Anyone with problems with there water working over time?

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Regular Member

Date Joined Mar 2009
Total Posts : 318
   Posted 3/31/2009 3:18 PM (GMT -6)   
smhair  I have Crohns disease and been to loads of doctors for my bladder trouble i cant hear water running get a draft or anything and i am in the bathroom sometimes i dont make it at all its so embrassing i am 35 years old its bad enough that i have to run to the bathroom with my crohns disease but this new bladder thing is impossiable i was on pills for it and they worked great but there to hard on your kidneys and he said it wasnt worth it i say yes its keeping me close to a bathroom i tell ya i am scared to go anywhere in case i dont make it to a bathroom.What am i suppose to do any suggestions? Does anyone have this similar problem eyes i dont know what to do i am scared and embrassed to tears i had an accident in my sisters car the other day she didnt care but i did. confused Please help me? Your bowel buddy Jenn
i love this site a friend found it for me.Another one would ccf crohnes and colitis foudataion

Forum Moderator

Date Joined Nov 2003
Total Posts : 7056
   Posted 3/31/2009 5:21 PM (GMT -6)   
Dang - I just wrote you a long reply and it wouldn't post. In essence I asked if you have had a voiding cystogram or other bladder imaging study? Then I told you about how my bladder suspension at 38 totally improved the quality of my life - no more leaks or all out wetting issues.

Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 3/31/2009 5:26 PM (GMT -6)   
this sometimes happen to me maybe two times a month. I am also peeing all the time but I can keep it in most of the times until I get to the toilet.
But i have not gone to the doctor about it, it is tolerable at the moment.
Is this part of crohn 's ?
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort

Regular Member

Date Joined Dec 2008
Total Posts : 60
   Posted 3/31/2009 7:58 PM (GMT -6)   
This happens to me as well. I can't remember a time where I didn't get up during the night at least 5 - 8 times to urinate. This does not make for a restfull night sleep. Sometimes, I have to go every 10 minutes for about 3 hours. Last summer I was in the grocery store looking at cereal and all of a sudden I noticed I was soaked! I have been to the doctor and all they every do is check my glucose! If anyone has any suggestions, I would love to hear them.
Crohns almost 17 years. No surgeries. Currently taking Imuran and Entocort. Also take multivitamin/mineral supplement, omega -3 oil, calcium and vitamin D. Eat lots of yogurt. Limit wheat and gluten as much as I can.

Veteran Member

Date Joined May 2005
Total Posts : 4219
   Posted 3/31/2009 9:21 PM (GMT -6)   
I have never peed myself but I do have pee urgency. As soon as I realize I have to go I feel like I have to go NOW. If I hold it too long I get D as well. Also, I pee very frequently. Anytime I have to travel I purposely dehydrate myself. It is not healthy but it works.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

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