Pain Management folks

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xraygrrl
Regular Member


Date Joined Aug 2004
Total Posts : 102
   Posted 3/23/2009 5:02 PM (GMT -7)   
After my last doctor's visit, I've been thinking about seeing a pain management specialists so I won't have to worry about fighting with anyone for pain medication. I know a couple of folks on here see a pain specialists & I was hoping I could get some info. I have a PPO so I don't generally need a referral but do you need to have your GI or PCP refer you? Does your GI agree with your decision to see a pain specialist? I know some frown on that. Any input anyone has would be helpful. I'm very nervous about it, mostly because my PCP treated me like a total drug addict.

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 3/24/2009 7:22 AM (GMT -7)   
I think we all understand your concerns. I understand you dont need a refferal, but a lot if not all pain management drs want a letter of necessity, from any of your doctors explaining why they feel you would benefit. I know in a way my GI doesnt like me seeing one, but in a way he likes it because he knows one drs is regulating everything. But on the other hand my PCP and surgeon think its a great idea. It might take you a few drs to find the right one, and you might get discouraged, but dont stop until you find the right fit. The reason for Pain Mangement is not to get you pain free, its to get you as close to your pre-pain level life as possible with as little medication as possible.

xraygrrl
Regular Member


Date Joined Aug 2004
Total Posts : 102
   Posted 3/24/2009 7:39 AM (GMT -7)   
Thanks, ChronsPatient. I'm accepting the fact that I may never be pain-free and that's ok.

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 3/24/2009 7:46 AM (GMT -7)   
Serioulsy you shouldnt give up on finding a dr. The First dr I found GREAT, amazing, then he moved out of the area, and he was offereing some treatments that only he was doing on the east coast. He's now a professor at Yale Medical Schoool teahing pain management and anastesiology. It took me 2 years to find another dr that Im happy with and ive been with this dr for one year now. in that two years I went through 5 or 6 pain drs, to the point that even III felt i was almost dr shopping, but I knew that our personalities just clashed and things like that. You will find the right dr and you will get relief. Remember you can always go to University Hospitals and Teaching Hospitals or Bigger cities and there will be many more options, but keep in mind, a dr in his own private practice has more say so and what i say goes for his patients...

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/24/2009 10:45 AM (GMT -7)   
I had to suggest it to my PCP, but once I did, he was all for it. The pain management clinic I go to really specializes in backs so I really am out of their realm. But so far they have been fine for my needs. But I also realize that I have minor chronic pain. If my pain level were more severe I would need someone who specialized in treating pain on a more specific level. However, it does make a world of difference knowing that you don't have to fight with anyone to have your pain managed. It was getting to the point with my PCP where he would only give me pain medication every so often. I would be afraid to eat anything for fear of pain. I would dread the idea of having to call and ask for pain medication. And I was afraid that I was being treated like an addict, when really I am just a crohn's patient. With my insurance, I can go to any doctor within my hospital without a referral. But everyone's insurance is different. You can call your hospital and find out if they have a pain clinic and what their policy is regarding referrals, and then follow up with your insurance, just to cover your bases.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 3/25/2009 11:57 AM (GMT -7)   
I have had a couple g.i. docs since I been going to pain management. I am even on my second pain management doc. I got lucky, and found a pain management doc who is also a psychiatrist, I think it's a wonderful match.

There are a couple of things I wanted to let you in on, if you go this route, which I hope that you do.

Your g.i. doc may not like you taking pain meds. Mine does not like it, but it's more in the way of, I would like to see you off these meds eventually.

The first pain clinic I found was great for many years. Towards the end of my treatment with them, they started insisting I have nerve blocks done. This is where a needle goes into your spine to help with pain, sorta like when a woman is in labor. I did not see how this could help me, and I was doing fine on the oral meds. I NEED to be able to feel my insides at least a little bit, to have an idea of what is going on, I don't want my whole abdomen area numb all day from a nerve block.

When they said either do the blocks or your meds will stop, I walked, and found the pain doc + psychiatrist I now continue to see. He does NOT do nerve blocks. My point being, I know these people sorta have you by the cahonies, but don't let anyone talk you into anything that you are not comfortable with. Come to find out, they have to, legally, and they did, give me scripts for the next 3 months, while I found a new doc, even after I left them.

Your primary care doc may give you these meds, but once, and if, he feels any heat from the dea, he will stop, and is not obligated to give you another 3 months of them, you are off to face withdrawls on your own...

It's alot to handle, and at times it will make you frustrated, but in the end my quality of life is so much better on these meds, I hope that they do the same for you.

Good Luck
CD dx @ 13 (1987)
Prednisone 8mg every other day
Imuran 100mg day -- Stoppped March 09
Celexa 20mg day
Pain Meds -- Morphine Sulfate
Vitamins + B12 Injections Once Per Week
Gallbladder Resection -- 3/19/09 -- Fingers crossed


xraygrrl
Regular Member


Date Joined Aug 2004
Total Posts : 102
   Posted 3/25/2009 12:32 PM (GMT -7)   
Thanks for the advice, HomeBoy. I currently get hydrocodone from my PCP but at my last visit, she said she didn't think that I needed it since "most people with Crohn's don't have pain". I feel sick enough without being doubted by the people that should be helping me!

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 3/25/2009 1:19 PM (GMT -7)   
That's one strange Dr. who thinks Crohn's patients don't have pain. Where did he come from? I say quick get new Dr.!! Hope it all works out for you.
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