Crohns arthritis

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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/28/2009 9:09 AM (GMT -7)   
I thought I would run this question by you all.  I am waking up every morning with my hands and feet really swollen and the skin feeling tender and tight.  I know that I have osteoarthritis and Fibro, but this seems a bit different.  My hands when I wake up in the morning almost feel like they are asleep, like I laid on them, but I don't think I am.  I have been up for a few hours now and they still feel tight.
 
Anybody have any ideas whats going on?
 
Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 3/28/2009 10:29 AM (GMT -7)   
Morning swelling and tenderness is a key factor in inflammatory arthritis (RA & UC/Crohns extraintestinal, etc). Do you see a rheumatologist?
"The earth laughs in flowers"


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 3/28/2009 10:57 AM (GMT -7)   
Nanners have you ever been checked for corpul tunnel ? Your hands sound like they are doing what my wifes did before she had the surgery. I have arthritis in my hands and wake up with them stiff but not swollen or any skin tightness. I get them under the hot water in the shower and work out the pain. Thats how I start each day. Hope you feel better soon..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 3/28/2009 12:05 PM (GMT -7)   
It could be something like tenosynovitis? I had that but it took me a long time to get diagnosed as my doctors were just too willing to stick with the "oh it just your arthritis it'll go" line. The symptoms are apparently similar to carpul tunnel syndrome, its where you get pocket of fluids around your tendons so I had very chubby hands for a while, especialy first thing in the morning, I found bathing them and moving my hands about in the warm water would help disperse some of the fluid and ease them for a bit. Perhaps request an orthopaedic ultrasound so they can see what going on in there?

 
 


Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 3/29/2009 7:24 AM (GMT -7)   
I had this exact same problem when I was in the middle of a terrible flare up in January. My ankles were incredibly swollen, my elbows and knees hurt too. I was walking like I was 80 because the pain was so bad. I was afraid that it might be RA. I told my doctor and he said that its just the Crohn's disease. Apparently this is one of the ways it manifests itself systemically. He put me on Relafen, which is an arthritis med, for a month, and It worked wonders!
-Heather, 23 yrs. old
____________

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Wellbutrin SR 150mg, Lexapro 20mg, Bentyl 10mg, Levsin, Trazadone 50mg, Prednisone taper


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/29/2009 7:31 AM (GMT -7)   
Hey guys thanks for letting me know I am not alone. Weird thing is its not too bad today, but has been horrible for days. Easier2run I looked up the Relafan and its a NSAID so I won't be taking that one. NSAIDS and I are not friends:)
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 3/29/2009 5:22 PM (GMT -7)   
Nanners,
A few years back when I was flaring I also had strange swelling - each morning I woke up thinking 'ok, what will swell today, knee, foot, hand, leg or all of them. I was always told that if my CD was under control then I would have the swellings under control. Now it's the AS that flares when CD flares, so I cant win :).
Hope you find relief soon.
Jo

LittleSisSmurf
Regular Member


Date Joined Apr 2006
Total Posts : 164
   Posted 3/29/2009 11:04 PM (GMT -7)   
Hi there, Ive been off of pred. for 1 month (Have had 2 remicade infusions) and my hands and knees are getting bad too? I went to my Rhuemy yrs. ago and all he could say was "take pred."  I want my hands to stop hurting but its the first time Ive been off on Pred. in 2 yrs.  I dont miss the moon face at all. My family doc. says I should take one tab of pred. daily.  I guess its the answer for evrything with us??? 

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 3/30/2009 4:22 AM (GMT -7)   
When I'm getting ready to flare, my ankles swell on me first...it's a like a warning sign for me. They usually swell to the point that I cannot walk or drive. It usually takes 2 weeks for the swelling to go down enough to hobble around without the aid of crutches. Sometimes I get lucky and it only takes a week.

My GI had NO idea why my ankles would be swelling until I mentioned Crohn's Arthritis and asked that he refer me to a Rheumy. The Rheumy immediately picked up on the fact that it was Crohn's Arthritis and wanted to immediately put me on Remicade or Humira. I said "No thanks - not until my INTESTINES really need it or I go a year without being able to walk." I can handle swollen feet for 2 weeks...

She said it wasn't my joints swelling...it was the tendons connected to the joints. So an X-ray of my feet wouldn't do any good as it wouldn't show anything. An MRI would show swelling of the tendons. I thought that was interesting as I just assumed it was my joints swelling.

I, too, feel like an 80-90 year old when I get this. The swelling ankles are bad enough but usually an all-over body aches comes along with it.


Diagnosed in October, 2004 at age 32.
37/F/SC
Current Rx's: Colazal (generic), Omeprazole, Ferrous Sulfate, Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date

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