any advice at all

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ERANJO
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 3/16/2009 10:34 AM (GMT -7)   
Sept 07 started having rt side abdominal pain, nausea. Had every test imaginable, finally had surgery, Ileocecectomy in July 08...everything seemed to be going good, I felt much better...guess what...its back, same exact pain, nausea...So far, another ultrasound today, the tech told me that everything looked ok, but I should wait to hear from my GI doctor.  Does anyone have any suggestions on what this could possibly be? Could this just be a flare up? I seen my GI last week, just so he could see me and check for an obstruction, but he really don't think its that...ANY ADVICE...please..please..please
 
Kelly confused

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/16/2009 10:53 AM (GMT -7)   
Hi Kelly Since it's not a obstruction it might be some sign's of crohn's activity going on or infection... a person would be guessing until you get some advice from your GI ...are you on any meds now for maintenance? Will be hoping it's not going to last too long.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


ERANJO
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 3/16/2009 11:02 AM (GMT -7)   

Yes, I am on Humira, I have been on that since Dec 07...well, I guess it would just be better to wait till I hear from my GI..prob just a few more days...Thanks

 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 3/16/2009 4:42 PM (GMT -7)   
Hi Kelly I see you are on Humira, how do you find that for a crohn's med and do you think it is helping you? Any word yet on what the Dr. thinks it might be perhaps try low roughage for a few days to see if it helps... lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/16/2009 5:13 PM (GMT -7)   
I think taking it easy until you can see your GI is a good idea.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 3/16/2009 9:13 PM (GMT -7)   
It could definitely be "just" a flare-up, like you said Eran, but that's no small deal if you're hurting and nauseated like you are. Sometimes, if you have scar tissue from past inflammation, certain parts of your intestines will be more narrow - making it painful when food passes that spot because it doesn't really fit... it could be that too... it could be so many things.

Do you feel that the Humira has been helping? I noticed that you said you've been on it since December 2007, but you've been through surgery and other agony since then... maybe the effectiveness of the Humira is something you need to talk about with your doc too?

I know it's a pain when you keep getting bounced around from one test to another doc, to another place, to another doc - but if you're in serious pain and the Ultrasound showed nothing, the only thing left is to talk to your GI, and it sounds from your first post like you just saw him without anything very helpful being learned... If you don't figure out something soon, maybe it's time for a new GI? A new opinion and perspective on things can make a world of difference...

Sending good thoughts your way.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
Noticing a real difference with a Gluten-Free diet.
Currently on:
Cimzia (loading doses 2-12-09)
Probiotics, Digestive Enzymes, and Prednisone


ERANJO
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 3/17/2009 6:04 AM (GMT -7)   
Thank you all for your responses...I am gonna chat with my GI about switching my meds...I have tried Pentasa, now on Humira, maybe the next step is Remicade?? I have also considered either switching GI docs or just going to someone else for a 2nd opinion...
I'll keep you posted...thanks again...Kelly
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