Kidney Stones and Crohn's

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Pauliwog45
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 3/29/2009 8:02 PM (GMT -7)   
Hello........diagnosed with Crohn's 4 years ago, 45 year old male, 1/3 colon removed along with the sigmoid. Here's the deal, everytime I have a major flare I get a kidney stone, seems like just for the hell of it. I am on stone #10. Does anyone else out there suffer from the double wammy of a flare and a kidney stone. My GI doc doesn't seem to be concerned....just kind of grunts when I mention it.

Thanks.
Paul

Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 3/29/2009 9:46 PM (GMT -7)   
I have had two stones this month. I stoped counting at about 20 .No flares just stones. Your Urologist can explain it better but crohns peeps have more stones than most and it has to do with large particals being passed through the intestin walls , loss of fluids that need to go through the kidneys being passed with diarrhea, a build up of uric acid or calcium, and not drinking enough water. It can also be the shape of your kidneys. Some people are just prone to stones. Lucky us. I also get gout because most of my stones are caused by high uric acid , even though I take alapurinol,(spl) to reduce it. Hope you have been spared that little wonder. By the way, you may have what I have in a GI. He does not care about stones because they are not his specialty. I found that out the hard way too. See a urologist. Hope this helps.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


mtgman
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Date Joined Mar 2005
Total Posts : 1289
   Posted 3/29/2009 10:45 PM (GMT -7)   
i've had a couple. 2 docs have told me to drink more 1) beer and 2) lemonade...

aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 3/30/2009 3:41 AM (GMT -7)   
back in the days I got them too all the time. I dropped the pops and never got one again.
SCD since 01, remission since 01, occasional Arby's breaks :)


Pauliwog45
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 3/30/2009 3:25 PM (GMT -7)   
Thanks. I appreciate your comments. With stone #10 making its way out, I thought I was a bit of an anomaly. I'm seeing my GI doc tomorrow and will get a referral to a urologist.

Paul

Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 3/30/2009 3:54 PM (GMT -7)   
Paul, welcome to Healing Well! I'm sorry that you are battling stones. Thirty plus years ago I started a three year bout of kidney stones. At that time the doctors could not understand why a 20 something female was getting all those stones. In those days the correlation between kidney stones and Crohn's was not as well known - besides I had been diagnosed with a "spastic colon."

Do you know what type of stones you have? Mine were calcium oxalate. I was advised to eat a low calcium diet which seemed to help but probably contributed to my osteoporosis now since I followed that diet for 30 years. Now people with calcium oxalate stones are often told to eat a low oxalate diet.

I think you need to see a urologist if you haven't already. They can make sure that there is no damage being done and test your kidney function.

You have my sympathy - passing stones was much, much more painful than giving birth naturally [that's right NO meds of any kind.]
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Keeper
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Date Joined Jun 2008
Total Posts : 1058
   Posted 3/30/2009 4:35 PM (GMT -7)   
Kidney stones seem to be a result of low vitamin K levels. When you have a flare, you are not absorbing nutrients properly and it is quite common to become severely deficient in a wide range of vitamins and minerals. I once posted a reference to the vitamin K/ kidney stone connection in this forum, so you can do a search and find a journal reference, if you are interested.

Homeboy
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Date Joined Dec 2005
Total Posts : 637
   Posted 3/31/2009 4:46 PM (GMT -7)   
mtgman said...
i've had a couple. 2 docs have told me to drink more 1) beer and 2) lemonade...


A doc told you to drink more beer, that is kinda cool.

yeah
CD dx @ 13 (1987)
Prednisone 8mg every other day
Imuran 100mg day -- Stoppped March 09
Celexa 20mg day
Pain Meds -- Morphine Sulfate
Vitamins + B12 Injections Once Per Week
Gallbladder Resection -- 3/19/09 -- Fingers crossed


mtgman
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Date Joined Mar 2005
Total Posts : 1289
   Posted 3/31/2009 5:06 PM (GMT -7)   
HomeBoy said...
mtgman said...
i've had a couple. 2 docs have told me to drink more 1) beer and 2) lemonade...


A doc told you to drink more beer, that is kinda cool.

yeah

yeah, not bad right...beer or lemonade...i guess they break down the stones and keep them from forming.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


Pauliwog45
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 3/31/2009 6:47 PM (GMT -7)   
Hello Everyone,

So I go to my GI doc today to discuss the multiple bowel obstructions I've had (6 in as many months), and he of course did not even acknowledge the kidney stones when I mentioned it........not even a grunt this time. So I'll get a referral from my GP. Stone #10 entered this world last night.

As for the obstructions, is this something we are blessed with as well? He did not discuss what might be the cause, but booked me for a CT and scope.

And......thanks to everyone for your comments. This is a good place to be sick.

Paul

mtgman
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Date Joined Mar 2005
Total Posts : 1289
   Posted 3/31/2009 7:19 PM (GMT -7)   
Pauliwog were your obstructions full or partial...i am still trying to figure out if that has been my issue...
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


Pauliwog45
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 3/31/2009 7:34 PM (GMT -7)   
Hi,
 
In the end this latest one was partial.  I was in pain for about 6 hours before I took myself to ER.  Pain was unbelievable...unable to stand up, but it resolved itself after four hours in ER.  The ER doc misread the X-ray saying that there was no obstruction.  My GI doc says there was and confirmed it with the report from the Radiologist.  The whole thing was a nasty experience.  This was the 6th such episode in around 6 months, this one being the worst.  Hard to describe how it feels........like 2 days after you did your first 100 situps, or like you been punched in the gut, extremely tender and gut distended like there's no tomorrow. Sharp
pain on movement.  As bad if not worse than the kidney stone pain.  No fun.
 
Does that match anything you are experiencing?
 
Paul
 

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 3/31/2009 8:51 PM (GMT -7)   
my pain has been excruciating, but it's always when i'm going to the bathroom. once i go the pain is gone but i feel like i went a couple of rounds with mr. tyson.
the pain is so intense while i'm on the can that i've been puking about 1/2 the time. it sucks. i do know what you mean when you say the pain is like a stone...the 1st stone i though it was my appendix or something...scared the crap out of me...and to boot i ran out of gas on the way to the er!! pumping gas doubled over in pain...the 2nd one i knew what it was and passed it about 15 minutes before i was going to head to the er.

the difference is i dealt with the stones twice in the past year...the new pains are daily...i think i'd much rather have the stones. how messed up is that?!?!?!?!
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


Pauliwog45
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 3/31/2009 9:11 PM (GMT -7)   
yeah..........get it checked out soon.....this desease is so messed up and has so many co-ailments..........when I flare, I get incredible pain when on the can.........there is sometimes no bowel movement.......just the waves of pain as my gut 'simulates' a bowel movement......sometimes my whole body just shakes and convulses.......how ****ed up is that?

Paul

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 3/31/2009 10:07 PM (GMT -7)   
i know exactly where you're at with that one!
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 4/2/2009 5:53 PM (GMT -7)   
Kidney stones= tooth ache pain in back
Intestinal blockage=pulsating knife wound
I'll take stones any day...
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)


Pauliwog45
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 4/2/2009 8:32 PM (GMT -7)   
Neither is any fun. My largest was 10mm and took 10 days to pass. Your description of a blockage is pretty accurate. Both of them at the same time and ...... well what can I say.....no way to describe the pain.

Paul
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