Big people with Crohn's

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Pauliwog45
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Date Joined Mar 2009
Total Posts : 26
   Posted 4/5/2009 3:49 PM (GMT -7)   
Hello Everyone,

My professional background is in Medical Imaging (CT, Angiography), and I am now a Manager in a large department. During my career, whenever I encountered Crohn's paitients, they were always thin and looked quite ill. I was diagnosed 5 years ago, had a resection and now I'm having one obstruction after another. I, however, am a big boy. Not thin by any stretch of the imagination. I lose weight when I flare, but more often than not, I lose muscle mass, not fat. I'm just wondering if there are other big people Crohn's sufferers out there.

Is this the most complicated messed up disease?

Thanks for sharing.
Paul

Becky77
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Date Joined Dec 2005
Total Posts : 1768
   Posted 4/5/2009 4:07 PM (GMT -7)   
I have Crohn's and could easily lose 30 pounds! There are many overweight CD pt's here.
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05
Currently on Humira, Prilosec, Effexor, Seroquel, Calcium, Vit D, sublingual B12; phenergan, ultram, clonazepam as needed


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 4/5/2009 4:25 PM (GMT -7)   
i'm 6'2" and about 220 when healthy...not all muscle- a bit of a gut.
i'm down to 183 right now due to flare and look pretty skinny but not emaciated or anything. i'd love to get back to 200.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 4/5/2009 4:38 PM (GMT -7)   
I'm a over weight chronie.was turned down for SS because of it. I was not malnourished. They (doctors) didn't want to diagnose me with crohns, because of my fat. I lost 20lb because of dehydration but,13IVs and it was back.....


Dawn turn yeah
49 Female
Dx June 07 Crohn's take asacol 2x3 a day ,lotrel for HBP , omeprezole for stomach , potassium , calcium & Vit D , lomotil for lose stools , tramadol for pain , started humira in Feb 08 on 1 shot a week, vit-B 12 shots , crestor,off crestor,now pravastatin,off humira, pristiq, abilify,
Dx Bipolar May 08


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 4/5/2009 5:10 PM (GMT -7)   
Pauliwog45,
I always wondered this too! Everyone I knew with Crohns was sooo thin and kinda gaunt looking. I was diagnosed with Crohns in 05' and had a re-re-section. (it came apart). At this point I had lost 40lbs and was afraid I COULDN'T gain.
I'm normally 5-8' and 175ish. I liked to workout and felt strong. Now, I have a totally different body shape. I'm up to 200lbs. It IS a messed up disease! Actually, my family Doc recently asked me what had changed in the past 5 years due to my cholestrol climbing. I said "All I can digest is fat and sugar"! I used to be able to eat salads, veggies, nuts, ice cream and cheese, ....yummmm. Not anymore. After a couple bad days you crave....anything for energy!! So you eat cuz' you think tomorrow I might not be able to. Arthritis makes it difficult to keep moving....that is my MAIN problem.... not moving! Very tired all the time. Kinda foggy.
I think each case is individual. I hope this helps you. Your not alone.
Flowery
 41 yr old woman with 12 surgerys under my belt. Diagnosed in 2005 CD. Gullbladder taken 2000, Hysterectomy 2005, Back surgery 1998 with herniation L-4, L-5, S-1. Re-section on small intestine 18 inches in 2006. Diagnosed with PTSD in 1999. Been getting kidney stones:( bummer! The good news...finding this website.
                Meds: Imuran 200mg daily, occasional flagyl and cipro, high blood pressure meds, paxil 25 mg, potassium, synthroid...& try to get alot of laughter in.
                         


Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 4/5/2009 5:56 PM (GMT -7)   
The one Crohn's side effect that I wouldn't mind having - weight loss - is the one I don't have... the only time I lose weight is when I'm in a serious flare and can't eat ANYTHING... literally anything... the minute I'm able to put something in my mouth my body gets all excited and has to keep every calorie it can :(
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 4/5/2009 6:33 PM (GMT -7)   
Im 22 years old, 5'4 and currently weight 210 pounds.  My LOWEST weight during a Crohns flare was 165.  I have constant D but still my body just holds onto fat.  I have been overweight my entire life, the only time Ive ever lost weight is when I had a stricture and was not able to eat food at all. 

Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed.
Current Meds: Imuran 50mg, Vitamin B12 (injection), D, and C tablets. Fish Oil Tablets, Cats Claw, Slippery Elm, and Reishi.
 

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/5/2009 7:41 PM (GMT -7)   
I am about 290 right now high end of weight cycle (I can vary by more then 60 lbs in a given 6 month period) and actually gain weight during flares.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 4/6/2009 2:30 AM (GMT -7)   
me too.. but remember after long term prednisone use, fat migrates from the limbs to the trunk of the body giving a rounded look with tooth pick legs and arms.

NE NE you can be over weight AND be malnourished. geez, did the drs do a complete nutritional study on you? i mean all the tests to determine stores of needed vitamins, minerals etc... such as selenium, calcium,copper,magnesium, iron, ionized calcium, all the b vitamins, vit c, and on and on.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 4/6/2009 9:00 AM (GMT -7)   
Randy...I am the prednisone covergirl...moonface, belly, buffalohump and skinny arms and legs (my knees are getting too bony esp when lying on my side)...
Oh, and I have stomach ulcers that is thought to be Crohn's related. Many people, me included, eat to ease the discomfort and pain caused by these little buggers.
Though I never got real skinny due to the disease, I got a but chubbier due to the prednisone...
"The earth laughs in flowers"


Pauliwog45
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 4/6/2009 4:17 PM (GMT -7)   
Hello Everyone,

Thanks for all your responses. It is really comforting to not be alone with this. This disease leaves me feeling isolated at times, and I wonder if anyone takes me seriously. Including my doc, who in reality is really good, and took the time to investigate and come to a concrete diagnosis. But with all the other ailments that comes along with Crohn's, I find myself a little stunned when a new problem comes along. The people here help to make sense of it all and I really, really appreciate that. Right.....I feel better.

Paul

Jenn
Regular Member


Date Joined Oct 2004
Total Posts : 29
   Posted 4/6/2009 4:23 PM (GMT -7)   
I'm 5'9" and I just now jumped on the scale, it said 247. So yeah, I'm the fat girl with crohn's. I've always had a weight problem tho, I've never not been fat. My old GI doc said it's kind of a good thing cause then if you flare badly, you have that much of a cushion that the skinny crohnie's don't have. I think my greatest weight loss was right before I was diagnosed, I lost 60 lbs in 5 months. I didn't notice it, but other people that I saw infrequently commented on it.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/7/2009 5:26 AM (GMT -7)   
Pauliwog,
My current GI said that I have the worse case of crohn's he has ever seen. I have never lost weight with this disease. We all know that Randy's is really, really, really bad. I would said make sure you get a pill camera done because of how they can miss stuff going on between the EGD and Colonoscopy. Remember there is about an 18 foot swath of intestine they are missing.
I think my GI's idea makes sense to me about being overweight, but he might just be indulging me. Our bodies started trying to compensated for the missing nutrition by leaving the hunger chemical marker on in our brains. But then again I really am hungry all the time. The worse thing for me is being in too much pain to work out.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


fldirt
Regular Member


Date Joined Apr 2009
Total Posts : 30
   Posted 4/7/2009 8:36 AM (GMT -7)   
Hello,
I am new to the forum but I also am over weight. I was dx. in 1978 had resection 13 inches in 1983. Have been in & out remission since then. Have had ulcers from mouth to ...... I am on Entocort EC 3mg 2 tabs daily & hope to get it down to daily. Having a problem with anemia at the moment & am taking iron pills. So guess we should be happy that we have some meat on our bones!

orngie
Regular Member


Date Joined Feb 2009
Total Posts : 161
   Posted 4/7/2009 9:02 AM (GMT -7)   
I'm overweight even after losing 46 lbs last year prior to being diagnosed. I could easily stand to lose another 46, but I'm more interested in stabilizing my health right now than in losing more weight.

AnastasiaB
Regular Member


Date Joined Mar 2006
Total Posts : 24
   Posted 4/7/2009 12:00 PM (GMT -7)   
Count me in to. I am classified as Obese, I have Crohn's and Hashimotto's Thyroid, my thyroid is toast. Add to that the repeat treatments with Predisone and I am tipping the scales.

When I say I have Crohn's people think I am BS'g them..

Well...I am on Weight Watchers, I lost 73 lbs it took me a long time, then I gained back 39 on the predisone, so now I am off it again and am trying my weight lose journey again.
  • Chrohn's
  • Hasmimotto's thyroid
  • Asthma
  • Reactive Arthritis Secondary to Chrohn's, Rheumatoid and Osteoartritis.
  • Anemia
  • Barrett's Esophagus

Meds; Pentasa, Aciphex, Levoxin, B-12 injections, Singulair, Proventil, Celebrex, Levbid, Ferrous Sulphate, Folic Acid

 

 


littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 4/7/2009 12:39 PM (GMT -7)   

I have never ever lost weight on a flare up or otherwise. I gain weight when on steriods and lose some of it when I come off. I too am classed as obese and could do to lose about 4 stone.  Ive lost 8lbs recently but that was due to exercise.

I have been large since I was 25, Im 40 now. When I was diagnosed I though well at leasy I will lose some weight, I asked my consultant why i have crohns and am fat - she said its sods law. I have also met other largish people with crohns at the hospital, if fact more large people than skinny.

 


pdmhol
Regular Member


Date Joined Apr 2007
Total Posts : 40
   Posted 4/7/2009 12:42 PM (GMT -7)   
I also tend to lose muscle and not fat. Before my 1st resection I weighed 245 lost down to 170 but still had mt fat roll. After resection gained back to 232. 2nd resection lost down to 192 still had my fat roll. Just lost muscle not fat roll. The good thing about my fat roll is Humira shots I don't have to pinch up a fat roll.
Crohns dx in 2002. ilieum and colon resection 2002. Ilieum resection 2007.


Skylardaisy
Regular Member


Date Joined Jul 2008
Total Posts : 36
   Posted 4/7/2009 3:01 PM (GMT -7)   
It is so nice to know that I'm not the only one struggling with weight. In 2002, after being heavy all of my life, I finally decided to get serious about dieting. I lost 105 lbs. in 18 months and I felt really good. Lo and behold, 2003 brought my first Crohn's symptom in the form of a bowel obstruction. While this was being investigated, I was started on prednisone and my weight went straight up. I now weigh 225 lbs. and can't seem to lose any of it.

Pauliwog45
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 4/8/2009 4:20 PM (GMT -7)   
Skylardaisy.....and anyone who's had an obstruction........what was the cause of your bowel obstruction? I had one a couple of weeks ago and I'm being investigated for adhesions, tumour, and ischemic bowel......CT scan tomorrow. Looking back, it seems that I've had around 6 full or partial obstructions over the last few months, with me thinking it was just another form of a Crohn's flare......and I tend to suffer through the pain rather than going to the hospital.....which is just stupid I know.....

Skylardaisy
Regular Member


Date Joined Jul 2008
Total Posts : 36
   Posted 4/9/2009 10:10 AM (GMT -7)   
Hi Pauliwog.
The cause of my bowel obstruction seemed to be inflammation of the small intestine. It came right out of the blue, although looking back, I did have two episodes of severe abdominal pain in the months before the obstruction. I didn't need surgery, thank goodness, but was treated with a nasogastric tube and complete bowel rest. All I know is, I had been out for supper two nights in a row, eating red meat each time (rather large amounts of it).
I, too, get a lot of partial obstructions. I try to deal with them on my own, rather than go to Emergency, because I hate having to wait and wait while in pain. I went there last night, actually, after being in pain for 4 days, but gave up and went home after there was no sign of getting in after 2 hours. Came home and continued to drink copious amounts of water and took some Prednisone, which I know I shouldn't fool around with. However, it seemed to work and things are finally moving today. Hope this helps.

fldirt
Regular Member


Date Joined Apr 2009
Total Posts : 30
   Posted 4/9/2009 11:28 AM (GMT -7)   
Hello,
My obstruction was from inflammation of the small intestine also. I would go on a liquid diet, increase my prednisone & wait for the pain to go away. After doing this several times & my gut starting to form a fistula, i finally had a bowel resection...a little over 13 inches removed. I was on Prednisone 60 mg daily for over a year. Every time we tried to come down on the Prednisone, I would get another obstruction.

Wyzwmn
Regular Member


Date Joined Apr 2009
Total Posts : 21
   Posted 4/11/2009 2:28 PM (GMT -7)   
I just asked my GI this question the other day!

I'm 5 ft 6 and weigh almost 300lbs...I know it's as a result of the high carb diet I eat (cos I can eat anything that isn't good for me but virtually no veg or fruit) and have the complication of arthritis in my hips and knees and lower back...the final complication is that my chron's was triggered by menses and PTSD for years I no longer have the menses issue - I had surgery (and the only one that I've ever had that was crohn's related) but I still can't loose weight...

I know I'm lucky to have never had surgery for my crohn's and it makes me feel selfish when I see someone my height weighing in at 98lbs cos they've been in flare for years...

but I surely do wish I could loose some weight without having to compromise my crohn's.

it's a vicious cycle ain't it? yeah

the GI says she has as many patients that are obese with crohn's as she does that are the opposite....I guess it's just luck of the draw....
WyzWmn©
"Live the light, light the love, smell the coffee, eat more flowers, don't forget the faeries, mind the moon and, remember, what goes out comes back in a big way!" Kat Smithey A Dianic Witch...
53 year old woman, bald, cranky :)
diagnosed 20 yrs ago - in "remission" for 6 years!~


petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 4/12/2009 9:12 AM (GMT -7)   
Count me as an overweight Crohnie. My doc said that if I can't bring my blood pressure down through diet and exercise that she is going to have to put me on meds.
Jodi

Remicade and 6MP


fongers06
Regular Member


Date Joined Jul 2008
Total Posts : 82
   Posted 4/13/2009 11:29 AM (GMT -7)   
I am so happy to see there are others out there. I just posted something about this a few days ago and someone responded by saying that I must not have a very severe case of Crohn's then and to count my blessings. I was diagnosed in May 08, hospitalized in Aug and missed my daughter's 4th bday and then again in Sept and missed my 10th wedding anniversary with my husband. I had a resection in Nov. It doesn't matter what I do or don't do I can't get anywhere with my weight and it is frustrating to me. I know that to some it is petty and I should be greatful that I am feeling better, but I obsess about it everyday.
Diagnosed with Crohns in May 08
Resection in November 08
Currently on no meds - waiting to see new doctor
Married, mother of 4

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