I am recently diagnosed with Crohn's (although they are hesitant to give a definitive diagnosis - even after colonoscopy, upper endoscopy, and capsule endoscopy all pointing to it, because of my initial improvment on only Nexium). Anyway, I am now on Pentasa only, and my GI problems have really subsided. Yay. However, since January, I have had swelling, and a kind of roaming pain. The swelling was primarily in my left foot/ankle and really bad. The pain would move every couple days/weeks - back, knee, then really bad shoulder, neck, etc. The swelling in my left foot is STILL there. I have seen a GP 3 times for it - took xrays, did an ultrasound to make sure it wasn't a clot, and finally referred me to an ortho. Swelling went down a bit when I saw the ortho who took more xrays, examined, couldn't find anything majorly wrong, told me to come back in 6 weeks if it's still swollen. Went to my GI, told him about the pain and the swollen ankle and felt like it was really blown off. He said if it was definitely not related to the medication, and if it was Crohn's, it would be in both feet/ankles. So, it's been months, zero answers, and I'm still swollen. As of last week, my right ankle began to swell a little, and the weirdest thing of all, a couple days ago, my NOSE became swollen (and hurts!). Am I crazy to think all of this is related to the Crohn's? I haven't been working out hard enough to injure myself, I didn't get punched in the nose recently, and all of this began around the time of my tentative diagnosis (3 months after symptoms began). I'm just frustrated because the doctors keep blowing it off and I'm not sure what I need to do. It's not normal to be swollen - and I'm sick of the pain. I haven't had one day of feeling 'normal' since October (I'm sure you all know the feeling, some for many years). I'm just tired of them not taking it seriously. Is this something that anyone has experienced??? The nose thing is really weirding me out, and the rest is just annoying. What advice do you all have, and do you think this IS Crohn's-related? Thanks!