B12 injections

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littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 3/30/2009 10:32 AM (GMT -7)   
Hi


I was diagnosed with crohns 4 years ago. I started a course of infliximab infusions last October and at the moment feel pretty well, in fact the bset I have felt in a couple of years.



Last week I was asked by my doctor to have a series of blood test (general health check stuff). The receptionist at the docs says i have been prescribed weekly vitamin B12 injections.



Has anyone else had these, how did you feel afterwards. And has anyone had a B12 deficiency whilst on infliximab or remicade.



Any info would be much appreciated.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/30/2009 10:51 AM (GMT -7)   
I take B12 shots every other week. For me they help with my energy levels and I tend to feel better energy wise for awhile after I get my shot. Low B12 is pretty common with alot of Crohnies as we tend to have absorption problems.

Good luck
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 3/30/2009 11:05 AM (GMT -7)   
B12 absorption is a typical problem for CDers. CD tends to attack the area of the bowel where B12 is absorbed and either limit the amount absorbed or surgery removes it entirely. The body stores some, so that it can take months to years before you need to start having supplements, but because you can not absorb it in the bowel, taking it in pill form is not effective. There is a nasal spray, but from what I have been told, it is not very pleasant and patients tend to be non-compliant. There is also a sub lingual form, but for severe deficiencies I don't think you can absorb enough that way. You will find that a lot of us have to take B12 shots. Some take them monthly, others bi-weekly. I'm a bi-weekly person. Also, some people notice a difference, others don't. I only notice, if I am late getting my shot. B12 has to do with energy, but also lack of B12 can cause nerve damage. It is not something you want to mess with. Once the damage is done, it is not reversible. When I am due for my shot, I get little nerve tingling on my scalp and I know I have waited too long between shots. Like insulin, it is something you can give yourself, or someone can learn to give to you. It makes it a little easier than having to drive to the doctors office every 2 weeks just for a 2 second shot. You do have to get a prescription for the B12 and the syringes, but once you learn what to do it is much easier.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 3/30/2009 12:17 PM (GMT -7)   
Hmm thanks guys.
 
Its possible then that I might have more enegy after the injection. I find it quite funny that I need the B12 supplement now when I feel at my best for a long time. I mean im even managing to work out at the gym 3 times a week!. Not that I enjoy it but it is sure nice to be well enough to do so. hey maybe I will be running marathons after my injections rather than running to the loo. ha ha

Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 3/30/2009 2:57 PM (GMT -7)   
After my surgery I was no longer able to absorb B12 the "normal" way, so I have been receiving the injections every 4 weeks... they make a world of difference! I definitely notice when I'm close to, or over due!
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade

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