Social Security

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mojowo4
Regular Member


Date Joined Jul 2007
Total Posts : 137
   Posted 3/31/2009 1:31 PM (GMT -7)   
I just wondered how hard/easy it was to get social security with this disease.  I am still able to work full time right now but sometimes feel so much pressure to cope and "suck it up" as my boss says that I wonder how much longer I will be able to.  My mom and best friend say I should start the process of social security but I don't even know where to start.  I watched my mom fight for it with a back injury and that took almost 5 years with a lawyer.  Since this is not an injury but an illness I don't know how to get started.  Any advice?

Dx CD 2003 but probably had it 10 years prior

Dx Primary Sclerossing Cholangitis 2006

GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05

Currently on 100mg 6mp-50 mg,  and Remicade every 8 weeks, Ambien, predsnisone, humira 1x wk, flagyl, cypro, diflucan, probiotic


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 3/31/2009 2:23 PM (GMT -7)   
You mean SS disability, which is just what it says . . . you must be medically certified as truly disabled, which means unable to work and support yourself at any reasonable level. I have seen a few people here who qualified for SS disability, byt they generally had experienced multiple surgeries and long term signficiant complications that left them at essentially a non-functoinal level. Crohns is usually a marginal call on disability . . . the program is primariliy designed for people who are paraplegic, brain damaged, hampered to a great and c ontiunuing degree by a condition like lupus or kidney failure and/or terminally ill. There are lawyers who specialize in this, so it might be worth your time to consult with one. As I understand it, the key is medical evidence and a doctor willing to certify you in medical terms as unable to be self-supporting.

Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 3/31/2009 2:26 PM (GMT -7)   
You would need to be out on disability first... I feel like I was in the same boat that you are until I was hospitalized in January. I have been on short-term disability ever since. I was going to apply for SSI but you have to be planning on being disabled for at least 12 months. I'm going to try to stay out of work, but I need to discuss it with my doctor first. A friend of mine told me to start the SSI process now because you always get denied the first time. I have yet to apply....
You may want to talk to your doctor about taking you out on short-term disability for now. You legally have 26 weeks of it without repercussions from your employer. I had actually spoken with my doctor about it on a Thursday, made an appt to see her and bring the paperwork with me for the following Tuesday, when that Saturday my flare got so bad that I was brought by ambulance to the ER on Saturday...
Good luck and I hope this helps..
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 3/31/2009 4:14 PM (GMT -7)   
Head over to

www.ssa.gov

Search for "list of impairments".

Or copy and paste

http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm

This list helps you get approved faster, if your CD is severe enough at the moment.

You can still get approved, without being on the list.

Lots of reading, but maybe you will enjoy it, I do.

smilewinkgrin
CD dx @ 13 (1987)
Prednisone 8mg every other day
Imuran 100mg day -- Stoppped March 09
Celexa 20mg day
Pain Meds -- Morphine Sulfate
Vitamins + B12 Injections Once Per Week
Gallbladder Resection -- 3/19/09 -- Fingers crossed


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 3/31/2009 4:16 PM (GMT -7)   
Paragraph from the list.

E. How do we evaluate inflammatory bowel disease (IBD)?

1. Inflammatory bowel disease (5.06) includes, but is not limited to, Crohn’s disease and ulcerative colitis. These disorders, while distinct entities, share many clinical, laboratory, and imaging findings, as well as similar treatment regimens. Remissions and exacerbations of variable duration are the hallmark of IBD. Crohn’s disease may involve the entire alimentary tract from the mouth to the anus in a segmental, asymmetric fashion. Obstruction, stenosis, fistulization, perineal involvement, and extraintestinal manifestations are common. Crohn’s disease is rarely curable and recurrence may be a lifelong problem, even after surgical resection. In contrast, ulcerative colitis only affects the colon. The inflammatory process may be limited to the rectum, extend proximally to include any contiguous segment, or involve the entire colon. Ulcerative colitis may be cured by total colectomy.
CD dx @ 13 (1987)
Prednisone 8mg every other day
Imuran 100mg day -- Stoppped March 09
Celexa 20mg day
Pain Meds -- Morphine Sulfate
Vitamins + B12 Injections Once Per Week
Gallbladder Resection -- 3/19/09 -- Fingers crossed


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/31/2009 7:24 PM (GMT -7)   
You have to be out of work for at least 6 months before you apply so there is probably no use applying while you are still working. Wouldn't it be nice if you could line it up while you still have an income? I guess the way they look at it is if you are dragging yourself into work, you can work, and you are not disabled.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 4/1/2009 6:17 AM (GMT -7)   
I am one of those on SS disability but I also have the dibilitating arthritis due to Crohn's and I'm sure thats why they gave me the greenlight on the program. I hadnt worked in a year because I could barely walk. I couldnt even get my own socks and shoes on. It was humiliating and depressing but thank God they approved me. I wish it was easier but so many people try to abuse the system that it makes it very difficult for those in real need to get it. I hope, if you get to that point, that you do have family to help you until you get approved. It's a slow process. I'm doing much better since I started Remicade and have a good quality of life again. I was concerned that I might lose my SS because I was doing so much better but my doc explained that the Remicade is why and if I lose my medicare which is through SS then I would lose my Remicaid treatments so they wont cancel me. This time red tape worked in my favor. LOL. Best wishes, Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, Flagyl, B-12 injections and iron. Feeling much better!
God Bless. Tony


mojowo4
Regular Member


Date Joined Jul 2007
Total Posts : 137
   Posted 4/1/2009 12:15 PM (GMT -7)   
Thanks for your replies. I didn't realize you had to be off work for so long before qualifying. Kind of put you in a pickle if you are trying to avoid a gap. I do not hope that I will ever get so bad as to need it but am scared that if I do it will take so long to get on it that it will be a bad spiral down. I was more thinking of the medical coverage than anything. Without medical....oohh, just don't want to think that thought.

Dx CD 2003 but probably had it 10 years prior

Dx Primary Sclerossing Cholangitis 2006

GB out '95, Appendix out '96, Kidney stent '02/stone removal '02, Resection '04, fistulectomy '06 2x, tubal '05

Currently on 100mg 6mp-50 mg,  and Remicade every 8 weeks, Ambien, predsnisone, humira 1x wk, flagyl, cypro, diflucan, probiotic


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 4/1/2009 12:23 PM (GMT -7)   
While you're on disability, short-term anyway, you are still employed, so you will still have health coverage as long as you had it when you were actively working.
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/1/2009 1:43 PM (GMT -7)   
Another reason to sign up for long term disability with your employer. That covers you when you are out over your maximum allowed short term disability.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

lostindiagnosis
New Member


Date Joined Mar 2009
Total Posts : 10
   Posted 4/1/2009 1:56 PM (GMT -7)   
From my experience, I do know that my coverage for disability insurance and life insurance would have been reviewed a bit closer and possibly denied had I not already been working at my job before being diagnosed. Since then, I have been rejected for any new life insurance and just barely got disability coverage for things such as my mortgage.
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