Question for annyb

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ladybug0709
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 3/20/2009 7:05 PM (GMT -7)   
Hi, Just had a question for annyb,
 
Hope this is not too personal. I noticed on one of your posts that you get a colonscopy every 3 months to dialate a chronic rectal stricture. What makes this therpay better rather than having surgery? I noticed you have had a few past surgeries. I am just curious - it seems like all GI's are different in there treatment and it scares me. My GI talked about trying to dialate but said it was risky due to a chance of perf.
 
Thanks in Advance.
 
 
Crohns almost 17 years. No surgeries. Currently taking Imuran and Entocort. Also take multivitamin/mineral supplement, omega -3 oil, calcium and vitamin D. Eat lots of yogurt. Limit wheat and gluten as much as I can.


annyb
Regular Member


Date Joined Feb 2009
Total Posts : 62
   Posted 3/20/2009 8:38 PM (GMT -7)   
Well, you are right. The GIs all have different answers. And there is a huge risk of perforation every time I go in for the process. In fact, I had that happen one time. Here are my reasons for going this route. Currently I am pretty much in remission except for a few mild spots. I am lucky (if you can call it that) that my stricture is very low. So it is somewhat insulated by muscle and less likely to perforate. To be honest the only reason that I have not opted for surgery is because the end result would be an ostomy. I'm pretty young and I don't really want to go there. I know that I will have to at some point. I'm just not there yet. But when I started this dilation therapy almost 15 years ago, there was no chance of reconnecting after a total colectomy but now there are take down surgeries and different kinds of continent ostomies. So basically, I take a risk to try to ride out disese in the hope that there will be a new therapy on the horizon.

Please don't hesitate to ask any questions. I am an open book.
 
 
Also... I wrote this after taking my Ambien so it may be a bit babbly.


Crohn's Disease - 29 years
Diagnosed at age 10 in 1979
1st ileosecal resection 1989
2nd colon resection 1993
Chronic "D" and arthritis
Chronic rectal stricture with colonoscopy every 3 months to dialate
Insomnia since 1980 - I love my ambien!
 
SCUBA diver, Master's degree student, college graduate, Pet therapist
 

Post Edited (annyb) : 3/21/2009 10:54:05 AM (GMT-6)


ladybug0709
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 3/21/2009 3:13 PM (GMT -7)   
Thanks for the feedback. Uhh! This disease makes me angry. I wish the best for you. What meds do you take? Currently, I am waiting for a surgery date.
Crohns almost 17 years. No surgeries. Currently taking Imuran and Entocort. Also take multivitamin/mineral supplement, omega -3 oil, calcium and vitamin D. Eat lots of yogurt. Limit wheat and gluten as much as I can.


annyb
Regular Member


Date Joined Feb 2009
Total Posts : 62
   Posted 3/22/2009 7:25 PM (GMT -7)   
Currently I take Imuran and Sulfasalazine for the CD. Plus all my "anti-crazy" pills and supplements.

You are waiting for a surgery date? Do you know what they are going to do? A recection or an ostomy? I know after each of my surgeries I felt a world of better.
Crohn's Disease - 29 years
Diagnosed at age 10 in 1979
1st ileosecal resection 1989
2nd colon resection 1993
Chronic "D" and arthritis
Chronic rectal stricture with colonoscopy every 3 months to dialate
Insomnia since 1980 - I love my ambien!
 
SCUBA diver, Master's degree student, college graduate, Pet therapist
 

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