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arrowslinger
New Member


Date Joined Mar 2009
Total Posts : 7
   Posted 4/8/2009 9:12 AM (GMT -7)   
Hey everyone, I am sitting home recovering from my 2nd resection and am seriously considering adjusting my diet. I have been avoiding all high fiber stuff like raw veggies, seeds, nuts, etc. Recently started a new job which requires me to pack a lunch and would like to start eating 2-3 smaller portions as opposed to a "lunch" but am having a hard time deciding what to eat. Obviously, granola bars, most fruits, etc. are out and I am having  a real hard time figuring out what to take. Also, just curious what kind of diets everyone is doing and what success they have had. I know by clinical trials food isn't supposed to cause flare ups but I think most of us feel they do. Anyway any advice would be awesome!! Oh, another biggy is what do you guys order when you go out with friends or whatever? Thanks!
25 year old male, living the Mtn Life
Diagnosed with Crohn's may 05, Resection Oct 05 & Again April 09,
Pentassa, Immuran, Prednisone
"Trusting God to never give us more than we can handle"


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/8/2009 9:21 AM (GMT -7)   

Our diets are pretty individual, what works for one doesn't always work for all.  I personally live on a low residue diet.  I eat alot of fish, chicken and turkey.  I no longer eat any red meat as it doesn't digest well with me and gave me alot of obstructive episodes.

I would recommend you keep a food diary to keep track of which foods irritate you and which foods agree with you.  Eventually you will figure out what foods are best for YOU.

Some folks also have luck with the SCD or Makers Diets.  These are very strict and for them to work you have to follow them to a tee.  Not all have success with the diets, but some do.  Good luck!


Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 4/8/2009 9:31 AM (GMT -7)   
I find hard boiled eggs good. yogart is easy to take in a container. apple sauce and oh yeah ensure woks wonders for nutrition. Soups are good but make sure the containers don't leak and that's what I eat when I go out with friends too. It's all a process to find out your individual needs. Good luck!!

yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 4/8/2009 10:21 AM (GMT -7)   
I only restrict my diet during a flare. Life is too short and I like food way too much and if I ever hear my doctor say food doesn't cause a flare I'm going to punch him right in the mouth! There are a handful of foods that will cause me to flare every single time. It's sad when a patient knows more about a disease then the pro's do but thats the case with Crohn's....and probably others. I'm not mad, just venting.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, Flagyl, B-12 injections and iron. Feeling much better!
God Bless. Tony


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/8/2009 1:28 PM (GMT -7)   
I've been following the Specific Carbohydrate Diet (SCD) for 4 months. I think it's great, even though it is restrictive (no sugar, gluten, lactose, or starch). If you're interested, I can give you a ton of websites to find info and recipes.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods


cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 4/8/2009 1:29 PM (GMT -7)   
I'm with you yellowfin--I love food and this disease is not going to stop me from eatting!!!!!
age 41,diagnosed with CD in 11/07, Rx Pentasa 4000mg and Remicade.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/8/2009 3:58 PM (GMT -7)   
Some packed lunches that work for me:
* white rice, boiled with finely diced root vegetables (carrot, suede, turnip, etc). Add a chopped hardboiled egg, and maybe a bit of steamed chicken too. You can make a similar salad with white pasta. Pack in a plastic container, keep as cool as you can, then eat.
* cook white rice or pasta, add a tin of tuna or salmon, and whatever low res vegetables you can handle.
* a sandwich: white bread, with sliced steamed root vegetables, and maybe a bit of steamed chicken
* a "salad" of warm steamed / baked root vegetables and zucchini with a bit of vinegar, if you can handle it
* fritters made of grated root vegetables
* "hamburger" - a white bun spread with mashed potato (weird, I know, but it soothes the gut) and a rissole, and maybe some sliced steamed carrot as well
* white mountain bread - spread with mashed potato as above, and add lean sliced meat and a few lightly steamed carrots / zucchinis / whatever

Snacks:
* pikelets, with grated apple or sliced banana added to the batter
* a home-made low-sugar cake that is based on low res fruits or vegetables. I have a carrot and apple muffin that I like to make, a few apple cakes, pumpkin muffins, things like that
* soy or dairy milk; soy or dairy yoghurt
* a banana
* a small tub or apple puree or similar
* fruit juice

You can also make and pack a frittata - eggs, whatever vegies you can handle, maybe a bit of cheese if you can cope with that.

Hope this helps,

Ivy.
Co-Moderator Crohn's Forum.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/8/2009 6:00 PM (GMT -7)   
I have a really hard time digesting most stuff.
safe foods for me are more like mash potatoes, pudding, jello, sourdough bread if I am adventurous, crackers, steamed to pretty much fork apart turkey and chicken.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


arrowslinger
New Member


Date Joined Mar 2009
Total Posts : 7
   Posted 4/8/2009 6:16 PM (GMT -7)   
It sounds like maybe I have been on the right page, or not super far off. Thanks for all the hints. I know part of my problem is between, two jobs, and new baby, etc. I don't take the time to pack a lunch all the time and then end up either skipping or eating junk!! I'm with you guys on the loving to eat though, it's a real tough balance sometimes. Some randum things I am curious about for others are Coffee? (recently gave up my morning cup for tea, don't know if it helps yet), I eat lots of eggs, Always wondered about seeds, like jalepeno's in stuff, or strawberries, and then what about fried food, ie. fried eggs, fast food, fried chicken etc. Just curiuos what experiences everyone else have had. I know we are all a little different, but I seem to find some common threads as well!!
25 year old male, living the Mtn Life
Diagnosed with Crohn's may 05, Resection Oct 05 & Again April 09,
Pentassa, Immuran, Prednisone
"Trusting God to never give us more than we can handle"


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2088
   Posted 4/8/2009 6:34 PM (GMT -7)   
Well arrowslinger, I remember when I first came to this forum, it really struck me from the posts that CD came in different "flavours" - people fell into different categories of what sorts of foods would be okay, or make them ill. You find the flavour you have, tweak it (that's the hard bit) and hey presto, suddenly you have some kind of a handle on things, until the dreaded flare occurs. And of course if that is so, then taking a whole heap of people at random who don't manage their diet properly and looking to see if there is any appreciable difference in their health outcomes...well, it isn't really likely to be good science. And surprise surprise, what the studies say is contradicted by the people who know best.
eyes I'm with yellowfin - diet doesn't cause Crohn's, in the same way that feeding tartrazine to a child with hyperactivity doesn't make it misbehave ! shocked yeah
Me, I find that keeping to a gluten and dairy free, low salt and sugar diet makes a huge difference. Also, and I wonder how much this is a problem for other Crohnies, I find I am sensitive to some of the sprays or chemicals associated with non-organic foods; or maybe it is that they are lacking certain minerals or beneficial chemicals, like magnesium or salicylates, found in larger quantities in organic foods. That was a tough one to sort out, because it depends on what the individual growing or processing history of a food ingredient is.
For snacks I use homemade bread (gf bread is easy to make in a breadmaker) and oatcakes, often soup in a thermos when it is cold, failing that mixed grains and tomato sauce or mayo with steamed vegetables. Linseed and probiotics are two things I eat a lot more of whenever my gut plays up, they turn down the ring under the boiling pan.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/8/2009 6:41 PM (GMT -7)   
Sno, how did you diagnose your sensitivity to chemicals on non-organic food?

Like you, we grow a lot of our own, so I thought I could get away with using 50% shop-bought fruit and veg, as the other 50% came from home, where we use no chemicals. But maybe I am wrong in thinking that way...?
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/8/2009 6:43 PM (GMT -7)   
Oops, sorry, I just realised that I've hijacked a thread. Sorry. Sno, if you reply, would you be able to write in a new thread, please? Ta - I.
Co-Moderator Crohn's Forum.


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 4/8/2009 10:21 PM (GMT -7)   
arrowslinger,

My food diet is pretty bland but works for me! Basically I have an egg and goats milk for lunch, goat yogurt for a snack (they have some pretty good flavors...i don't recommend trying plain!), a piece of baked chicken for lunch, a snack before dinner, and a piece of fish with steamed veggies or rice for dinner.

I've gotten a little more bold lately and started introducing oatmeal and things, but I'm not quite sure how I feel about that! I guess I'm still experimenting!

Good luck! I hope you find something that works!!

-Em
turboemma.blogspot.com/


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 4/8/2009 11:27 PM (GMT -7)   
When badly flaring I live on tuna and white rice, mashed potatoes and salty crackers - but thats just what seems to help for me.
Jo
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