painful bones?

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MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 4/10/2009 12:55 PM (GMT -7)   
In particular in the thigh area.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/10/2009 2:15 PM (GMT -7)   
yeah  i HAVE HIP PAIN FROM MY ATHRITIS WHICH TRAVELS DOWN MY THIGHS BUT COULD IT POSSIABLIY BE AN ABBCESS ON THE PELVIS CAUSING PAIN IN THE HIPS,I HAD ONE THAT LAIDED ON MY SIATIC NEVRE AND CAUSE EXTREME PAIN IN MY HIPS AND THIGHS,I HOPE THAT IS NOT OUR PROBLEM BUT IT SHOUNDS SO FIRMILAR cry TO ME MAYBE ITS ARTHRITIS OR HAVE YOU BEEN WORKING OUT ALOT LATELY.I hope that helps you a little bite good luck.Your Bowel Buddy Jenn smurf .
i love this site a friend found it for me.Another one would ccf crohnes and colitis foudataion


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/10/2009 2:31 PM (GMT -7)   
Thanks Jenn, unfortunately yes I do have arthritis, but this is a new symptom and it is deep throbbing bone pain and towards the middle. I have fractured this area before, but dang this hurts and it is not broken.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 4/10/2009 2:53 PM (GMT -7)   
Hi,same here but mine goes to my knees as well i feel like i have ran a marathon!!!!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/10/2009 3:12 PM (GMT -7)   
Yes, I experience this too and have many diagnoses and tentative diagnoses to explain it.

How are you sleeping, Navy? Is fibromyalgia a possibility?
Co-Moderator Crohn's Forum.


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 4/10/2009 3:18 PM (GMT -7)   
What meds are you on? Do you get regular blood work? When was the last time you got blood work done?

Kriss
Regular Member


Date Joined Mar 2005
Total Posts : 357
   Posted 4/11/2009 4:23 AM (GMT -7)   
I get bone pain in my left thigh and sometimes it's so bad it goes down the back of my knee and into my foot. I've found that it's worse when I'm on higher doses of prednisone.
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade


omigrandma
Regular Member


Date Joined Dec 2008
Total Posts : 57
   Posted 4/11/2009 4:31 AM (GMT -7)   
Hi Guys, I am in a similar position as I have been diagnosed with Fibromyalgia as an outgrowth from the Crohn's and Colitis. I have pain in my neck, knees, shoulders, back and even my ankles. I was hoping the Remicade would help and the Rhumatologist has me on 60mgs of Cymbolta and 2 weeks ago he gave me 4 shots of Cotisone in my neck and back but that didn't seem to do much. I take so much medicine for the Crohn's including 24 drops of Opium a day so one would think something would help with the pain but so far nothing. On good days, I work out as much as I can and I find that swimming is the best but when I spend as much time as I do in the potty, that's not always possible.



Meds include: Remicade, Lialda, Opium, Pamime, Cymbalta, Crohn's, Colitis, Fibromyalgia and depression
Atacand, for high blood pressure,
Topamax, Neurontin, Lovaza, migraines
Lipitor
Synthroid, for and under active throyoid

Texan with Crohn's
Regular Member


Date Joined Dec 2007
Total Posts : 362
   Posted 4/11/2009 6:46 AM (GMT -7)   
MM -

Now that I have full blown CD arthritis, it seems every bone I have injured, most especially the vertebrae I fractured 14 years ago, hurt like holly heck. It's a constant throbbing pain, especially when there's weather pressure changes. I've been slathering myself with an NSAID cream that we call the "stinky cream". It helps a some.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/11/2009 8:25 PM (GMT -7)   
Navy, if I were in your shoes, with deep pain in a bone that was previously fractured, I would make sure I got an MRI of the painful area. Avascular necrosis occurs not only from steroid usage but is an extraintestinal manifestation of CD. I vividly recall the pain when my femoral heads died - not something I would care to do again.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 4/11/2009 9:56 PM (GMT -7)   
For bone pain - Osteopenia - see: Recent research reveals how important Vitamin D is in Osteopenia treatments!. It is interesting to note that the article says that people living North of the 42nd parallel (or South of the Southern 42nd parallel) do not get enough vitamin D in winter. This is not to say that vitamin D is the solution to the problem - just that it is a simple thing to try with few hazards associated with it. Ask your doctor about the article.
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