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Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 764
   Posted 4/5/2009 9:30 PM (GMT -7)   
Did I read some one saying they had watery bumps in their mouth?

Do you know what they are? I have them and my dentist had no idea what they were. They don't bother until they are large and annoy my lower lip. I finally poked it with a pin and water came out and then it was gone for months but came back.

It would be nice to know what 's happening, of course with crohn's I never know so maybe I should get used to a topsy turvey world.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1285
   Posted 4/5/2009 11:01 PM (GMT -7)   
i get sores in my mouth which i hear is pretty common, but not sure about large watery bumps...
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/5/2009 11:19 PM (GMT -7)   
I used to get those bumps. There were two places in my mouth where they formed, on the right side of the roof of my mouth (way back where my tongue could barley touch) and on the inside of my left lower gum. I would eat something, and those bumps would rise up out of nowhere. They annoyed me, so I poked it with my fingernail and broke them. It was weird how only those two little spots were effected.

I tried to figure out what food caused it, but was never able to pin it down. It made me think that I had a tolerance of a substance up to a certain point, and once I reached that saturation point, the bump formed.

I have 4 primary suspects, corn, soy, peanuts, and gluten. I have a mild allergy to soy and corn, and they both are common ingredients in manufactured foods. Peanuts show up in a fair amount of foods too. When I started eating SCD in December, soy, corn, and gluten (as well as starch and sugar) were completely eliminated from my diet. And since I make my own food, I know peanuts don't get into it. If I had to narrow it down, I'd say it was either corn or soy that was the problem. Also, my skin used to be itchy a lot, and it's not anymore, so I think an allergy was definitely at play.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 764
   Posted 4/6/2009 5:07 PM (GMT -7)   
Thanks Spookyhurst and mtgman for answering. I get open sores that hurt and Have been told that goes with the crohn's. But then there are the water bump ones. I get them the same place you do Spookhurt!?! weird. Now that you mention food allergies I show look more closely at that. I have made it through 2 weeks of that SCD diet and then fall apart. Hard not to cheat when cooking for the family. I am starting again in two weeks and have a plan of how to cope this time.

Pauliwog45
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 4/6/2009 5:25 PM (GMT -7)   
I get the mouth sores and the bumps as well.....on the inside of the cheek.....kinda like a water pimple....

spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/6/2009 5:32 PM (GMT -7)   
That's really weird that you get the bumps in the same spot Trigirl!

I'm also the only one in my family eating SCD. It can be tough at the beginning, but gets better. The first couple weeks I was sooooo hungry, but then it went back to a more normal state.

Today, I had to go the doctor, and then afterward, went shopping with my mom. I hadn't eaten lunch, and all those good smells in the mall made me sad sad. Then we went to Costco, and there were free samples everywhere! Thankfully, one lady was giving away samples of a yummy cheese I could eat. Lesson: take something you can eat every time you leave the house smilewinkgrin.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 4/6/2009 8:42 PM (GMT -7)   
Me too with the bumps, more like acne, bottom left.
Can usually feel them growing, almost throbbing when I wake in the a.m.
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2086
   Posted 4/7/2009 7:30 AM (GMT -7)   
Are these not apthous ulcers ? I know that there are ulcers Crohnies get in the mouth, that are supposedly indicative of lack of zinc; rub them with a gel containing zinc and they vanish; but I am not sure that they are the same, I seem to remember them as being much smaller and less watery. Maybe just smaller and deeper ?
I used to get exactly what Spooky describes, and I have a vivid memory of a burst one taking forever to heal, just like a raw blister. Eventually they went away (for good, I hope) - and now that I think on it, they were worst when I was having difficulty finding out what I should and should not eat. (I'm gluten and dairy intolerant.)
I also had "cobblestone mouth" once, where the roof of your mouth looks like a cobbled street - supposedly this is a rare symptom which is definitely diagnostic of Crohn's Disease. Alas it was my dentist who spotted it, and got all excited, called in all his staff to see it - my GI and GP never saw it, so to this day there is a question mark besides my diagnosis. eyes

onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 317
   Posted 4/10/2009 2:01 PM (GMT -7)   
I dont know if this is similar to what you have or not but my mouth is killing me i cant eat cause my tough is cracked and sore and when i eat it hurts my mouth i thought at first it was thrust but its not and i am already losing weight cause i cant eat out of hospital 2 days dont want to go back for another infection in my mouth but i am hoping maybe someone out there could shine a little light on it for me,there is also white patches on the insides of my checks and my Humira is due on Monday and you cant have any infection when you get that please help me if you had this what is it and how do you get ride of it what is it do i need an antiboitic for it.Your Bowel Buddy Jenn.
i love this site a friend found it for me.Another one would ccf crohnes and colitis foudataion


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2086
   Posted 4/10/2009 3:22 PM (GMT -7)   
idea White patches sounds like some kind of fungal infection Jenn, that is one of the characteristic symptoms. A cracked tongue is also typical. It doesn't have to be thrush, it might be another fungus; if your immune system is suppressed then that would be something that you would be susceptible to. But I have no experience of Humira, I'd guess if you do a search using the search button further up the page (not every search button on the page does a good job I hear !) then you will get more info on side-effects associated with that.
Antibiotics don't work against fungal infections, you need anti-fungal drugs, like what you get in athlete's foot treatment creams.

beave
Veteran Member


Date Joined Mar 2007
Total Posts : 642
   Posted 4/10/2009 4:16 PM (GMT -7)   

Trigirl,

I think I might know what you're talking about, though I don't have a name for them.  I've gotten them, too, mostly on my lower lip.  In 20 years I've probably only had a few that have gotten big (by big I mean pea-sized, maybe slightly larger).  I've had several smaller ones (b-b size) that go come and go on their own.  They look just like a blister - clear raised area filled with clear fluid.  I've popped one or two with a needle and it's just like popping a blister.

One, when I was a teenager (20 years ago), wouldn't go away, and it got as big as a peanut on my lower lip, so I had to have an oral surgeon remove it.  He just gave me local anesthetic, cut it open with a scalpel, drained the fluid, and then stitched it back together with a couple stitches on my lower lip.

He said that what they are is this:  There are tons of mucuous membranes lining the mouth and lip area, and those secret mucus, somewhat like pores secreting oil on the face.  Sometimes those mucus membranes get blocked and then a blister-like sac forms and contains the mucus, which is generally clear and watery.  The blockage could occur from all sorts of things, including hitting the lip with a toothbrush, chewing on food, and other minor physical injuries.  For whatever reason, the doc said some people are just a little more prone to have these occur.

I don't think they're anything allergic or Crohn's related, and I think they're mostly a cosmetic concern and not a real medical concern.

 


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/11/2009 12:44 AM (GMT -7)   
I agree with Snohare Jenn, it sounds fungal. Your doctor could prescribe something like Diflucan to clear it up. It also wouldn't hurt to eat some yogurt.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


schristian
New Member


Date Joined Jan 2013
Total Posts : 1
   Posted 1/1/2013 11:58 AM (GMT -7)   
My husband has had small pimple like bumps in his mouth for about 2 years now.  He developed these after taking some strong antibiotics and they will not go away.  They are white and water like and sometimes he can pop them with his tongue.  They are painless but we were still concerned since he is a tobacco user.  We made an apointment with his medical doctor and he informed us that it was common but we still were not satified so we then made an appointment with an ear, nose and throat physician when we were informed that they were common and sometimes formed from high cholestrol in which he didnt think he had but now we have an appointment with his regular physician once again so we will find out next month if indeed they are related to high cholestrol.  Hope this helps some of you.

Ella Mariana
New Member


Date Joined Feb 2013
Total Posts : 2
   Posted 2/16/2013 4:26 AM (GMT -7)   
Hi, i'm a newbie.. i need answers to my blister problem on my mouth..below the tongue.. it's water-filled.. i had this since january... it gets big and pops but after a few days , 3 to 4 days on the average, it goes back on the same place... its a single blister but gets really annoying and i am scared... the dentist said it might be medication related but i already quit my medications so i couldn't figure out what this is... can anyone help me?
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