No more Fleets Phospho-Soda prep?! HELP!!

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angela42
Regular Member


Date Joined Dec 2005
Total Posts : 30
   Posted 3/27/2009 7:47 AM (GMT -7)   
My regular colonscopy is upon me.  For years I suffered the GoLytely, Halflytely, etc.  but it was always a horrible experience. For some reason the taste always makes me gag.  I've tried the straw method, the tape a tea bag over the nose method, etc.  But in the end I usually vomit and can only get at best 50% of the liquid down.
 
So, I've always stopped eating anything solid at least a week before the prep, and given that 1/3rd of my colon is gone only drink until I poo watery yellow w/no pieces.  Then I always feel bad when the nurse asks me the next day if I drank it all!  Cause of course, I didn't, but my gastro. has always done the colonoscopy and has been able to see just fine.
 
Anyhoo, last year I flat out said that I just couldn't drink that crap again....so the nurse said, well lets do the Fleets Phospho Soda prep...which was not wonderful, but sooooo much less liquid to drink....this year, no, cannot be done....apparently there is a lawsuit?
 
So now, I KNOW I need this colonscopy (I also have an anal stricture that my gastro balloon dilates), but I seriously cannot face drinking the stuff.....has anyone's else had this issue?  Is there an easier prep?
 
I'm not tough to clean out and I'm totally on board with going with clear liquids for a few days beforehand.....tips?  Help?  Alternatives?
 
Thank you!
Diagnosed at 13, am now 38. Bowel resection at 17 and two additional surgeries following bowel obstructions.  Weekly shot of Humira.
Gave birth to a beautiful baby boy on 9-21-2005 after being on Remicade.


sr5599
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Date Joined Aug 2007
Total Posts : 1202
   Posted 3/27/2009 8:11 AM (GMT -7)   
I guess I always prefer the phospho soda prep. It doesn't bother me all that much - I mix it with something sweet like apple juice. Drink it as concentrated as I can stand (less that way) and *then* pound the fluids that taste good. Of course sitting on the toilet for hours on end is not fun not matter what!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 - now 2 months into it & it was the right decision
--currently taking budesonide suppositories, 3mg at night.  SLIPPING big time.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 3/27/2009 8:14 AM (GMT -7)   
I agree with you. But I think the osmoprep pills might be something to think about?
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

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angela42
Regular Member


Date Joined Dec 2005
Total Posts : 30
   Posted 3/27/2009 8:26 AM (GMT -7)   
Hi all,

I've done some more searching and apparently the FDA has issued a "black box warning" for osmoprep and visicol for colon cleansings:

http://www.fda.gov/cder/drug/infopage/OSP_solution/default.htm

Meanwhile, in response to the FDA warning, C.B. Fleet Company immediately announced a voluntary recall—directed to retailers and wholesalers—of its OTC products: Fleet(R) Phospho-soda(R) and Fleet(R) Phospho-soda(R) EZ-Prep(R) Bowel Cleansing System.

Has anyone tried Miralax? Is it any better than the Golytely?
Diagnosed at 13, am now 38. Bowel resection at 17 and two additional surgeries following bowel obstructions.  Weekly shot of Humira.
Gave birth to a beautiful baby boy on 9-21-2005 after being on Remicade.


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 3/27/2009 8:28 AM (GMT -7)   
I have insisted, flat out, on Osmo prep or Visicol pill preps. I will not do any preps except the pills. and haven't for at least 3 years. I've had 2 Gastros give me a little bit of grief over it, because it can be a bit harsher, internally, so they say. But they both agreed when I said I could not get any of the liquid preps down with out throwing up. You still have to drink a crazy amount of liquid, but it is a liquid of your choice. I just have to think about drinking the foul liquids and I get sick. The pills are large, but it is by far better. The only thing I would warn you about is that they seem to take a bit longer to work. I have been up "going" most of the night on prep night with the pill preps.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


annyb
Regular Member


Date Joined Feb 2009
Total Posts : 62
   Posted 3/27/2009 10:21 AM (GMT -7)   
Your situation sounds very simular to mine. Almost to a creepy point... Are you sure that you aren't me?

I have had the same issues...cant keep the big bottle down, docs won't do the pills, hate the phosposoda but it is better than nothing. (Pssstttt....I still do the fleets stuff...even when they tell me not to. don't tell my doc.) This last time I had tests, I was supposed to do the miralax deal but I just couldn't bring myself to do it. So it still sits on my counter unopened. Plus, I only have about 1/3 left so it doesn't take much to clean me out.

The black box warnings on all of these preps does kind of scare me but since I do every 3 months its tough to swallow (Literally and figuratively). I really don't know what I will be doing the next round of tests. So let me know if you figure anything out.

PS - I even tryed hypotherapy to trick myself into tolerating the prep. (didn't work)
Crohn's Disease - 29 years
Diagnosed at age 10 in 1979
1st ileosecal resection 1989
2nd colon resection 1993
Chronic "D" and arthritis
Chronic rectal stricture with colonoscopy every 3 months to dialate
Insomnia since 1980 - I love my ambien!
 
SCUBA diver, Master's degree student, college graduate, Pet therapist
 


AKTeach
Regular Member


Date Joined Sep 2005
Total Posts : 83
   Posted 3/27/2009 10:34 AM (GMT -7)   

My GI group uses the Miralax prep for colonoscopy for the last year or so.  It does take about 12 to 14 glasses of liquid with the Miralax for the cleanout, but there is no taste to it so it mixes well with other beverages!

Good luck with which ever prep you use :-)

Anne


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 3/27/2009 10:55 AM (GMT -7)   
http://www.phospho-sodaattorney.com/PracticeAreas/Fleet-Phospho-soda-Lawsuits.asp

:)
CD dx @ 13 (1987)
Prednisone 8mg every other day
Imuran 100mg day -- Stoppped March 09
Celexa 20mg day
Pain Meds -- Morphine Sulfate
Vitamins + B12 Injections Once Per Week
Gallbladder Resection -- 3/19/09 -- Fingers crossed


angela42
Regular Member


Date Joined Dec 2005
Total Posts : 30
   Posted 3/27/2009 11:13 AM (GMT -7)   
annyb....

I know! I worry about the phospho soda (thank you Homeboy for that link) and having a kidney issue...but I literally cannot drink it without gagging and vomiting.

I will ask my gastro about the Miralax, but he's a bit stodgy about preps...
Diagnosed at 13, am now 38. Bowel resection at 17 and two additional surgeries following bowel obstructions.  Weekly shot of Humira.
Gave birth to a beautiful baby boy on 9-21-2005 after being on Remicade.


Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 3/27/2009 1:46 PM (GMT -7)   
I used a different prep, which I did not think was too bad. It was 4 dulcolax pills followed by an entire bottle of miralix dissovled in 64 oz gatorade. It is a lot to drink, but no nasty taste. I did not have any issues with nausea. Also it does not have to be gatorate, could be any liquid that is not red in color.

This is an established prep method--if you google "dulcolax miralax prep" you will see that many centers use some variation of it.

Good luck!


July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying... Enteral Nutrition, Flax Oil, VSL#3, Folic Acid, Vitamin E


kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 3/27/2009 2:24 PM (GMT -7)   
My GI's group uses the gatorade/miralax prep as well. And I have found it to be very easy to do. Since there's no taste and I like Gatorade, its no problem getting it down! And miralax is OTC so you don't need a script, although I have my doc write one anyway so I can add the cost to my medical tax write off.
diagnosed w/Crohn's 11/06. 35f with 2 boys and a wonderful husband. 150 mg Imuran, bentyl, entocort, vicodin as needed, Humira, metoprolol for orthostatic hypotension and heart palpitations. Bowel resection 9/07. Active disease back, darn it 8/08. 11 year old son with IBS-C, on Bentyl.


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 3/27/2009 9:30 PM (GMT -7)   

My daughter took two Ducolax (5 mg each) at 2 PM, then drank 6 glasses of the Trilytely at 6 PM. Another 2 glasses at 6:30 AM the morning of the colonoscopy. Altogether, only HALF the Trilytely prep. She pretty much breezed through it...the Ducolax does a great job of jump-starting the prep so you don't have to drink so much.

Btw, clinical trials from the manufacturer of Nulytely and Halflytely show that 2 Ducolax pills (5 mg each) do the job just as well as 4 pills, and reduce the propensity toward side effects from the pills.

Post Edited (njmom) : 3/27/2009 11:16:45 PM (GMT-6)


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 3/27/2009 9:57 PM (GMT -7)   
My last prep for 4 dulcolax at 4 PM, and half a gallon of Trylyte (I used the orange flavoring) at 6 PM. It worked really well, and was my best prep day ever.

I read that taking a dose of milk of magnesia the night before prep day is a good way to start things out. I'm going to do that next time (colonoscopy in May). Then I'll take the 4 dulcolax and half of the Trylyte on prep day. I've heard a lot of people say that E-Lyte is way better than Gatorade for keeping your electrolytes up. It's quite expensive, but I ordered a couple bottles anyway (about $15 for one bottle of concentrate). Supposedly, if you drink some of that between each glass of the prep drink, you'll feel better. It's worth a shot anyway!

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 3/27/2009 10:40 PM (GMT -7)   
I won't do the GoLytely, Halflytely stuff anymore either. Can't keep it down, and can't get it all down without throwing it back up. It's either a different prep or no scope. I feel that strongly about it.

I think all this stuff is rough and hard on our bodies. Starve yourself, take in a ton of liquids, and then empty your guts until everything is gone. Nothing more harsh then that. I usually feel so weak by the time I have the scope, it's not even funny! I'm just not going to add throwing up to that list.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Lexapro.


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 3/27/2009 11:02 PM (GMT -7)   
I'm with you fellas.
I can not even *think* about the GoLytely or HalfLytely w/out having a queasy stomach roll and gag reflex. Heck, my saliva glands are working a bit overtime right now, just thinking about it. Gah!
My GI always prescribes that gallon of nasty-tasting stuff and I just smile and never fill the Rx. I have used the Fleet Phosphosoda bottles, they are like, 2 or 4 ounces? That stuff tastes seriously nasty, but if I am able to slam a couple quick gulps down immediately followed by water to flush that taste out, I can get that stuff down and keep it down. I have no problem drinking a gallon of water, I just can't drink a gallon of anything that tastes nasty.
My husband has to have a c'oscopy next month and I'll probably ask him to try the Gatorade w/ Miralax and Dulcolax pills so I can try a sip and see if it truly doesn't have a taste other than the Gatorade.
Anyhow, my usual MO is to have only soft foods 2 days before the procedure and then only clear liquids 1 day before and plenty of water just before I start the Fleet phosphosoda that evening. And I keep a good book next to the toilet along with plenty of TP and moist baby wipes.

It looks like people using TWO bottles of the Fleet preps were putting themselves into kidney danger.
Heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 3/27/2009 11:07 PM (GMT -7)   
And also apply some hemmie ointment, diaper ointment, or vasoline to the ol' butt throughout the prep ordeal. It will help protect it from getting sore.

Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 3/28/2009 7:00 AM (GMT -7)   
My GI uses the Miralax prep also. I haven't tried the pill prep, but the Miralax prep was so much easier than any other liquid prep he has had me try. The best of luck to you! Blessings, Julie:-)
Diagnosed with Crohn's March 2006, Fibromyalgia Nov. 2008, Anxiety Disorder since childhood
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax,  Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg three times a day, 1mg at bedtime (for anxiety attacks)
 
 
 
 
 


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 3/28/2009 5:41 PM (GMT -7)   
spookyhurst said...
And also apply some hemmie ointment, diaper ointment, or vasoline to the ol' butt throughout the prep ordeal. It will help protect it from getting sore.
OMG.  I want to hug you and give you a kiss!  I hate the raw-butt feeling after that prep and I don't know why I never thought about trying that before!  0_o 
Thanks.  I will be forever greatful to you!
Heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry......I'd much rather laugh.
2001 Dx'd with UC.  No remission.  No improvement with Remicade.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returned after resuming 6MP.  Changed maintenance med to Methotrexate (MTX) and had great results with IM injections.  Nausea and symptoms returning with oral MTX.  Switched back to IM injections and am slowly improving.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 3/28/2009 9:37 PM (GMT -7)   
Aw, shucks blush.

Jenn4dex
Regular Member


Date Joined Mar 2006
Total Posts : 494
   Posted 4/8/2009 8:33 AM (GMT -7)   
Miralax all the way baby! So much easier and I even got complemented on my cleaning!
Jennifer
Diagnosed Crohns 1/06
CD of Terminal Ileum
Taking Pentasa. Adverse reactions to Remicade. Also take Forteo Injections, Actonel, Calcium and Vitamin D, B12 injections.


orngie
Regular Member


Date Joined Feb 2009
Total Posts : 161
   Posted 4/8/2009 9:17 AM (GMT -7)   
I was able to drink all of the Golytely by adding Crystal Light powder to it. It takes more than you would normally use for an 8oz glass of water, but it really disguises the gross flavor.

Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 4/8/2009 3:11 PM (GMT -7)   
I just CAN'T drink the Golytely. If you're in Canada, I would try Pico-Salax. I believe it's also available in the UK, not sure where else though. Much better tasting, supposed to be easier on the system, and a small volume to drink. I reacted badly to it my first time I took it, but I was also extremely ill at the time. Second time I took it, it went quite smoothly though. I've heard that going on a low residue diet for a few days before the prep does help it go easier though, which makes sense.

kelina
Regular Member


Date Joined Aug 2005
Total Posts : 322
   Posted 4/9/2009 8:17 AM (GMT -7)   
there is a new prep its called moviprep...i just did it. it doesnt taste "good" but i didnt get my gag reflex going which was nice, i mixed it with lemon gateaide. it wasnt horrible at all. my gi says they are doing away with the pills cause they are causing horrible side effects....
29 yr old, female lower left moderate to severe UC since 2002
canasa when needed, can't do rowasa!
Humira since july'08
Lialda 3 pills a day


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/9/2009 8:39 AM (GMT -7)   
I second the pico salax, it was very easy.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 17.5mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.
 
Go Saskatchewan Roughriders!


angela42
Regular Member


Date Joined Dec 2005
Total Posts : 30
   Posted 4/9/2009 12:51 PM (GMT -7)   
I really appreciate everyone's advice and it's sort of a relief to know that I'm not the only one who has a gag reflux just thinking about the "lytely" type preps.

I'm going to do the Miralax prep. (I'm in the US)
Diagnosed at 13, am now 38. Bowel resection at 17 and two additional surgeries following bowel obstructions.  Weekly shot of Humira.
Gave birth to a beautiful baby boy on 9-21-2005 after being on Remicade.

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