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kiki87
Regular Member


Date Joined Oct 2008
Total Posts : 79
   Posted 3/23/2009 8:01 PM (GMT -7)   
does anyone else feel tired all the time or just drained of energy as the day goes by? my family can't seem to understand why i am always so tired? most mornings when i wake up i'm not rested or i'll start to feel really tired as the day passes. is this something that happens with crohn's? my GI said fatigue is one of the common symptoms and they can't really explain why. my iron levels are on the low side but i am not anaemic. just wondering if anyone else seems to feel this way most days?

MustLoveDogs
Regular Member


Date Joined Jan 2009
Total Posts : 394
   Posted 3/23/2009 8:08 PM (GMT -7)   
Fatigue was the first symptom my daughter complained of. She was ALWAYS saying how tired she was and it was so upsetting to gr a 10 yr old compain of being too tired to go out and play!! Her iron levels were OK but she was just so lethargic.

Hang in there..your family won't understand because they are not feeling what you are feeling :(
Gwen
 
10 yr old daughter diagnosed with "UC-like Crohn's" 12/08
currently on 2400 mg Asacol 


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 3/23/2009 8:11 PM (GMT -7)   
Yes, Crohns does something to make you fatigued.
Funny thing, I used to so tired and exhausted and would crash out before 9 P.M. I would get B-12 injections every other month and it didn't seem to help. But since my surgery, I have not had any problems with being tired or fatigued. It is 10 P.M and I'm still going strong. I don't know what it is, other than maybe that bad section of intestine was a burden on my body and was zapping energy from me.
I don't have any proof, but I'm going to stick with that for now.

Stay strong!
Wolfie
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/23/2009 8:31 PM (GMT -7)   
Researchers have finally recognized that chronic illnesses like IBD do cause fatigue (it's fairly common) just try and rest when you can, eat as healthy as possible (avoiding processed foods/beverages, fast foods, sugar as those can exacerbate fatigue) and try a little exercise daily, even just 30 minutes a few days a week can make a world of difference.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 3/23/2009 9:39 PM (GMT -7)   
i am so tired and my body seems so weak that sometimes it's hard to stand up or climb a flight of stairs...it's horrible!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/23/2009 9:42 PM (GMT -7)   
Disease linked to fatigue
Updated: Tue Feb. 17 2009 16:56:42



A research team at the University of Calgary believes they have discovered why diseases, like arthritis, make people so tired.


Dr. Mark Swain has found that inflammatory diseases like arthritis, inflammatory bowel disease and liver disease, allow so-called "immune" cells to infiltrate the brain and it's those cells that cause fatigue.


Dr. Swain says the fatigue can often be the worst part of a disease and that the next step is to reverse the process which in turn will stop the fatigue.


"I think when people have profound fatigue that's associated with inflammatory disease, they'll often say that it's the most incapacitating thing that they're experiencing from their disease and if they could only get over the fatigue, they could deal with the other aspects of their disease," says Dr. Mark Swain from the University of Calgary.



:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Trad
Regular Member


Date Joined Mar 2009
Total Posts : 24
   Posted 3/24/2009 1:58 AM (GMT -7)   
I actually only felt tired after starting medication, i'm on ciprobay, flagyl and immuran waiting on my medical aid to start refelex. Sorry dont really know all the US names for the medication hope you all understand. I have a colostomy so eating isn't really an issue but flagyl can make me feel so sick that I cant put anything in my mouth.

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 3/24/2009 3:49 AM (GMT -7)   
The fatigue is the worse part for me. I can handle the pain and the D, but the fatigue makes it almost impossible to have a life.It is really the only part of this disease that makes me feel like I am "sick". Luckily I am feeling good right now, and am going to enjoy my family and friends as much as possible.

My family doesn't understand the disease, but are getting better. My kids are older now and when I say I am feeling tired I don't have to feel so bad about not making a wonderful supper or playing games in the evening. I hope you are feeling better soon. Take care of yourself!

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney diease in 1996
I was in remission for 16 years, Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


dreamer06
Regular Member


Date Joined Jun 2008
Total Posts : 221
   Posted 3/24/2009 4:01 AM (GMT -7)   
I have been really tired lately too. I find it hard to get out of bed but once I do I seem to be okay for a few hours but then I crash and want to go right back to bed. I also am finding it hard to concentrate on anything. I had surgery last week and I thought that would help with the fatigue but it hasn't. I feel depressed because I am so tired which is just making me more tired. LOL.

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 3/24/2009 10:01 AM (GMT -7)   
Fascinating article, Pb4... :)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/24/2009 11:21 AM (GMT -7)   
Thanks Celey, its definitely worth copying to have on hand so when friends, co-workers, family members give you grief you can just shove the aritcle in their faces and leave it at that LOL.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/24/2009 11:28 AM (GMT -7)   
I am in remission right now, but I can tell you fatigue is a big problem still for me. My husband always jokes about how I take a nap before I go to bed everyday. Never fails about 1-2 hours after I get off work, I am asleep on the couch. My husband has to wake me up to go take a shower, which I do, then shortly after my head hits the pillow I am out again. So you are not alone.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/24/2009 1:58 PM (GMT -7)   
Fatigue seems to be something that most of us have at some point if not all the time. I have found that B6 helped for a long time, but recently my fatigue came back and I could climb back into bed almost as soon as I get out of it. I'm sure it doesn't help that I don't sleep very well most nights. I have been trying to lie down most days, even if I don't fall asleep. Just resting for half an hour seems to help.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Betagirl
Veteran Member


Date Joined Jan 2003
Total Posts : 1928
   Posted 3/24/2009 6:02 PM (GMT -7)   
This by far is my worst symptom. I can sleep 16 hours a day if you let me :)
"Only the meek get pinched...the bold survive."


jamief
Regular Member


Date Joined Feb 2005
Total Posts : 200
   Posted 3/24/2009 9:29 PM (GMT -7)   
I have the same problem. Even when I fall asleep early I still have trouble getting the kids to school in the morning.

Xx Claire xX
Regular Member


Date Joined Mar 2005
Total Posts : 94
   Posted 3/25/2009 4:48 AM (GMT -7)   
i feel exactly the same. can have about 10 hours sleep and not feel rested. then about 3 or 4pm ill have a 2 hour nap and still go to bed at normal time and sleep right through. nobody understands why i could be tired, they dont understand and its very frustrating. my family especially say why are you tired you havent done anything all day it really annoys me. hopefully one day they'll find somethin that helps!!!!!
Claire, 18
Diagnosed with Crohns march 2005
started on Liquid feed for 2 months +12 a day prednisolone,
Aziothioprine 100mg
pentasa 1500mg
calcium and vitamin D
 
Small bowel resection october 2006
 
Osteoporosis diagnosed 2006
Possibly relapsing! :(
 
 
Life is what you make it!!!
 
 


Wonderwen
Regular Member


Date Joined Mar 2009
Total Posts : 52
   Posted 3/25/2009 5:08 AM (GMT -7)   
I call "rest" one of my medicines. I used to feel guality for napping during the day. But my family now understands that it is vital to my health to rest my body.

cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 3/25/2009 5:58 AM (GMT -7)   
I have been tired for over a year--just started taking B-complex and actually feel a little less tired :)
age 41,diagnosed with CD in 11/07, Rx Pentasa 4000mg and Remicade.


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 3/25/2009 10:31 AM (GMT -7)   
Yes, fatigue is so frustrating... I'm not a very good sleeper, but just sitting and relaxing for a while helps... and not "looking sick" doesn't help how people view it - "why don't you want to do anything?"
32 year old female... diagnosed with Crohn's/Colitis at age 16, then with Proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, tapering dose of 40mg Prednisone, Bentil and Percoset as needed... considering Remicade


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/25/2009 11:22 AM (GMT -7)   
This is a chronic illness and no one should feel guilty for napping or taking longer sleeps, it doesn't mean you're lazy, you cannot help feeling tired, as the article I mentioned above says, it's due to "so-called "immune" cells to infiltrate the brain and it's those cells that cause fatigue." So no more feelings of guilt you guys.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 3/25/2009 1:20 PM (GMT -7)   
That's nice of ya, Pb4... but... I think I'll feel guilty, anyway... I always feel like I should be doing more... More often than not, I find myself fighting to keep awake just so I can do more... //^_^\\'
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Allison77
Regular Member


Date Joined Feb 2005
Total Posts : 421
   Posted 3/25/2009 2:48 PM (GMT -7)   
Ick! I get up in the morning, haul myself into the shower and then just stand there hoping and wishing for 5pm!! Dosen't matter that I slept a full 10 hours, I am always tired!
-Allison
RX Crohn's 1999, over 30 surgeries, 3 strokes, still kickin!!
 
"The most unfortunate thing that happens to a person who fears failure is that he limits himself by becoming afraid to try anything new."


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/25/2009 5:43 PM (GMT -7)   
Celey said...
That's nice of ya, Pb4... but... I think I'll feel guilty, anyway... I always feel like I should be doing more... More often than not, I find myself fighting to keep awake just so I can do more... //^_^\\'

celey don't put yourself through that (it's probably not good for your health!!!) take each day as it comes, if you're tired everyday then so be it, that's the way it is for you so don't waste guilt on that.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 3/25/2009 6:47 PM (GMT -7)   
I think guilt is a natural part of my personality, sometimes... I feel guilty for everything, and I do mean everything... I'm trying to get a better handle on things, though.... (Have been for years, but I'm hoping to make more progress)...

//^_^\\'... And I'm getting pretty tired of being tired (but I'm glad I'm not feeling sick, I've been having a few moments... but I'm not sick all the time, and that's the important things)... I got more important things to do than be tired all the time... *LOL*

Though, I guess I'm not the only one... //^_^\\'
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


kiki87
Regular Member


Date Joined Oct 2008
Total Posts : 79
   Posted 3/26/2009 2:09 AM (GMT -7)   
thanks everyone for all ur replies! really appreciate it, and it helps to know that others are feeling the same way!
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