Food : To eat or not to eat?

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Anniegetyour gun
Regular Member


Date Joined Mar 2009
Total Posts : 20
   Posted 3/26/2009 4:01 AM (GMT -7)   
Can anybody give me sound advice regarding whether what you eat or dont eat makes any difference when you have perianal (rectal/perineum) type Crohns with a colostomy (stoma).  Many kind hearted people and friends keep giving me the same old story about diet, diet and more diet being so IMPORTANT.  As well as trying to sell certain products without naming them but starting with HERB.............
 
Does what you eat cause or increase a flare up of Crohns on the abscess/fistulae wound?  I am under the impression that since one does not suffer with cramping, diarrhoae (diarrhea US)  (what a complicated word) and the associated symptons, does it actually make a difference?
 
If it does - I'm all for change and adaptation (but I would like to confidently be able to say to the concerned people that one can eat as normally as the next person who does not have Crohns with this particular manifestation of Crohns disease).
 
Thanks and hope that today is a GOOD day for MANY on the forum.
 
Annie
Concerned and loving Mom


colin84
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 3/26/2009 5:47 AM (GMT -7)   

Hi Annie

I have crohns in the colon, and rectum and have had a colostomy since 2002. I have always thought food could be a key factor of a flare but it has been very difficult to go back to scratch to find out what foods cause a flare.

However after a nasty flare last month and having tried every drug available my consultant has put me on Modulen so therefore I am not eating anything. I am 4 weeks into it with another 4 to go.

This now gives me the perfect opportunity to reintroduce food and see if diet does cause a flare. I will keep you informed.

Colin


24 year old male from London
Crohns since 2002, Colostomy in 2002 and Small Bowel Resection 2005
Have tried Infliximab (Remicade) and Adalimumab (Humira)
Numerous spells on Prednisolone 40mg, Suspected Abscess in June 2007 - treated with antibiotics
Flare up in Feb 09 resulted in 2 week hospital stay
Now out and on Modulen - no food for ideally 8 weeks ARGH!!!!!
Also on Azathioprine 125mg
 


Anniegetyour gun
Regular Member


Date Joined Mar 2009
Total Posts : 20
   Posted 3/26/2009 7:06 AM (GMT -7)   

Hi Colin

Thanks for your response.  Would you mind answering the following questions for me?  Hope I am not being too personal. - but have good reasons for asking.

Why did you not continue with either (Remicade) or (Humira) or (Prednisole)?

When you say you have a bad flare - may I ask how and what happens to you?

Is your colostomy permanent?  As a young man how do you deal with the effects of a colostomy?
 
What meds are you currently on?  And are they working for you?

Thanks much appreciated
ANNIE
Concerned and loving Mom


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/26/2009 7:32 AM (GMT -7)   
You introduce foods like would with a child. Start small like mash potatoes, soups, jello, puddings, etc. very slowly.
 
 


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 3/26/2009 8:35:25 AM (GMT-6)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 3/26/2009 8:56 AM (GMT -7)   
I've been following the Specific Carbohydrate Diet (SCD) for the last 4 months. You don't eat any starch, gluten, lactose, or sugar. I've found it very helpful, and have had 2 fistulas close up. It's a strict diet, but very doable. I'm eating healthier than I ever have in my life, and although "illegal" food can still make me drool, I don't have any desire to actually cheat and eat it.

http://www.breakingtheviciouscycle.info/

colin84
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 3/26/2009 11:48 AM (GMT -7)   
No Problem

Remicade and Humira didn't work for me. Prednisolone only works on a very dose and i have osteoporisis in the hips because of it.

The nasty flare resulted with me being in hospital. I had severe diarrhea, stomach cramps and fatigue to the extent I was passing out. I also developed skin ulcers (I have very severe crohns!!!!)

I am now on Modulen which is working like nothing else before. I feel really good on it!!! I am also on Imuran but don't think it is doing a lot!

Colostomy is only temporary BUT...... I have had it since 2002 and the crohns is still too active to reverse. I think I have it for life and am probably going to have to have my colon and rectum removed in the near future.

I get on absolutely fine with it. I was so ill before I had it, it was a relied to have the op and feel better. I have been through college and university and it hasn't held me back. The only think stopping me living my life is the darn crohns. Colostomy hasnt stopped me having relationships and I did all the usual uni stuff......!!!!!!!!

Hope that helps!
24 year old male from London
Crohns since 2002, Colostomy in 2002 and Small Bowel Resection 2005
Have tried Infliximab (Remicade) and Adalimumab (Humira)
Numerous spells on Prednisolone 40mg, Suspected Abscess in June 2007 - treated with antibiotics
Flare up in Feb 09 resulted in 2 week hospital stay
Now out and on Modulen - no food for ideally 8 weeks ARGH!!!!!
Also on Azathioprine 125mg
 


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 3/26/2009 4:56 PM (GMT -7)   
I think food makes some difference for me but not for everyone. Certainly having the crohn's at the end of intestine with any constipation from foods makes for lots of pain and pressure to where it all comes out. Also when I had a fissure higher up than anus it was extremely painful with any constipation. Now I try to eat as much fiber as intestine will stand, there is a limit and then I take stool softener at night (which I read about on here,thank-you,thank-you) and have been happier ever since. From what my Dr. told me the intestines can get worse without feeling awful. Hard to imagine for me.

I get the same type of friends wanting me to try the various magic elixirs. I have even tried one (not cheap in cost) but I was way too sick for that kind of gentle help.

I flared for three+ yrs. straight and when I was in between what they would do next, I got a lot better. Go figure!!?? So after that lovely reprieve I am getting sick again so the holiday is over. I'm not sure where the line is of flare or just few bad weeks. Anyone else care to enlighten me too?

mintyamy
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 3/26/2009 6:24 PM (GMT -7)   
A low-residue diet is the ticket for me.  I eat very low fiber foods and drink ton's of water! It's the only diet restictions I give myself. Food shouldn't control your life, but unfortunately with Crohn's, that's the way it is.  The diarrhea of course will always be there, but the bloating, gas, and pain are all gone! 
 
 


Anniegetyour gun
Regular Member


Date Joined Mar 2009
Total Posts : 20
   Posted 3/27/2009 7:56 AM (GMT -7)   
Hi All
Thanks for the answers, but I am still in the dark about food intake.  My son has been diagnosed with severe perianal Crohns and although he never gets any intestinal type symptons like D, cramps etc., he gets aggresive fistulas and abscesses.  Has been diverted (colostomy - should be temporary but going on for a year now) meds 200mg Imuran, hoping to starting Remicade as soon as our Medical Aid decide if they are going to pay.  Exhorbitant costs not so? 
 
So there we are - does what he eats affect his Crohns or not?
 
Have a lovely day and be blessed
 
 
Colin,
You sound like you have really achieved much in life in spite of the disease.  My son has also coped well with what life has dished out to him.  Married to a lovely wife - just had a beautiful baby boy and got his B.Com Degree with Honours.   (Goes by the name of Trad on the forum maybe you could encourage him further since your situations sound so similar).
Concerned and loving Mom
Johannesburg - South Africa

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