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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 4/5/2009 2:08 PM (GMT -7)   
I was just thinking, in light of how lovely the weather has been down in here in Tennessee recently, about all the wonderful 'light' food you're supposed to be able to eat during summer like fresh fruits and vegetables, iced tea, grilled burgers or chicken, etc.
But I don't really know what to do about that this year since I can't really have those...I doubt a lot of us can. I was sick all summer last year so I could only have ensure anyway, but I'm a little sad thinking about how to do that this year...there is nothing like a fresh tomato from the garden or a big bowl of watermelon...or iced tea as the sun goes down.
I was just wondering what the rest of you do?

And I don't even know what to think about drinking. I thought I could live without it, but I really miss just being able to chill out with my friends over a case of smirnoff.

I mostly just eat gluten free bread, crackers, baked crab, and cheese these days because it seems to be the safest way to go. I just really miss being able to put more healthy food into my body, and I am really afraid of the long term effects of this kind of diet.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/5/2009 2:32 PM (GMT -7)   
I know. I just read on the mayo website that a low residue diet will result in severe nutritional deficiencies. Not good for someone who might need surgery soon (me).
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 17.5mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements.

Tried SCD, didn't work, now avoiding gluten and dairy.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/5/2009 4:41 PM (GMT -7)   
I can't wait until the day I can tolerate raw fruits and veggies! YUM turn! But, at least I can eat several of them cooked. I tried pineapple for the first time in a very long time a couple days ago. It seemed to go over fine. And the peaches are delicious too. On the vegetable side of things, I recently added asparagus, which is pretty good cooked in olive oil with a little parmesan shredded on top. I like zucchini the same way. Butternut squash with butter is really tasty, which is funny, because I never desired to eat squash in the past.

But I crave a yummy raw tomato, and a big salad, with lots of stuff in it! Maybe next summer, because I'm not sure I'll be brave enough to try raw this year.

Isn't it funny that us crohnnies crave fruits and veggies, while so many people who can tolerate them choose to shun them?
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 4/5/2009 4:46 PM (GMT -7)   
I know! Although they were my favorites before I got sick. My friend and used to make a 'super' salad with all sorts of vegetables, apple and orange slices, various nuts, and wonderful dressing. It was so good after a long day at school...

Do you peel your zucchini before you cook it or can you tolerate the skin??
As for the nutritional deficiencies...I'm not sure what to do...I am taking a prenatal multivitamin and drinking soymilk with vitamins and, really importantly, calcium so I don't know..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 4/5/2009 4:52 PM (GMT -7)   
I dont mean to brag but ive been doing very well for the last two weeks so yesterday i had a big hamburger w/ ketchup, mustard, mayo, onions, and pickles with fries. it hasnt affected me at all but i chewed it to mush before i swallowed. Wow that was good!
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, Flagyl, B-12 injections and iron. Feeling much better!
God Bless. Tony


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/5/2009 5:13 PM (GMT -7)   
LMills, I take the skin off the zucchini. I doubt I'll ever be brave enough to eat the skin, which is okay. The seeds are tiny and tender, so I go ahead and eat those.

Next on my list to try are cooked red peppers. I never liked green peppers, but I've never tried the other colors, so maybe I'll like them. Then comes the French artichoke. Again, never had one in my life, but I'm more willing to try new things these days.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 4/5/2009 5:50 PM (GMT -7)   
Red peppers and artichokes are really good. Yellow peppers wrapped in turkey meat with cheese is really good too..
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Jenn
Regular Member


Date Joined Oct 2004
Total Posts : 29
   Posted 4/5/2009 11:06 PM (GMT -7)   
Now I feel bad cause I'm giddily planning my garden and thinking about planting at the end of the month. Various lettuces, radishes, carrots, green onions and walla walla onions. Celery, bush and pole beans (green, burgundy and yellow wax), beets, cabbage, kohlrabi, broccoli, cauliflower. Sage and parsley too! Oh, and turnips and cucumbers! A lot of these things "run through me" like the lettuce, but for the most part, I tolerate most veggies well, I'm happy (and lucky) to say. It's the dairy I can't tolerate, being lactose intolerant sucks, I love milk, hard cheeses, soft cheese, sour cream. I would kill to eat a decent slice of pizza, but the overly crappy cheap cheese most places use really send me for a loop.

LMills, I will trade you cheese and crackers and pizza for my salad! At least for 1 day. turn

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 4/5/2009 11:12 PM (GMT -7)   
I would take that trade definitely! I'll be helping my family's large garden this year but without being able to eat the results hahah...Gardening itself is so rewarding, but what I wouldn't do for slices of cucumber...
I will eat vegetables sometimes but they just don't get digested. I had a partial obstruction (or something) that had to have been the most painful Crohn's experience I ever had, beating out the ectopic pregnancy, and I am afraid that eating too many things my body can't break down will bring another one of whatever I had.

I would trade you all of my cheese and crackers even for just half of a celery stick...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/5/2009 11:13 PM (GMT -7)   
I want to come visit your house Jenn turn. That's a great sounding garden!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 4/6/2009 5:25 AM (GMT -7)   
Just curious, how do you guys figure out which foods bother you? I haven't changed my eating habits at all because I haven't been able to figure out how you narrow down which foods you can't eat. I eat so many things during the course of a day that I have no idea how I'd be able to tell that one thing bothered me vs. another!

55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 4/6/2009 5:54 AM (GMT -7)   
I am so hungry after reading these posts!!!!!

- to figure out which foods bother me I eat chicken broth for days until my stomach settles down and heals a bit. I add a new food every few days and see from there. Beward of uncooked veggies or any fruit/veg with skin. It makes sense that foods that are challenging to digest will be even more challenging for us Crohnies.

As for the fruits and veggies for summer- I would jsut stay clear of corn forever. Salads work for me to eat topped with cucumber, onion, cheese, and tomatoe- but I can't eat them every day. For me the key is moderation.

I would lvoe to plant a garden, but don't know the first thing about how to get started adn maintaiin it. I am so excited for all of you who have green thumbs.
Jennifer
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/6/2009 6:00 AM (GMT -7)   
I have the hardest time in summer because of all the delicious fruits available this time of year. I am able to tolerate plums (no skin), watermelon, and banana's. But what I really want are the big thick skinned navel oranges, but I miss those. I haven't eaten salad in so long, I really don't miss it anymore.

And since I don't eat red meat anymore, I miss I nice steak on Memorial Day and Fourth of July, or a big hamburger. Yummmm!!!

As much as I miss this things, I still will not eat them as the next day misery isn't worth it.
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Jenn
Regular Member


Date Joined Oct 2004
Total Posts : 29
   Posted 4/6/2009 6:23 AM (GMT -7)   
If I had room to grow more, I would! The only things that I seem to have a problem with are dried fruits, like cranberries and raisins. They go right through as if that weren't even eaten. I remember the first time I saw that, I had had oatmeal with cranberries (yummy!) and later on I was like, holy cow, are those blood clots? And then I realized they were the whole, unaltered cranberries floating in the bowl! And corn, corn does that too (doesn't it for everyone tho?). Sometimes I will eat something just to see how long I have to wait for it to come back around. Seems my quickest digestion can happen as fast as 5 hours! "Let's see, we had lunch at 1 and now it's 6 and look, corn!" I figure if stuff moves that fast through me, and isn't seeming to bother me to much, I'll eat the fresh fruits and vegs and hope the body can suck some nutrition out of it before it's gone.

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/6/2009 8:27 AM (GMT -7)   
Valerie3 said...
Just curious, how do you guys figure out which foods bother you? I haven't changed my eating habits at all because I haven't been able to figure out how you narrow down which foods you can't eat. I eat so many things during the course of a day that I have no idea how I'd be able to tell that one thing bothered me vs. another!


Basically, I used an elimination diet. With SCD, you do an intro diet for 2 to 5 days, which consists of a few basic foods (soup, gelatin, broiled meat, eggs). Then, you add one new food to your diet every 2-4 days. If you have some sort of reaction, you'll know which food causes it.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/6/2009 9:14 AM (GMT -7)   
I miss cauliflower.... Raw cauliflower (I don't much like it any other way)... :(...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 4/6/2009 11:00 AM (GMT -7)   
My daughter's birthday is the end of May and we like to go strawberry picking---this year I am going to try eatting one!
age 41,diagnosed with CD in 11/07, Rx Pentasa 4000mg and Remicade.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 4/6/2009 3:15 PM (GMT -7)   
Oh dear I miss cauliflower so much too, Celey...I used to live dipping it in ranch dressing OR I would steam it with broccoli and cover them in melted velveeta.

Good luck with the strawberry by the way! They are so good in mascarpone cheese.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 4/6/2009 6:42 PM (GMT -7)   
How about buying a juicer for those fruits & veggies? Any residue or seeds from a blender could be mashed through a seive too. I know this isn't weekday possible for most but it sure is nutritional and gives you the taste without all the grief.

I will admit I attempted to put some shrimp parmesan penne pasta in the food processor the other day and it had the texture of seafood salad when I was done with it. I couldn't chew the pasta or shrimp because I don't have any teeth in my head and was afraid I'd get choked on the pasta sliding around in my mouth. I must have had a bad experience with seafood salad at some point in my life because the texture made me gag! However, the taste was the same.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/6/2009 9:13 PM (GMT -7)   
LMills said...
Oh dear I miss cauliflower so much too, Celey...I used to live dipping it in ranch dressing OR I would steam it with broccoli and cover them in melted velveeta.

Good luck with the strawberry by the way! They are so good in mascarpone cheese.


Oh man, I love raw cauliflower and broccoli dipped in ranch dressing! I love almost anything dripped in ranch dressing turn.

I had a raw strawberry the other day, and the next day I had a second raw strawberry. Then I stopped, because I didn't want to press my luck.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 4/7/2009 7:07 PM (GMT -7)   
I'm the same as Jennifer - I am trying to get into the SCD diet and I find that fruits and veggies don't bother me as much as they used to. I wasn't able to handle raw or fresh F&V for years - now that I'm eating low carb, it's easier for me to handle the roughage - but I have to have it in moderation. I have a salad with lots of olives every day for lunch at work. And I am eating more apples (skin on!!) than I have before. I do have to be careful though; absolutely NOOOOO corn, beans only in small amounts and I have to be careful with peas too. All in moderation is OK!
I was amazed to find so many of the SCD 'legal' foods are ones which I was unable to tolerate before! bread is definitely a no-no for me now. But I don't miss it that much!

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/7/2009 9:50 PM (GMT -7)   
Eating SCD definitely gets easier with time. I still get cravings for my old foods sometimes, but I don't have a true desire to eat them. There's plenty of good stuff to be had on the diet!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 4/7/2009 10:03 PM (GMT -7)   
Same feelings here concerning the SCD, but I do make a few exceptions in that I will eat gluten/sugar/dairy free tapioca bread and Blue Diamond pecan thins. I also enjoy soymilk without too much trouble which is good because I need the calcium.

Man I miss vegetables though...
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

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