everytime I change the dressing. Any tricks?  Also it doesnt take long for it to soak through the dressing, and I use 3 dressing gauzes so it triple thickness.  UGH! lol 

Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 3/15/2009 12:04 PM (GMT -7)   
Hi Mag,

I was told both Remi and Humira can heal fistulas. I think they probably have a better chance with small diameter ones. Sorry I don't have any suggestions for the drainage. Mine is in the perineum. I do suggest you try a different tape. Your skin shouldn't be getting so irritated! Maybe call your doctor's assistant or nurse for suggestions? Another thought is to wear something that wraps firmly around your stomach -- like a back supporter or a wide elastic Ace bandage. Maybe it would hold the dressig on without tape? Just guessing. Hang in there!
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/15/2009 12:42 PM (GMT -7)   
Hi Mag Just wanted to comment here gee your surgeon should of told you the proper dressings for it..I used a perscription gauze like thing I cut in two and folded on the fistula and then I folded one or two 2x4 gauzes on top of that and then 2 or 3 gauzes on top of that ...there are two types of tape I used the stuff that was more like a thinner tape and made a square around the gauze some on the skin to hold it and cleaned it with sterile saline solution ... if you go to emerg there should be someone to show you proper dressing usually a surgeon will leave a order for it .. I had problems with one kind of tape that had got me sore but the thinner stuff doesn't stick as good but is alot better on the skin you can ask your pharmancist ..the B-12 I took helped heal it too.. not sure if Hum. is better then Rem. for healing them..best wishes and let me know if this helps.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


Anniegetyour gun
Regular Member


Date Joined Mar 2009
Total Posts : 20
   Posted 3/17/2009 12:53 AM (GMT -7)   
Hi - trying to make contact, but dont know if I am getting thru to anyone - no responses to my questions yet?
To Fallcolours you mention you have rectal crohns - my son has just been diagnosed with peri-anal crohns is that the same thing. He has an open wound down there that has to be dressed every day because it is not healing. Should be starting remicade/revelex within jthe next 2 weeks if medical aid approves ? If not will have to make a plan - why does no one comment on the cost of this medication? i.e. Remicade/Humira etc or is it not so expensive as in S.A. Thanks a lot

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/17/2009 4:48 AM (GMT -7)   
Just one point on the tape. I am allergic to some of the tapes used to hold dressings on. You can buy fabric tape. Try that. It isn't as sticky, but I've found it much less irritating. If you can't find it in your local pharmacy, you may have to go to a medical supply store, but most towns have one nearby.

Also, I agree that it sounds like it is time to run to a second opinion. Any doctor who starts saying I didn't screw this up, is trying to protect themselves and not really concerned about their patients well being first and foremost.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 3/17/2009 7:36 AM (GMT -7)   
Mag, I have a fistula in the same place. The sooner you get treatment for it the better chance you have of it healing up. My GI described mine like this...he said it was like getting an earring. the longer it is there the more it will scar along the canal and eventually it wont heal on its own....like mine. I wear a small ostomy pouch on mine so it can drain into that and it works wonderfully. There are fistula pouches available but they are a bit pricey. I use an ostomy pouch made for small children and it works well. I will have to have mine surgically corrected once I get my nerve up. I would try the small pouches. they last for 3 to 5 days and need much less attention than a dressing requires plus if your output has an odor it will stop that too. Bets wishes. Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 6 months ago. Now on Remicade and iron. Feeling like a champ!
God Bless. Tony


crohn's pt mom
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 3/17/2009 9:44 AM (GMT -7)   
my daughter seems to have a reaction to many different tapes and bandages -- this time they used tape made from silk which was supposed to be hypoallergenic.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 7:47 AM (GMT -7)
There are a total of 2,735,830 posts in 301,337 threads.
View Active Threads


Who's Online
This forum has 151437 registered members. Please welcome our newest member, stevclemon.
280 Guest(s), 8 Registered Member(s) are currently online.  Details
TOOTY, Bucko, magoo2, Pratoman, fibrocushie, houseboy, trumpet123, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer