So sorry to hear you're having such bad headaches---they can certainly be miserable!! I have been on Humira for about 3 months, and have not seemed to have any Humira-induced headaches. Actually, getting headaches from Humira was one of my big concerns prior to going on it, as I suffer from frequent migraines and didn't want "just one more thing" contributing to them! Fortunately, I've lucked out in that respect.
You might want to talk with your gastroenterologist about this side effect you're experiencing; and you may also get some great feedback about this from the Humira support program website. Not sure if you're familiar with it, but their support program has nurses available (I think 24 hours per day) that will take phone calls and answer any questions you have about Humira. I've called several times with questions and concerns, and they've always been very helpful. Here's their website: http://www.myhumira.com/ On the left side of their web page, you can click on "Talk to a Nurse".
I hope you can find out if this is a "normal" side-effect of Humira (and if it will go away); or if this is a serious adverse side effect. It's always best to check it out.
Good luck, and please let us all know what you find out and how you are doing!
thank you spookyhurst and blossom for your input....
I will try to contact the humira nurses tomorrow. they are in a diff timezone than me. 8am-8pm est Rats!
called the humira site and they said that headaches were VERY common in humira patients but didn't give me any options for what to do about them. She also recorded my vision issues and said that a humira pharmacy rn will be calling me on mon. will ask them about the vision and headache stuff if and when they call. Interesting...
They took a lot of demographic info on me. Age, height, weight, address, what ethnicity I was, what meds I used to take prior to starting the humira etc. I know it is true but it still makes me feel wierd that we are all test guinea pigs for these companies.
Have a great weekend everyone and thanks for all your input!