Coping emotionally

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Kanditron
Regular Member


Date Joined Oct 2006
Total Posts : 148
   Posted 4/7/2009 7:45 AM (GMT -7)   
I'm not usually a sensitive person. But I've been so ill lately that I'll cry if someone looks at me funny or if I think they have bed feelings about me. I know that I'm depressed. All I do is sleep, I haven't been able to work in a month. I'm on anti-depressants. I'm just so stressed and not myself any more.

How do you guys cope with the emotional portion of having crohn's??
26 y/o
Diagnosed with UC in 06 then it was changed to CD in 07
Currently on: 36 mg steroids, Colazal, Remicade.
I've been on: Pentasa, asacol, methotrexate, immuran (I had a bad reaction to it), Enemas.. on and on and on..
I've had flare ups in my stomach but most of my symptoms resemble UC.. so my doc is unsure of what I have or if it's both.. I'm irritated by this fact.
myspace.com/kandice789


Karineb
Regular Member


Date Joined Nov 2005
Total Posts : 319
   Posted 4/7/2009 8:07 AM (GMT -7)   

It can be hard sometimes.  I feel like that a lot of the time too.  I think for me a big part of it is feeling like I am not in control of my body.

 

I also always found that I was worse emotionally when I was on steriods.

Karine

55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 4/7/2009 8:29 AM (GMT -7)   
I am feeling helpless and hopeless right now too. I am planning to get some exercise, eat something healthy, and get among people. Those things always give my sould hte energy it needs in troubling times. Sleep, eventhough yoru body seems sleepy, can be the enemy for mood swings. Get out- get your heart rate up, release some endorphines- take control where you can.
Jennifer

best wishes
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin
 
 
 


orngie
Regular Member


Date Joined Feb 2009
Total Posts : 161
   Posted 4/7/2009 8:29 AM (GMT -7)   
I have a good cry every once in a while. It's almost like hitting the reset button because I feel better afterwards.

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 4/7/2009 8:35 AM (GMT -7)   
I am sorry. do you have an organization you feel passionate about? maybe you could find a bit of time and energy to volunteer. even making phone calls from home or stuffing envelopes makes a difference and I find when I am feeling horrible the more I can take the focus of me the better I feel. I think maybe you should talk to your doctor. it is awful to feel sick, but being so depressed needs to be attended to. take care, yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/7/2009 9:06 AM (GMT -7)   
It's hard to cope, sometimes... I am glad that you are on anti-depressants... You probably talk to a therapist as well, right? Apart from that... try to pamper yourself... Listen to some nice music... get a massage... play games... Do any pleasurable activity you can manage... And try to keep external stress to a minimum....
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/7/2009 9:35 AM (GMT -7)   
There is a big stigma about mental health care, even with chronic illness (even people with terminal cancer, which I think we can all agree is a major issue). Personally I think mental health and physical health are very interelated, and we need deal with both as a holistic approach. Illness effects both physical and mental health so it needs to be approach by both physical and mental health plans. It is very difficult to not to have mental health issues when you are have physical health issues especially ones that might effect you for the rest of one's life, one's quality of life, and possibly everyday of one's life. Very few people have the support system in place that could cope with this level of illness.

Personally I think just like you have a broken leg you go to an ortho, and so if you are having an emotional hard time (and most people do with chronic illness) you go to someone who specialies in dealing with illness mental health issues (therapy and meds are usually the best combo). It doesn't mean there is anything crazy wrong, it is just mean that you are going through a rough time. Illness can cause people feeling of loss, such as not being able to participate in life as much, maintence meds, job, relationships, etc (even if it is not forever there can still be problems).
Would you give anyone a hard time for going to grief counseling if they lost a significant person in their life? No, no one would. Becoming ill and being ill is a loss for most people.


Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 4/7/2009 10:36 AM (GMT -7)   
Hi I think we all go through this at some stage and its not nice its good that you are on medication for it try  keep your chin up sweetie it won't last forever.I went through this a few months ago but i have joined a gym and meet up with mates at least once a week just so i can have something to look forward also so i don't have time to think about whats going on with me at the mo. Hope you are soon feeling better its good that you are able to share whats going on and you will get lots of support from this site take care and stay in touch Bev x 

Jordan59
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 4/7/2009 10:39 AM (GMT -7)   
Kanditron, hang in there. I escape into books. Movies help as well. Is there a favorite you haven't seen in awhile? For some reason the movie It's a Wonderful Life always makes me feel better. I go through sad feelings during the movie but feel better with the ending.

It also helps me to see friends and talk about anything but my issues.

You mention meds -- are they for stress as well? If you haven't seen a psychiatrist, you might try that. Mine has helped me out a lot. Together we have worked out a medication plan for depression and anxiety. It took awhile to get the right combo but it was well worth it.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/7/2009 12:18 PM (GMT -7)   
I use exercise on a regular basis to cope and altering my diet in combination with exercise has not only improved my symptoms but my mind as well...both food and diet can have a huge impact on your mind/brain/emotions, eating sugar is like killing your brain and impacts how you feel and how you think/learn as well and exercise is especially important for stress, if you're stressed then exercise makes an even more noticable improvement on how to be less stressed and how to better cope with stress. Of course some people find success with taking meds to help but often that can lead to other problems, using diet and exercise to help you emotionally has no adverse effects, just good effects all around because your body physically and mentally improves with good diet and regular exercise.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/7/2009 12:59 PM (GMT -7)   
Hi Kanditron!!! Just wanted to let you know you are not alone. I have a 33 year history with this disease and in the last couple of years I developed alot of anxiety related to my Crohns. Thru therapy and the occasional help of Xanax I am now better prepared to handle it. I think exercise is a good idea too, but if you are so sick that its hard to put one foot in front of the other, thats not always the best approach.

Like Navy said, there is nothing wrong with needing therapy or medication when you suffer with a chronic illness like we do. Its not a mental problem its a medical issue. Sending good thoughts your way.

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/7/2009 6:38 PM (GMT -7)   
I really feel for you! Are you on Pred? I am wondering if one of the meds you are on could be adding to this. Take care!
Diagnosed with rectal Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/7/2009 6:48 PM (GMT -7)   
I am feeling the same way :(
I have also started to hate Remicade and I really really don't want to go to my next infusion but i have no choice :( Remicade scares me, and i was trying not to think about it but since it is not working to well for me i feel like why bother putting this poison in my body.

I try to stay active and go out for a walk or a bike ride..
Do something nice for the people around me like bake cakes(which I can't eat) or make coffee in the morning for Boyfriend.
Run errands and dived them over the week so you don't finish all in one day ;)
Talk to a good psychiatrist who can help you feel better, and follow his advice..

You can also come visit me in Iceland ;) and we can be depressed together. And take turns using the toilet :P

Good luck, i hope this will past over soon for the both of us..
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 4/7/2009 6:55 PM (GMT -7)   

Great advice given here I think. I also find that understanding that a chronic illness is also going to involve an emotional element is key to handling the feelings. You have a ‘right’ to feel hopeless and miserable about it all – we all do – people who are not physically sick get depressed for very little reason at all. I think realising that you’re depressed is the first step – you are completely justified in feeling that way.

 

Distraction is great way to deal with it short-term. I find books (escaping), movies, fresh air, getting up and going to bed at regular times (over sleeping makes my moods terrible) – try getting up early and at the same time every day…. And most of all be easy on yourself because crohn’s is so hard to come to terms with emotionally, my dr has often suggested anti-depressants for me because he says any chronic illness is likely to result in some level of depression and I have been so depressed at times that I felt like I would just crumble into nothingness…… I have considered taking antidepressants but whenever I’ve tried they’ve made me so scattered and forgetful!

 

I hope you feel better soon…..


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/7/2009 7:03 PM (GMT -7)   
Totally agree with phoebeskye86

keeping a good sleeping pattern is very good. Going to sleep at the same time and waking up at the same time helps a lot.
24 year old female
Diagonsed with Crohns disease in December 2008..
Medication - Asacol, Remicade, Entocort


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 4/7/2009 7:16 PM (GMT -7)   
Gods always there, helps me get through lots of different situation..that and booze :) j/k

Post Edited By Moderator (MMMNAVY) : 4/8/2009 6:37:14 AM (GMT-6)


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 4/8/2009 3:42 AM (GMT -7)   
I usually go with Pb4's strategy, and do voluntary work, but when I am too ill with fatigue to exercise, things change for the worse quite rapidly. Then I focus, and I escape. (All of my strategies are clear in my mind right now, I am just totally fed up at the moment and desperate to make my life happier and more productive !)
By focus, I meant that I set goals. On a good day, I have big ones, that involve being very active, maybe starting long term projects. On a bad day, like the ones I've had recently where I always end up sticking close to the loo and don't have oomph, it might be as simple as doing the dishes, tidying bookshelves, hoovering. And if possible, I try to add a fun goal - like at present, I am sowing seeds in pots on my windowsills, and eventually will plant them out (if my black thumbs don't get them smilewinkgrin). If you just have that one little triumph to think about at the end of the day, that robs the depths of despair of their omnipotence. That is a saving grace.
Escape is books, music and sleep. Books I can get through at a great rate when ill, and totally take me out of myself. And I can always tell myself that I am broadening my mind. (It may still be shallow, but it is mighty broad by now ! wink ) Music is a double edged sword when depressed. Goerge Bernard Shaw called it "the brandy of the darned" and it can cause pretty severe mood swings; in my case, it is like getting tipsy, but much cheaper (always pleasing to a Scotsman yeah ). But the right music has always allowed me to let out my feelings, and has had a calming effect on me when I am distressed.
And when all else fails, I retire to my bed, and seek oblivion in sleep. (Which also seems to stop my diarrhoeac urges, for a while after waking at least.)
And I suppose, I remember the story of the Roman Emperor. His predecessors had been a maniac who thought he ruled the world and could do anything, and a depressive who felt overwhelmed by all the myriad problems of ruling a huge empire containing millions of people. Having seen the extremes of mood these attitudes could cause, and the personal harm and instability they led to, the Emperor made sure that he had a slave standing by his side at all times. And when he went too far in one direction or the other, the job of that slave was to whisper quietly in the Emperor's ear, "This too shall pass !"
Probably apocryphal. It sounds too clever by half for a Roman Emperor. But the story reminds me that not every day is like this one, even if it feels like it will be ! eyes

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 4/8/2009 3:47 AM (GMT -7)   
{BIG BIG BIG HUGS for ALL feeling down} Heck, could use one of those myself. Life throws us some wicked curve balls. Sometimes it is just a bit overwhelming. I understand. Been crying myself of late. CD, stress, being around those that don't really give a flip, and life in general...

... but we have each other here.


-Leslie

cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 4/8/2009 5:22 AM (GMT -7)   
I have been feeling a little better since the weather started warming up--winter is always difficult even when I didn't have this disease. My kids keep me going too! My 16 year old has her first boyfriend and he is very sweet and kind. So right now I'm doing pretty good!!
age 41,diagnosed with CD in 11/07, Rx Pentasa 4000mg and Remicade.

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