got my first Remicade infusion!

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Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 3/29/2009 2:51 AM (GMT -7)   
So I received my first Remicade infusion on Friday morning... I was pretty nervous, but everything ended up working out fine; and by fine I mean no infusion reactions :) At my doctor's office they don't give any "prep meds", they wait until a reaction occurs and then treat it accordingly.
The nurse was great... explained everything to me while getting things ready, was in the room the whole time for almost the first hour and was there with me practically all rest of the time. My appt was at 9:00, infusion started at 9:15 and I was out of there just after 11:30.
The only thing I wonder about is that after I left I was feeling a bit nauseated... I'm normally a constipated kind of girl, but halfway home I HAD TO GO! That happened basically all day; and all weekend I've been really gassy... a lot more so than usual. Has anyone noticed this?
Just wanted to share my experience... thanks to everyone who has answered my questions/tried to alleviate my fears about it the last couple of months! I'll be back for my second one in a couple of weeks.
32 year old female... diagnosed with Crohn's/Colitis at age 16, then with Proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, tapering dose of 40mg Prednisone, Bentil and Percoset as needed... considering Remicade


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 3/29/2009 5:42 AM (GMT -7)   
Ive been on Remicade for 8 months now and I seem to have no reaction at all. It has all but eliminated my arthritis which is like a gift from God and has tamed down my flare considerably. Everyone is so different with their reactions to meds so I guess its possible that you had a mild reaction but I wouldnt worry about it....really. It could be just because you were so nervous. The hospital always calls the next day or so to follow-up and make sure Im not having a reaction and if I were you I'd mention it. Until then, think how much better your going to feel when it starts working. Ive had 6 infusions so far and Im always alittle nervous still when I go in but I'm a coward when it comes to Drs and hospitals anyway. Best wishes, Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, Flagyl, B-12 injections and iron. Feeling much better!
God Bless. Tony


farmacist
New Member


Date Joined Mar 2009
Total Posts : 18
   Posted 3/29/2009 6:36 AM (GMT -7)   
I also had my first Remicade on Friday morning at 9AM, Kriss and I are on the same schedule and my 2nd will be in 12 days. I had no reactions during the infusion, I joked that I thought they were giving me plain water in the bag. Friday evening the back of my hands and knuckles were itchy and my scalp was a bit itchy but that's been it. No other changes YET. Better days ARE coming.

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 3/29/2009 7:21 AM (GMT -7)   
I felt flu-ish for about two days after each infusion.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 3/29/2009 10:35 AM (GMT -7)   
So farmacist, we're on the same schedule.. I get my next one on the 9th, so we'll have to compare notes!
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade

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