anybody with experience on capsule endoscopy? i've some questions below?

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rummy
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Date Joined Mar 2009
Total Posts : 27
   Posted 4/5/2009 2:25 PM (GMT -7)   
I have recently been diagnosed with CD. My GI talked to me about thinking of doing a capsule endoscopy. Why is this procedure done and what does it entail?
Thanks and take care.

yogaprof
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Date Joined Apr 2006
Total Posts : 1665
   Posted 4/5/2009 2:28 PM (GMT -7)   
it's the easiest test. some people prep, but I just had to not eat for 8 hours. they have you swallow an easy capsule and then strap a cool, unibomber thing around your waste it is connected to several sensors stuck to your belly. I worked all day and then they take it off.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 4/5/2009 5:24 PM (GMT -7)   
Pain-free test! If it comes out. If you think there might be a chance of blockage I wouldn't do it. Mine took 4 days to come out. Had to go back in for X-rays. They were contimplating surgery. Like I need another one. Dr. said the test results didn't really show anything clearly. I wonder if they just do it for a reason to pay for the contraption? or for insurance purposes. There are many feet of small intestine that they just can NOT get a good look at unless you do exploritory surgery.
I am sorry for your diagnoses.
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Re-section on small intestine 18 inches in 2006. Diagnosed with PTSD in 1999. Been getting kidney stones:( bummer! The good news...finding this website.
                Meds: Imuran 200mg daily, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, potassium, synthroid...& try to get alot of laughter in.
                         


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 4/5/2009 7:51 PM (GMT -7)   
There have been many people on here that have had the pill camera done. It is just like swallowing a big pill and they strap a moniter that is about the size of a sardine can on you. Actually was a really good thing for me found alot of abnormalities that did not show up on the normal scope. I know one person on here that had to have it surgically removed but usually if your guts are that bad it is a good thing to get it done anyway.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


AMinNJ
Regular Member


Date Joined Feb 2009
Total Posts : 40
   Posted 4/5/2009 8:09 PM (GMT -7)   
I had one about 3 months ago... got great pictures of the ulcerations in my terminal ileum, and I was happy to avoid a dose of radiation by not having the CT scan or upper GI series done instead. The test itself is a breeze, the pill camera is small and easy to swallow (like a big vitamin). The harness/monitor with all the wires is a little heavy and a bit annoying, but it was easy. My pill came out the very next day. Had to wait about 3 weeks or so for results though, while the pictures were developed and reviewed. Definitely worth it.
 
Angela
Age 43, mild Crohn's dx Jan 2009 after colonoscopy and capsule endoscopy
Gluten-free & dairy-free
No medications

Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 4/5/2009 8:26 PM (GMT -7)   
I had the M2A capsule test in Feb 2007. GI "assumed" it came out. Didn't see anything to worry about on pics. In April 2007 I went for a CT enterography as I was still having tons of issues. Radiologist says "we see something metal in your stomach".. huh?!?! LOL! Capsule was stuck in there. Went to Colorectal surgeon who wanted to do a colonoscopy to see if they could remove it that way. If they couldn't get to it, they would do surgery. I said let's just do the surgery and see what's going on in there AND get the camera out. Ended up with open surgery and 14" of small bowel along with 4" of colon resected.

As for the actual test, it's simple. I didn't eat for 8 hours beforehand. Went in, got strapped into a monitor contraption that made me look like a bomber. Mine was much larger than a sardine can. More like a dvd box. Swallowed the pill which was about the size of an XXL vitamin. Came back in 8 hours and had it taken off. Results back in 2 weeks.

For most this test is a great indicator of what's going on. For me, it left me thinking nothing was wrong when the camera was stuck in there for 5 months by the time I had the surgery.

GOODLUCK!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 4/5/2009 10:05 PM (GMT -7)   
anyone know if they have done anything to make the pill cam smaller?
i'm interested in having it done but am scared it will get stuck.
hopefully they design a smaller one soon!
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 4/5/2009 11:14 PM (GMT -7)   
I've had three of them done, and am quite possibly going for my fourth soon. They can be helpful to see parts of your body they typically can't scope via endoscopy or colonoscopy. Before I had the first one, they did a dissolvable pill camera to determine if it would pass. A lot of places will allow this to be done before getting the real thing. But don't necessarily count on that being 100% reliable. I ended up doing the dissolvable pill twice, and both times it hadn't passed before dissolving. Because of that, they were hesitant to do the test.. but I did so anyway. That was a personal choice because I felt if it got stuck it was getting stuck for a reason, and I'd probably have to do surgery regardless. That isn't really a normal reaction, but it was a decision I made with my doctor. But to place it safe, each time I've had one I do full on prep to try to reduce any chance of it slowing down inside me or getting stuck.

Let's see... what else? It really isn't hard to swallow at all, and the gear is kind of annoying to wear. I end up staying home for the day because you look so odd with it on. I had to have three because the second one, which was done over a year later from the first, ended up just hanging out in my stomach the whole 8 hours. So the third one they placed it via endoscopy so at least they would know it would be recording more than just the stomach. And typically, they will check 2-3 weeks later via an X-ray to determine if its passed. But if you've actually seen it pass.. then you're good to go.

In determining if you want to do it.. I'd say it depends on your own situation. Why are they wanting to do it? Have you been on medication at all? Are you having any other issues? Please let me know if you have any other questions I can help with. Good luck!

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 4/5/2009 11:51 PM (GMT -7)   
I did it because I suddenly became anemic. Scopes didn't show anything so I swallowed the camera. It showed patches of inflammation in my small intestine. Since they can't biopsy me, I was diagnosed with "ileitis" possibly Crohn's. The GI doc said it was probably Crohn's on the phone then changed to IBS when I came in. The blood test was equivocal.

I swallowed the camera on a Thursday and it came out on Sunday. I didn't want an x-ray so I checked every bowel movement to make sure it came out.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 4/6/2009 9:16 AM (GMT -7)   
The capsule endoscopy is how I finally got a diagnosis (after 8 years).  The test was a breeze other than having to go twice...once to have them put the equipment on you and once to have them take it back off.  I never saw the pill come back out, but it must have!  =)

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 4/6/2009 10:11 AM (GMT -7)   
The worst part of the test was that I had to be at the hospital at 6:30am, which meant leaving the house by 5:30.  Ugh.  Other than that it was no big deal.  I never saw the camera pass either, but I'm not too worried.  I did the test back in December, and I'm pretty sure I would have noticed a problem by now if it was hung up somewhere.

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 4/6/2009 11:21 AM (GMT -7)   
I really watched for my camera, but never saw it. I had fun with the equipment cuz I am a college prof and I made my students guess what it was. the best were first-generation I-Pod and change maker for a casino!
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


medicalmystery
Regular Member


Date Joined Apr 2009
Total Posts : 45
   Posted 4/9/2009 8:41 PM (GMT -7)   
i just had it done for hopeful diagnosis on wednesday...haven't passed it yet....my GI begged me to go into some gas stations and a bank cause it looks like you are strapped with explosives....i did...reactions were funny...at the bank two of the people in the cubicles kind of jumped up...

its the size of a big jelly bean i'd say...

oh and it leaves lots of sticky residue...get some adhesive remover!

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 4/11/2009 5:02 PM (GMT -7)   
i'm supposed to have this done soon so this was helpful for me, but i'm left with 2 questions:

1) do i have to recover the camera? (i'm not planning to)

2) the camera better not be reusable cos if it is i aint doing it.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


medicalmystery
Regular Member


Date Joined Apr 2009
Total Posts : 45
   Posted 4/11/2009 5:33 PM (GMT -7)   
no...you don't have to recover it!!! you do expel and flush it...its not reusable...thank goodness

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 4/11/2009 5:35 PM (GMT -7)   
I was unable to use my credit card in a gas station pump when I had the box strapped to me...coincedence? perhaps, but it worked later in the day!
no, you don't need to retrieve the camera, Harry, and not reusable! :)
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/11/2009 5:44 PM (GMT -7)   
No not reusable and no you do not have to retrieve it.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 4/12/2009 8:21 AM (GMT -7)   
My GI told me about a young guy he was working to diagnose who went home with the monitor in place after swallowing the capsule. |He came back the next day to turn in the monitor and the G|I asked him of he had passed the capsule. He said "yes sir!" and opened his mouth and removed the capsule from under his tongue, explaining that he had kept it safe. The GI said he had to leave the examining room for a moment to laugh.
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