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MOC
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/8/2009 12:43 AM (GMT -7)   
Anyone ever experienced foot drop? My 15 yo on remicade 1 yr has developed it in both feet, worse in right. Told not to worry by neurologist at Children's hosp. Common in skinny kids. They ordered some blood work to r/o malnutrition, thyroid, etc. Ques is it related to remicade or to Crohn's or nothing at all. She has also been having breathing difficulties during the infusion. Now using benadryl, steriods and a slow rate to see if it can be tolerable.

SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 4/8/2009 11:23 PM (GMT -7)   
Welcome to Healingwell MOC, it's a great place to come for compassion and advice.
Im unable to help with your question, hopefully someone will come along soon with an answer for you. Just wanted to welcome you.
Jo

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/9/2009 6:14 AM (GMT -7)   
MOC,
I would get a second opinion and an MRI of her brain just to be sure. Foot drop is not unknown in autoimmune diseases, but let's rule out other things.
TC,
Navy
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 4/9/2009 5:39 PM (GMT -7)   
Hi. My husband was in the hospital for 6 weeks with crohn's and a c-diff infection. They started him on remicade, and within a few days, he developed foot drop on his right foot. His gastroentrologist was confident that he had injured his peroneal nerve in his right leg, causing the foot drop. In any case, he was in such bad shape at the hospital, that we didn't have a choice but the continue with the remicade, because that seemed to be helping his gut.

Once he got out of the hospital (3 infusions later), we went to see a neurologist, and she did a nerve conduction study, and said that the nerves is both his extremeties are conducting very slowly, and of course the right side was worse than the left. She was suspicious of remicade, but said that we just need to keep an eye on it since it was remicade that got him out of the hospital. She got an MRI of his head and neck, and verified that he had no lesions. Then, the plan of action was to continue the remicade. She had a baseline of how well his nerves were conducting, and every subsequent infusion, he went back for another nerve conduction test + mri.

What we found that as crohn's got more under control, and he started absorbing more nutrients, his nerves actually started conducting better. Even though when the neurologist checked his blood everything looked okay, the nerve damage happened because of the flare, and him being malnourished because of it. Also, the nurses at the hospital insisted on him wearing those leg circulation things, because he was a clotting risk, and it's my theory that they also wrapped it too tight. When a person loses weight and becomes very skinny, they are very prone to nerve damage - in fact, just crossing your legs can cause injury to the peroneal nerve bundle causing foot drop! My husband was in the habit of crossing his legs, and the nurses were wrapping his legs in that circulation thingie too tight - those 2 factors in combination with him losing 45 lbs in the hospital and being malnourished led to his foot drop. The remicade was purely coincidental in his case - there was no connection between his foot drop and remicade - in fact, the remicade helped him get better.

All this happened last year in April, and he was back home in May. Since then, he's been taking a lot of supplementation to rebuild nerve sheaths, and has also gone to physical therapy to restore movement. They taught him exercises to put back some of the muscle that he lost while being sick (and weirdly, his right side lost more muscle mass than his left side), and also put him on nerve stims to stimulate those nerves. At his last PT appointment where he was released from their care, he had restored about 80% of the movement, which puts him in the normal movement range, and he can walk and run without issue. In the meantime, we've gone to a once a year get an MRI schedule with the neurologist, just to be on the safe side.

I hope this information helps your son.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, and in crohn's remission, knock on wood


MOC
New Member


Date Joined Apr 2009
Total Posts : 2
   Posted 4/13/2009 1:41 AM (GMT -7)   
Thanks for the info. In our case we do have a 10% body wt loss (9 lbs). We go in for conduction tests this week. I have asked for PT but they say we need to wait. Guess we will just wait and see.
MOC

Roliie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 5/12/2009 5:35 PM (GMT -7)   
First time on the site, question for PV. My husband is in a situation similar to what you decribed. He developed foot drop 3 months ago after a long long stay in the hosptial with perf bowel/Toxic mego colon/septic shock complications. What you say regarding weight loss and stockings, malnutrition and in hospital and lots of sitting for 70 days makes sense. He has had ncs and emg plus mri. No one can figure what is causing the foot drop. He has an adominal abscess that is being drained for the 3rd time, this time for the past month. He has had physio for 2 months and homeopathy now give the chiro a try. What supplementation are you using for nerve rebuild? Any thing else anyone can share. My husband appeared perfectly healthy until developing UC last summer and it went from bad to worse real fast. I should add he also developed c-dif in the hospital. His pain started on his sit bone and now is leg and foot - sciatica we think.
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