Perianal Crohn's disease

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Trad
Regular Member


Date Joined Mar 2009
Total Posts : 24
   Posted 3/24/2009 1:28 AM (GMT -7)   
Hi I am new here, my mother is anniegotyourgun and she introduced me to healingwell.
 
In March 2006 I got a boil in my perianal region went on about 3-4 lots of broad spectrum anti-biotics............. to cut a long story short I have been diagnosed with perianal crohns after being diverted for almost 12 months.
 
Is perianal crohns common???
 
 
 
 

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 3/24/2009 4:22 AM (GMT -7)   
Welcome Trad!

I have what you have, but I think it is not that common to only have peri-rectal/anal CD. There are several people that post on this forum who also have rectal abscesses and fistulae, but most have the more typical CD symptoms too. I am quite happy to not have other symptoms on top of peri-anal problems!!

I am glad you are online now. Your Mom did a great job of searching the site to see other's experiences with this darn disease. I've found lots of great advise and very caring people. It is very nice to know that others have the same problems and they have come through it OK.

Take care!
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 3/24/2009 7:14 AM (GMT -7)   
I believe what you had was an abcess. And that would most likely mean you have Crohns Colitis which is not as common as the crohns in the terminal illieum or small bowel. I started the same way, after multiple surgeries and no colon left, it moved onto my terminal ilieum in which obviously I didnt have crohns colitis anymore....

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 3/24/2009 8:15 AM (GMT -7)   
I have colon and rectal issues. I replied to your other post also. I used to have the constant anal drainage before remicade. But remicade has stopped that, now I just have the drainage from the fistula.

Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 3/24/2009 8:54 AM (GMT -7)   
I have peri-anal CD. It has spread through my large intestines, but it primarily was in my descending colon and rectum when it all started. They went back and forth on whether it was CD or UC, but eventually, a doctor finally told you.. "You can't have UC if you have fistulas, abscesses, fissures, and skin tags." So, it was clarified, I have CD...and it is PRIMARILY perianal..and also one of the most painful locations because that is where a LOT of nerves are located.

I'm on Humira after failing a ton of drugs, but now I've had a severe reaction to the Humira and not sure if I'll be allowed to continue.

Welcome..these people are awesome here and answer my many crazy questions!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/24/2009 11:26 AM (GMT -7)   
I have perianal crohn's skin tags, they are large hard and painful lumps, they were mistaken for hemherroides so they banded them during a bad flare (this was how my CD started, with the anal skin tags), that stupid surgery just made things worse, but I've been warned never to get them cut off or anything at the high risk of them not healing up properly and forever dealing with an open wound causing re-occuring infections due to the location comming right out of the opening of my anus. It sucks.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Trad
Regular Member


Date Joined Mar 2009
Total Posts : 24
   Posted 3/26/2009 5:55 AM (GMT -7)   
Thanks Crohnspatient, luckily it seems not to have move up since dec 06 and i have had no medication for it until it flaired up again in late 08-till feb 09. drainage of abcess after abcess has also left me with almost no control but also no diagnosis. Now a bit late the Dr said removing the colon will most likely get rid of the crohns all together but thats not an option. (It would have to be medically necessary). The Abcess/fistulas are very aggressive and destroy tons of tissue as they travel my Dr. says hes never seen so much damage from fistulas. But i guess that the crohns aspect. The first abcess didn't burst out my skin but burst inside and traveled on the outside of my sphincter muscel and burst back into my rectum

Trad
Regular Member


Date Joined Mar 2009
Total Posts : 24
   Posted 3/26/2009 5:58 AM (GMT -7)   
I guess i am lucky i have absolutely no other symptoms of CD. I also just thought i had menheroides. biopsy found ??granulomas?? so as far as i understand its either TB or CD. And living in africa i've had every TB test you can think of and all come back neg.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/26/2009 11:56 AM (GMT -7)   
Removing the colon will not get rid of the crohn's all together because crohn's can affect any part of the GI tract from mouth to anus and typically when they surgically remove areas that are diseased, the disease will manifest in another part of the GI tract (and can often affect more than one area at a time). For those with ulcerative colitis, getting the colon removed is considered a "cure", but not for crohn's.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 3/26/2009 2:23 PM (GMT -7)   
my crohn's is pretty far up, but i also get fissures and rectal bleeding quite often. if its uncomfortable to sit/walk because of your bum, i've found that calmoseptine works wonders. you can get it at any pharmacy, but most dont keep it in stock, so you have to ask them to order it.
21, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 3/27/2009 9:49 AM (GMT -7)   
Trad: Many people have Crohn's isolated to their colon/rectal/anal area.

PB4....

I had a total proctocolectomy (they took out the colon, rectum, and anus). Now, there is some chance that I will get Crohn's symptoms in my small bowel, but so far so good. I have talked to many others who only had disease in the bottom end, and after surgery, never had problems again.
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/27/2009 12:18 PM (GMT -7)   
I always hope for every CD that gets theire colon/rectom removed to never have re-occurance in their small bowel or other areas left, and many go for yrs and yrs with no disease activity after removal but the stats on re-occurance kinda suck....I'm glad for you Glad Bag that so far so good, keeping fingers crossed for you that it stays that way.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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