A number of people are talking about Modulen on here so thought I would give you an update on my experience with it.
I am now on day 21 since I last had food. I went and saw my consultant today and all my blood tests show the inflammation has gone. He wants me to stay on the Modulen for another 3 weeks and then have another MRI scan to see what things are like.
I know some people are sceptical of Modulen but I have to say that after 6 years where steroids, humira and remicade have all failed as have a resection and a formation of a colostomy - Modulen is the only thing that has allowed me to be symptom free and feel like I did before the Crohns was diagnosed. And this is only after 3 weeks - studies show that it takes 5 weeks to achieve full remission so hopefully the best is yet to come.
I am trying not to preach but for the first time in 6 years I see light at the end of the tunnell. I am just really gutted that Modulen has been discontinued in so many countries. I am praying that the UK do not follow suit.
24 year old male from London
Crohns since 2002, Colostomy in 2002 and Small Bowel Resection 2005
Have tried Infliximab (Remicade) and Adalimumab (Humira)
Numerous spells on Prednisolone 40mg, Suspected Abscess in June 2007 - treated with antibiotics
Flare up in Feb 09 resulted in 2 week hospital stay
Now out and on Modulen - no food for ideally 8 weeks ARGH!!!!!
Also on Azathioprine 125mg