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Mrs M
New Member

Date Joined Mar 2009
Total Posts : 14
   Posted 3/28/2009 9:31 AM (GMT -6)   
Hi I have just been to see my GI and he informed me that the blood test for Chron's came back negative...however chances are that I have chron's disease he is 70% sure....and the fact that my levels of inflamation are down from 60 to 20 shows that the meds seem to be working now please tell me if I am being too hopeful but should there not be another test that they can do to confirm Chron's? I am at the end of my tether I have lost over 3 kg in 2 weeks he didn't seem to bothered by that and said that I might put the weight back on. while I never had diarriah previous to going into hospital I have nevere had constipation but now it seems that I have constipation I am so confused and am going back to the UK for a second opinion on Monday.....and will hopefully see a specialist next week sometime....
PLEASE can anybody help me here, I so want to be rediagnosied with a chronic illness....
Hope everyone is well
Take care
Mrs M

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/28/2009 9:50 AM (GMT -6)   
I would ask to get a pill cam done. This seems to be the best test to diagnose Crohns in the small intestine. They are able to see where the scope can't reach. When you had your colonscopy did they take biopsies? That will help to give you a diagnosis too. Good luck!
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 3/28/2009 10:00 AM (GMT -6)   
I hate to tell you, some of us are never diagnosed for sure, or we are diagnosed and then undiagnosed. I try to focus more on symptoms and assume I will never know what the diagnosis is. however, the pill cam is a really good idea. do all the tests you can, see what happens, and try to not panic. things will make sense when all the pieces are put together. yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

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