Starting Remicade soon... any tips?

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leabug
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 3/26/2009 1:35 PM (GMT -7)   
Hey there!  I'm new to these boards... after struggling with very severe Crohn's for two years, my GI has decided it's time to try Remicade (since I had surgery not too long ago, and already they've found a fistula.  Goody.).
 
Is there anything I should know, beyond what's in the typical info sheets?
 
Thanks,
Lea
DX with Crohn's at 21 in '06
Resection of TI and Cecum/3 Strictureplasties in May '08
I've been on most entry-level meds out there: prednisone, AZA, pentasa, ciprofloxacin, metronidazole, etc etc etc... starting Remicade soon, after discovering an enteroenteric fistula.
Flock of Parrotts- my family blog.

Post Edited (leabug) : 3/26/2009 2:47:25 PM (GMT-6)


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 3/26/2009 2:19 PM (GMT -7)   
plan on spending the whole day at the hospital and/or doing something mellow. I always got tired after the infusion, and the infusion takes a while, so bring a book or something. aside from that, i never had any problems with it. i hope it puts you into remission and keeps you there :D
21, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 3/26/2009 3:54 PM (GMT -7)   
Ive been on Remicade for 8 months now and so far so good. I had no reaction to it at all but it does tend to wear off early once you get to the 8 week interval. I don't know if thats the case for everyone but it does with me and Ive heard many others say the same. I hope it helps you feel better. Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, Flagyl, B-12 injections and iron. Feeling much better!
God Bless. Tony


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 3/26/2009 5:09 PM (GMT -7)   
I was super stressed the first time i got remicade so i asked for something to calm me down :)

Because panic attack and the side affects can be similar. And I did not want to have to stop the infusion due to a panic attack :P
So I got some Xanax and I did not feel a thing actually fell a sleep during the infusion.

Good luck hope Remicade works for you.
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 3/26/2009 5:33 PM (GMT -7)   
I have been on remcade for 4 1/2 years. It has given me my life back. Be sure to get the necessary tests (tb, chest xray, urine histoplasmosis, labs) before you start. I don't have an side effects or problems with the cade. Good luck!
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