PG treatment update

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kimmy2
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 3/23/2009 1:05 PM (GMT -7)   
Hey everyone,
     I thought I'd give you the skinny on what's going on with the PG treatment.  I went in for my morning IV therapy and saw the dr today.  I am finished with the IV antibiotics and am making the switch to oral steroids this afternoon.  I will go on 60 mg of Prednisone for 3 days, 40 mg for 3 days, 20 mg for 3 days, 10 mg for 3 days, and 5 mg for 3 days.  I will continue putting the silver sulfadine cream on daily.  I received my Cimzia injections on Friday and the PG ulcer looks like it has finally stopped growing!!  It is still raw and sore, put at least progression seems to have stopped.  I'm having some trouble getting my potassium to regulate at an acceptable level, but that's minor compared to other issues.  I wish everyone the best health possible, and if you need any questions answered feel free to contact me.  I really feel fortunate to have got on top of this so quickly and am thankful to the kimmy team of dr's.  I still have the PICC line in and they say it will probably stayin another 2 weeks until we're sure my body will take to the oral meds.  I can't wait to take a 2 handed shower again, you don't realize how much you take for granted until things like this happen!
 
love to all.
kimmy yeah
diagnosed CD '03 after suffering for 10 yrs.
 
re-section surgery '05, Chronic Pancreas problems, joint and muscle issues (from Remicade), diagnosed March '09 pyoderma gangrenosum
 
meds been on-Asacol, Pentasa, Lialda, Remicade, Humira, 6-MP, Methotrexate, Rowasa, Prednisone, too many pain meds to list
 
Currently on-Cimzia, Cymbalta, Reglan, Pamine Forte, Methotrexate, Folic Acid, Probiotics, Phenergan, Omeperazole, and Klonopin(RLS) (IV Vancomycin, Fortaz, Solumedrol, and Lasix)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/23/2009 1:16 PM (GMT -7)   
Glad to hear you are improving. Hopefully all this will heal up your PG sores in no time and you'll get to take a two handed shower soon:)

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/23/2009 3:11 PM (GMT -7)   
I too am delighted to hear that things are being to look more positive in this PG battle. Continued healing!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/23/2009 3:22 PM (GMT -7)   
I am truly happy that you were on this and your Kimmy's team to get the TX done asap

I have suffered for many many yrs until I have been with my new doc
I am currently with a big asket one on my thumb agian
Seeing the doc ...........

Time for the orals again
I have no option for Picc line again
My doc is too afraid of one breaking out inside from Picc line........
But this is sure good /great news for you ............

LYN
 DX: Crohns,Pyoderma Gangrenosum,Anxiety/Panic,
Fibro & Other DD

Donate at  www.healingwell.com
 
                               Moderator@Alzheimer's..
              CO Moderator @ Anxiety and Panic........Co Moderator   @ Crohns                    
                            Keep The Fight Going..Or YOu Will Lose
               Look For The GOOD, Even At Your Lowest
  We Have Anxiety and Panic...................Anxiety and Panic DO NOT Have us         
   
                                     LYN


kimmy2
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 3/24/2009 11:16 AM (GMT -7)   
I made it through the first day on oral steroids and everything seems to be going good. Work is getting easier, especially not having to go to IV therapy before everyday. I see the dr on Fri. and we go from there. I really think the Cimzia has had a positive effect on PG, those of you strugglling may want to mention possibility of biologics to help with PG disease.

Good luck fellow PGers,
kimmy
diagnosed CD '03 after suffering for 10 yrs.
 
re-section surgery '05, Chronic Pancreas problems, joint and muscle issues (from Remicade), diagnosed March '09 pyoderma gangrenosum
 
meds been on-Asacol, Pentasa, Lialda, Remicade, Humira, 6-MP, Methotrexate, Rowasa, Prednisone, too many pain meds to list
 
Currently on-Cimzia, Cymbalta, Reglan, Pamine Forte, Methotrexate, Folic Acid, Probiotics, Phenergan, Omeperazole, and Klonopin(RLS) (IV Vancomycin, Fortaz, Solumedrol, and Lasix)


paintedsongs
Regular Member


Date Joined Jul 2005
Total Posts : 207
   Posted 3/25/2009 4:52 PM (GMT -7)   
Kimmy! Wonderful to hear you finally have some sunshine in this dark deep hole of PG. Please keep us posted. I find it encouraging to hear good news from other suffering from this and its good to hear the tx others receive. best wishes for continued healing..
29 Year old Female. Dx with Crohns 2005. Currently take Imuran 50 mg. Had 3 remicade infusions which put me in remission.
Dx with Pyoderma Gangrenosum Nov '07. Used Prednisone and 3 more infusions to close up the PG.
I do believe everything happens for a reason, but I still am waiting to figure this one out :)

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