First Humira shot cancelled again!

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goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 3/20/2009 11:48 AM (GMT -7)   
Ok...it has taken me a while to get on board and agree to take humira...while I'm fairly stable on cipro, entocort and xifaxin, my doc wants me off entocort...as do I as it is raising my blood pressure...but I flare every time I try to wean which is why  humira is being added to the mix...I tried to imuran first but had a bad reaction...so I was supposed to start humira last thursday but I had a low grade temp and what I thought was a uti...labs results showed I didn't have the uti...so the humira was rescheduled for this past tuesday but was cancelled b/c the nurse who was supposed to do the injection was ill...so it was rescheduled for yesterday and low and behold I felt like I had another uti and I had another low grade temp...now for the past several months I have had symptoms of what I thought was either a yeast or uti and nine times out of 10 it's nothing...I did actually have a uti last month, the first one in over a decade...usually it's yeast...anyway, the humira is now put off until I see a urologist...I have an appt. scheduled for monday with the urologist...I actually saw this doc 3 years ago for the same reasons and he ruled out interstitial cystitis...stated the symptoms were idiopathic and I moved on...it hasn't really been an issue until now...figures!!!...I'm finally ready emotionally to do this and now it's on hold...luckily I got in with the doc asap...to top it off, I hate the nurse practioner who will be doing the first injection...she was condescending, rude and obnoxious...made me feel like I was being a pain in the ass asking questions...I'm a medical social worker and advocate for the sick on a daily basis...I would never accept this behavior while advocating for my patients, yet I allowed this jerk to make me feel like crap!...I'm not going to allow this woman to touch me and I'm going to make sure my GI hears about how she treated me...and why do I need her anyway?...all my friends are nurses and can show me how to do the first shot...ok, I'm now rambling....thanks for allowing me to vent...I'm so tired...tired of this illness!

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 3/20/2009 12:30 PM (GMT -7)   
Hope things start going better for you!

I got Humira through their patient assistance program. My mom gave me all the loading doses at home (she still gives me the shots). We were totally winging it because my GI doctor never returned my calls. It all worked out fine, thankfully.

goldy3
Regular Member


Date Joined Feb 2009
Total Posts : 139
   Posted 3/21/2009 1:36 PM (GMT -7)   
Thanks for the support...I'm hoping my doc has another nurse in his practice otherwise I'm going to have one of my nursing buddies do my initial shot....
 

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