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Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 3/16/2009 6:29 AM (GMT -7)   
rolleyes I was wondering to the ones that take xifaxan what dose do you take????? My GI put me on it but, 2x2 a day 200MG for 7 days. It helps so much, what I was wondering was if you take it every day. My GI is one that He will lesson to other people. He knows I come here and find out things and has said if it could help he will try it. rolleyes



Dawn turn yeah
49 Female
Dx June 07 Crohn's take asacol 2x3 a day ,lotrel for HBP , omeprezole for stomach , potassium , calcium & Vit D , lomotil for lose stools , tramadol for pain , started humira in Feb 08 on 1 shot a week, vit-B 12 shots , crestor,off crestor,now pravastatin,off humira, pristiq, abilify,
Dx Bipolar May 08


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/16/2009 7:09 AM (GMT -7)   
There was a post recently about this med. You might want to try the search for this post and read what the others had to say. Most had great success with it.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/16/2009 7:26 AM (GMT -7)   
I have been on it for almost 2 years. 200mg pills, 2 pills taken 3 times a day. about 3 weeks ago I started taking 3 pills 2 times a day because I kept forgetting to take the mid day dose and I really haven't noticed too much difference.

The main change for me since starting this med is that I don't have so many trips to the bathroom. If you or your doctor want more information the drug company that makes the drug (sorry can't remember who it is off the top of my head) is really good about sending info. It is an off label use, but when I couldn't get my insurance to approve usage they stepped in and got my insurance to approve it within hours.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 3/16/2009 9:46 AM (GMT -7)   
I've been on it about 6 months, every day.The first 10 days were 200mg 3x a day MY GI says "play with the dose" whatever works for you. I'm on 2 a day now.
If I go off it, pain returns, swelling starts up inside (i feel it as stricture). On it I can eat a lot more solid food and feel better.

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 3/16/2009 9:47 AM (GMT -7)   
oh, I've also done 1 per day, it's good, but not as good as 2. :)

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/16/2009 10:15 AM (GMT -7)   
I'm on 1 200mg pill, 3 times a day. Same dose I was on last summer...
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 - now 2 months into it & it was the right decision
--currently taking budesonide suppositories, 3mg at night.  SLIPPING big time.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl


Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 3/16/2009 12:33 PM (GMT -7)   
One,it helps with the bloating and over growth of bacteria, and for me with no side effects.

sr5599, Do you take them every day????


I take them for 7 days then I can't take them again for 30 days. Thanks to all


Dawn turn yeah
49 Female
Dx June 07 Crohn's take asacol 2x3 a day ,lotrel for HBP , omeprezole for stomach , potassium , calcium & Vit D , lomotil for lose stools , tramadol for pain , started humira in Feb 08 on 1 shot a week, vit-B 12 shots , crestor,off crestor,now pravastatin,off humira, pristiq, abilify,
Dx Bipolar May 08


goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 3/16/2009 3:35 PM (GMT -7)   
I take two 200mg two times a day and it has worked great for me...didn't work for my pouchitis but definitely works for my inflammation above my pouch....I've been taking it prophalactically for about a month...love this pill b/c I have no side effects from it....

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 3/16/2009 5:50 PM (GMT -7)   
This is the second time I've started up... The first round I took them for about 2 months every day. By the 4th or 5th week I had dropped to 2 pills a day. This time I don't know how long I will take them. I see my doc next week and unless the low-grade fevers go away, I don't see stopping before that. It will have been about 2 1/2 weeks at that point. They are easy to take with pretty much no side effects.

I take Xifaxan because I cannot stand Flagyl and am scared of Cipro. The first time I was on Cipro for any duration I had severe ankle pain while I was otherwise on bedrest (no chance I overused or injured it). So I use Xifaxan when I feel like my fistula is acting up. It just seems to help in general, but I take it because of fevers.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 - now 2 months into it & it was the right decision
--currently taking budesonide suppositories, 3mg at night.  SLIPPING big time.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl


jid
Regular Member


Date Joined Apr 2005
Total Posts : 103
   Posted 3/19/2009 8:24 PM (GMT -7)   
I met w/ the drug rep on this because I wanted to know more about it. I don't take it everyday although i used to. I've taken between 2 and 10 a day depending on how i feel. I ALWAYS take 2 30-60 minutes before going out to dinner with clients or before I know I will be consuming alcohol. And let me tell you... it helps a ton 90% of the time!

That steak dinner with wine that has me excusing myself 4 times in 90 minutes... no longer the case w/ the Xifaxan.

I also find the effects to last up to 6 hrs or so. Then I take more if needed. But it doesn't get absorbed into the blood stream so you can take as much as you want w/o ODing. And trust me... i've tried!

CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 3/20/2009 5:30 AM (GMT -7)   
I've been on varying doses of Xifaxan for almost three years now. Right now my labs are normal. Now that's not to say I haven't had some bad days, but for the most part I've been in remission. This med is not approved for use in CD and it doesn't work for everyone, but it has worked for me. I haven't had any side effects either. One poster mentioned it doesn't enter the blood stream, which is true. Because of that it is thought to be much safer than other antibiotics--especially for long term use. (and i am concerned about being on long term, but my physician seems to think this one is ok....)

Salix is the manufacturer. Ne Ne, I would get in contact with them and ask for any case based studies they have done on long term use. They had some great information at ACG last year that your doctor would probably find useful.

Hope it works for you!

janicea
Regular Member


Date Joined Feb 2009
Total Posts : 350
   Posted 3/20/2009 8:09 AM (GMT -7)   
I'm a C not a D and what it's done for me is kept bacterial overgrowth under control AND seemed to help with the swelling of strictures. And like the others -- no side effects.

CrohnieYogi
Regular Member


Date Joined Oct 2006
Total Posts : 367
   Posted 3/21/2009 7:27 PM (GMT -7)   
Janicea--how interesting....I'm also a C and not a D.....when my doctor told me he wanted to perscribe something that is used for travelers D, I gently reminded him that D was NOT the problem. I was really concerned I would be backed even more than usual, but lo and behold--I am now a one a day girl!
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