I Can't Handle This Anymore!

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broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 4/4/2009 6:04 PM (GMT -7)   
Has anyone here had there bottom teeth removed since their DX with Crohns?  How about, anyone had a fractured jaw or nerve damage after removal of teeth?
 
This is day 8 since the removal of my lower teeth.  Swelling is down, bruising is down and lymph
glands in neck are still slightly in overdrive but not bad.  Some of my 12 stitches have desolved and all looks fine.  No fever except for my usual low grade Crohns temp.
 
The pain level was suppose to be at the worst on day 3 (I went in for a recheck on that day and dentist said everything was progressing fine).  I have tried rotating Ultracet with the Endocet and even threw in the extreme no-no of Ibroprophen.  NOTHING is relieving this more than 2.5 to 3hrs at a time.  Since the pain has not changed I am beginning to wonder if A.This is going to be a slow heal for me. B. He has hairline fractured my jaw. C. I have permanent nerve damage.  I do not have any numbness anywhere either or D. I do not have adequate blood flow in the jaw bone and may lose the jaw anyway after all of this!
 
I swear this has been worse on me than the resection if that tells you how it feels!  Any advice welcome.  I go for another checkup on Monday and I want an xray!  Meanwhile I am happy to say my stomach loves the mush I'm eating, I am constipated from the painkillers (added a stool softner two days ago) and I've lost about 6 pounds.  As if I could afford the weight lost.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


ivy6
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Date Joined Sep 2005
Total Posts : 10404
   Posted 4/4/2009 6:16 PM (GMT -7)   
Oh, broomhilda *big hug*. I'm so sorry you've been put through this ordeal.

If the pain is so bad that you can't stand it, might it be a good idea to go to the hospital? They might be able to set you up with some IV meds to keep you more comfortable, and maybe do some tests to see what's causing the pain. It does sound as if something's not right.

I wish I could say something more helpful, Broom, but I haven't experienced anything like this before so can't offer more than support and sympathy.

Sending you healing vibes,

Ivy.
Co-Moderator Crohn's Forum.


donnaeil
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Date Joined Jun 2006
Total Posts : 1156
   Posted 4/4/2009 6:24 PM (GMT -7)   
You could have a dry socket. That is very painful. Call your surgeon. Feel better, Donnaeil

FallColors
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Date Joined May 2007
Total Posts : 1220
   Posted 4/4/2009 6:28 PM (GMT -7)   
Big HUGS!!!!! Facial pain is so awful! Monday sounds like a long time away. Is it one spot that hurts or over all?? If you can't get a hold of your doctor, I wouldn't hesitate to go to the ER. I hope you get pain free fast and get to the bottom of this!!
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 4/4/2009 7:00 PM (GMT -7)   
I would be more inclined to believe it was a dry socket had I not had stitches whereby the "clot" could have been removed during eating/drinking/rinsing or gum brushing. Also, it seems I would have noticed a change in the level of pain itself with a dry socket as it presented itself. But again, maybe it could be, I've never had one. The pain is from one jaw joint to the other and not in one specific place either.

As for our ER...for some reason the Bozo's either do not (to cut cost) or are not licensed to use contrast when they run a scan in the ER itself. Everytime I've been down there with a kidney or gall bladder stone they can't seem to "see" anything, however, follow up with my Urologist or Primary's office ALWAYS shows it on their scans. Yeah, it would be nice to be loaded with IV dilaudid about now (if they would give it to me for this) and just for the sake of reprieve and SLEEP but they would just load me up and release me with more percocet/endocet and gee.....IT'S NOT WORKING! I guess if I really had to vent about anything else it would be to say thank you to all the drug addicts out there that costs us the real pain relievers when we need it the most!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 4/4/2009 7:01 PM (GMT -7)   
I ditto Ivy. Feel better!!!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/4/2009 7:05 PM (GMT -7)   
But Broom, if it's not working it's not working... **Surely** they have to help you and give you some stronger stuff if you're in such obvious pain?

*sigh* *another hug*

Ivy.
Co-Moderator Crohn's Forum.


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 4/4/2009 7:19 PM (GMT -7)   
One can only hope...since I saw him on day 3 last time he wrote another script for the Endocet. I've lasted this long, I just can't see spending 150.00 to walk in the door at the ER for a pain script! My resolve is so worn down with this, I've been walking around crying all day. My dog things I'm nuts...and I may be by Monday! I'm just hoping someone will come along that has had this done so I can get a feel for "normal" heal process with this and not "just what the doctor says". I had my top teeth done without anethesia, only novacaine, 5 years ago, left the office popped in my plate and never had a moments problem. Of course all of this was PRIOR to the CD. Thanks for the Hugs!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 4/4/2009 7:59 PM (GMT -7)   
Broom, I posted at the same time as you. Sorry if my advice seemed silly in light of your reasons not wanting to go to the ER. Is there another hospital you could go to? I live in a rural area yet there are still 4 hospitals equal distance from my house. I have lots of choices. Plus two more major ones if I wanted to drive 45 minutes.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 4/4/2009 8:12 PM (GMT -7)   
As I posted on your first post. My sister had her teeth removed in December. I know she was in agony for at least a week or more, if that is any help. It was at least 10 days before she could even think about putting her plate in to try to eat with it. She has none of "our" issues. She lost her teeth from sucking on lifesavers. Stupid girl.

As far as trying to feel better, can you try putting some heat on your jaw? When I have teeth pain from sinus infections (I know not nearly as bad) heat always seems to help some.
Just a small little suggestion. That and if you have sleeping pills, can you take one tomorrow and sleep all day. eyes

I do hope you get some relief on Monday. (((hugs)))
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


orngie
Regular Member


Date Joined Feb 2009
Total Posts : 161
   Posted 4/5/2009 9:03 AM (GMT -7)   
It sounds a lot like when my husband had his wisdom teeth removed and had dry sockets. Essentially, the wound heals over from the outside leaving raw unhealed areas covered up. If that's the problem it's pretty easy for your dentist to fix.

Missmissy
Regular Member


Date Joined Oct 2006
Total Posts : 237
   Posted 4/5/2009 9:51 AM (GMT -7)   
Oh, you poor soul! My heart goes out to you. Please go to where ever you must to get relief. I didn't have as much work done as you have, but in the past two weeks, I have had my molars on both sides on the bottom absess at the same time, had root canals on both, ended up having one of them pulled out. The infection was so extensive, I couldn't even swallow. I will NEVER put myself through that again, I promised myself that I would go to the hospital if I was ever in that much pain. You owe it to yourself to get help! I'm praying for you....
Dawn
Asacol 1200 mg. 3 times daily, Rowasa enema AM & PM,
probiotics, lots of hope and prayers! 52 years old, diagnosed formally 10-06. If it doesn't kill ya, it'll only make you stronger!


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/5/2009 1:29 PM (GMT -7)   
Broom,
I think with as much pain as you are in, it might just be time to be admitted. I hope you feel better soon.
Navy
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 4/5/2009 11:18 PM (GMT -7)   
broomhilda...I just want to hug you. I almost cried when I read this..and would have if not for the fact that I am in the company of other people.
Someone has got to be able to help you...the only downside to a forum like this is that I just want to help everyone and can't do anything. I just hope you know you're in my thoughts and I am sending much love your way.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 4/6/2009 12:48 PM (GMT -7)   
Back from the Sadist Appointment!

Well, what can I say...no dry sockets, everything is healing up fine. I can't put my denture in for a month because it could cause the bone to expose itself and then I'd be in the woods again for the jaw necrosis and infection. The oral surgeon said because of my endless health history and endless drugs I've been on there really isn't anything that is going to be "that" effective in relieving the pain that he would be allowed to prescribe. A patient with normal healing process would be realizing some gradual relief by now and he's hopeful that's just around the corner for me. He told me I could go ahead a start my Humira back this weekend (have to go get the annual TB test first) and hopefully that will help more with the inflamation in the jaw joint. I still can't open my mouth very far. While I'm glad to keep my jaw at this point, you know that wasn't the answer I wanted to hear. I am still near tears. So.....I guess I'll continue the heat packs, elevating my head while resting...mush & more mush...and bite the bullet like us crohnies always have to do anyway. I guess I don't regret having this done in the long run and this is just another "moment in time" for me. I would advise anyone that was in my situation that is taking ANY bone strengthening drugs of ANY kind to get a FULL dental consult prior to taking that class of drugs. I wouldn't wish this on anyone and I've had 3 natural childbirths, my top teeth removed without anesthsia and of course a resection....this has been the worse! God Bless you all for you prayers and concerns-Gayle
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 4/6/2009 1:47 PM (GMT -7)   
All fingers crossed for speedy improvement! Only one thing I can think of: I wondered if ice packs rather than heat packs might help more with the pain? If your dentist advised heat, then of course stick with that, it just occurred to me that cold might be more useful in reducing the inflammation and cooling the discomfort. Feel better!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/6/2009 3:43 PM (GMT -7)   
(((broom)))
Co-Moderator Crohn's Forum.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/6/2009 3:58 PM (GMT -7)   
Hi Gayle hope relief will be coming your way soon and will be keeping good vibes going your way.. hope the humira helps did the dentist think it would ? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail
"Blessed are those that can give without remembering and recieve without forgetting ~Aurthor Unknown~


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/6/2009 4:12 PM (GMT -7)   
I had an impacted wisdom tooth removed 2 or 3 years ago. It was embedded in the jaw bone, and had to be cut out in pieces. That single extraction was one of the most painful experiences in my life. My jaw locked shut, and I could hardly eat. Pain pills barely touched the pain. Things improved a bit after a couple weeks if I recall, but I had issues for several weeks. One day, I felt something sharp coming out of my somewhat healed gum. Tooth shrapnel! I pulled it out with a tweezer, and then the gum finally finished healing. I had minor nerve damage (my chin was kind of numb), but that healed within a year.

You had a much more traumatic experience than me, since all of those lower teeth came out, so I can only imagine what the pain must be like. But based on my personal experience, I think it's probably pretty normal for you to still be in such bad shape. It's a terrible thing to have to deal with.

I hope you're feeling better soon! Each day you make it through is a day closer to everything healing up!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 4/6/2009 5:53 PM (GMT -7)   
Thanks SpookyHurst...I did have an impacted wisdom tooth lying on it's side on the jaw bone as well. And yes, it was cut out in pieces. I ended up with 12 stitches total for all the teeth which was NO BIG DEAL compared to the jaw bone pain. Shrapnel is a possibility. Anyway, at least you've given me hope...today is day 10. The only numbness I've had was some tingling in the tip of my tongue which doesn't last very long. Even the center of my tongue was bruised the first few days. I've decided to knock myself out with some tylenol pm tonight. I cried enough between 5-8pm tonight just trying to keep the pain under control that I'm emotionally drained so I should sleep well.

Writer-I did start out with the ice bags for about 3-4 days and then went to the heat per his instructions.  It kinda feels like there could be swelling in my estation (spelling?) tubes as well.  I grew up with numerous ear infections because my tubes are even smaller than the average person's.  I told my husband my head feels like a pig's being screwed on a bbq spear right through the ears.  If this doesn't ease up before Friday I may end up on the ENT's doorstep as well....maybe he'll give me drugs.  Course any poking around in there right now would only make the swelling worse.

Post Edited (broomhilda) : 4/6/2009 7:21:23 PM (GMT-6)


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 4/6/2009 9:09 PM (GMT -7)   
Yeah, my tooth was sideways on the jaw bone too. I bet that one tooth could be the cause of most of your misery, because I remember laying there not wanting to even move. Can you open up your mouth very far? I was stuck eating soft foods for awhile because it took quite awhile for my jaw to loosen up so I could open my mouth.

I used to have a problem with my ears getting plugged (it's been better as of late). I find it helpful to pour in a little peroxide and let it bubble away for at least 5 minutes. It dries up any moisture trapped in the ear. My doc gave me this tip, and find it works great.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 4/7/2009 6:18 AM (GMT -7)   
eyes Being in the "we don't do dentistry here, we have no problems" capital of Scotland, I feel for you Broomhilda ! yeah I too have had shrapnel and a dry socket, not keen to remember.... shakehead
All I can think is, have you tried (try not to wince at the idea) accupuncture, or hypnosis ? I know that hypnosis has a good record in dentistry, it is even used by mainstream hospital departments in the UK here, as well as for major surgery in some cases. If it is effective, you will even be able to do it for yourself at home. And accupuncture...well, at worst it is going to give you some pinpricks that may take your mind off your jaw, at best it may solve something those d**ned rules really just don't take account of !

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 4/7/2009 6:47 AM (GMT -7)   
Spooky- No, I can't open my mouth very far yet. about far enough to get a spoon in without my upper teeth in. I don't think the ears are plugged even though I have a tendency to produce a lot of ear wax. Usually when that happens I get a lot of popping sounds. I think it's just the swelling that may be further up in the jaw and traveling to the inner ear.

Snohare- I used to know how to do self hypnosis. Wish I could remember now!

Gachrons- The sadist thinks that it is possible the Humira will help the inflammation. After all, soft tissue healing such as fistulas and inflammation is what it's forte is anyway. That reminds me...I need to call my primary and get my TB test scheduled today. Thanks for reminding me!

Hope everyone has a better day than me!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 4/7/2009 8:25 AM (GMT -7)   
idea Get a book on self-hypnosis from the library or a bookshop, Broomhilda - it could be the best $5 you ever spent.
(yeah I know, easier said than done when you are staggering around banging your head off the wall and moaning with pain - your concentration for reading is not that great at present, I would bet, never mind driving anywhere. eyes)
If you have done it before, all the gradual relaxing of muscle groups and limbs one by one, regular even breathing and mental visualisation will come that much more easily - like riding a bicycle, your body never really forgets, it just needs more reminding of how to tune out the distractions. Personally, I used to find TV was the closest thing I could ever find to hypnotism without going into a trance; if you could take some old-fashioned barbiturates then you might find things even easier, nono they don't call those hypnotics for nothing ! (But of course you may find there are all sorts of contra-indications against mixing those with your other medications.)
eyes Oh dear, I've gone into that male "sort the problem" mode, haven't I ? Any minute now I will start doing long range analysis of XRays and pronouncing which herbs helped my auntie when she had toothache or how Crohn's really doesn't involve any real pain, it is all imaginary... shocked
Well, (((hugs))) anyway. I will appreciate my day all the more for it not being yours Broomhilda, I promise you ! smilewinkgrin (Yes, I am taunting you with those teeth here. wink)
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