Hi! There has been alot of discussion about what "normal" is. Everybody of course has their own illness pattern. I think that "normal" is what you are used to, can cope with, and allow you to run your life and do regular life functions. I'm very accustomed to my muliple bowel movements daily (3-7) and some periods of nausea. I always have blood and/or mucus. It that active Chrons? Is that normal? From a doctors view, I have active Crohn's, and for me, it's normal--it doesn't need fixing and I'm not suffering.
Well, I was wrong. Maybe I can splurge on DVDs when I get my tax refund like I did, but I cannot start a 140 dollar a month medications habit!! That's right folks, my copay is 140 dollars for Canassa. I won't be getting it. If my doc can't get me samples to try first I'll never get the first prescription.
Some have asked about my health. Basically, I do feel great. I thought I felt great when having my first flair, but I guess I was pretty sick. At least my fissure was a sign of that! Right now I have inflammation that causes me pain on random days when I go do #2. Today I'm fine. Two days ago I felt sure I was developing a fissure and started to call the GI.
Mainly, I feel good enough to ignore the pain that I can take care of in non medicative ways, but not good enough so that I feel comfortable going to the restroom everyday. When I compare to how I felt before Remicade my pain is easily put aside. But I will probbaly go see the GI just to make sure I'm ok. Eventually/