My Modulen Experience - Update

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colin84
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 3/16/2009 12:15 PM (GMT -7)   
A number of people are talking about Modulen on here so thought I would give you an update on my experience with it.
 
I am now on day 21 since I last had food. I went and saw my consultant today and all my blood tests show the inflammation has gone. He wants me to stay on the Modulen for another 3 weeks and then have another MRI scan to see what things are like.
 
I know some people are sceptical of Modulen but I have to say that after 6 years where steroids, humira and remicade have all failed as have a resection and a formation of a colostomy - Modulen is the only thing that has allowed me to be symptom free and feel like I did before the Crohns was diagnosed. And this is only after 3 weeks - studies show that it takes 5 weeks to achieve full remission so hopefully the best is yet to come.
 
I am trying not to preach but for the first time in 6 years I see light at the end of the tunnell. I am just really gutted that Modulen has been discontinued in so many countries. I am praying that the UK do not follow suit.
 
 
24 year old male from London
Crohns since 2002, Colostomy in 2002 and Small Bowel Resection 2005
Have tried Infliximab (Remicade) and Adalimumab (Humira)
Numerous spells on Prednisolone 40mg, Suspected Abscess in June 2007 - treated with antibiotics
Flare up in Feb 09 resulted in 2 week hospital stay
Now out and on Modulen - no food for ideally 8 weeks ARGH!!!!!
Also on Azathioprine 125mg
 


colin84
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 3/16/2009 3:57 PM (GMT -7)   
I started on 2000 calories a day and this has now been increased to 3000 calories. It all depends on your weight. I now get through 1.5 cans a day.

The dietican worked out my recommended daily allowance and I am now putting on some much needed weight
24 year old male from London
Crohns since 2002, Colostomy in 2002 and Small Bowel Resection 2005
Have tried Infliximab (Remicade) and Adalimumab (Humira)
Numerous spells on Prednisolone 40mg, Suspected Abscess in June 2007 - treated with antibiotics
Flare up in Feb 09 resulted in 2 week hospital stay
Now out and on Modulen - no food for ideally 8 weeks ARGH!!!!!
Also on Azathioprine 125mg
 


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 3/16/2009 4:07 PM (GMT -7)   
What wonderful news! I am so happy for you. It's so nice to hear success stories!:-) Blessings, Julie
Diagnosed with Crohn's March 2006, Fibromyalgia November 2008
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg three times a day, 1mg at bedtime (for anxiety attacks)
 
 
 
 
 


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 3/16/2009 4:35 PM (GMT -7)   
I hope it continues to work well for you and that the other members see the same results :) I'm only skeptical of the sugar content...but I understand some can tolerate it just fine. I won't deny I would definitely try it if I had access to it..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

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