What is the most toxic food for your Crohn's tummy?

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Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 4/10/2009 5:21 PM (GMT -6)   
I have given up wheat it seems to do bad stuff on my joints, pain goes away if i don't eat wheat. Also it almost stops the bleeding from my colon.

But the food that is the most toxic for me is Pizza :S And i just had one for dinner :s looking forward to the incredible joint pains tomorrow .
But I was worth it I think, I will tell you tomorrow if I still feel the same way :)

What is the most toxic food for you ?
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~

Regular Member

Date Joined Feb 2009
Total Posts : 139
   Posted 4/10/2009 7:58 PM (GMT -6)   
popcorn.....destroys my jpouch...
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009
Current meds: 500mg 2x's daily cipro, 800mg xifaxin, 9mg entocort, Humira (started 3/23/09), synthroid

Regular Member

Date Joined Mar 2009
Total Posts : 50
   Posted 4/10/2009 8:09 PM (GMT -6)   
popcorn, nuts, seeds, whole grains, and lettuce! lettuce is the absolture worst!

Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 4/10/2009 8:15 PM (GMT -6)   
I, personally, avoid regular milk like the plague. Organic stuff doesn't seem to be too bad, but just regular ole' 2% blue-top milk is like cryptonite for me!

I'm still loving the gluten-free improvements, and I even found a wicked-tasty brownie mix that is just SINFUL. Trouble is, what do you want with a good, warm brownie? A BIG ole glass of milk, of course. Rice milk just does NOT cut it. Ah well. At least I have the brownies!!!
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
Noticing a real difference with a Gluten-Free diet.
Currently on:
Cimzia (loading doses 2-12-09)
Probiotics, Digestive Enzymes, and Prednisone

Regular Member

Date Joined Apr 2009
Total Posts : 45
   Posted 4/10/2009 9:29 PM (GMT -6)   
patientspiders...where can I find that brownie recipe? :)

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Date Joined Jul 2005
Total Posts : 733
   Posted 4/10/2009 9:42 PM (GMT -6)   
MM, I don't have a recipe - it's actually a pre-made mix bag from the grocery store. I'm lazy like that.

The brand is "Namaste". It comes in a brown and purple paper bag. MMMmmmm so very tasty. If your grocery store doesn't have it, Whole Foods always does. It runs between 5 and 6 bucks I think, but it is so worth it, and it makes a regular 9x13" pan's worth.
27f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade '05 through '08, with no other maintenance meds
Noticing a real difference with a Gluten-Free diet.
Currently on:
Cimzia (started 2-12-09)
Probiotics, Digestive Enzymes, Forvia vitamins, and calcium chewies
Prednisone free, again! WHOOPIE!

Regular Member

Date Joined Apr 2009
Total Posts : 85
   Posted 4/10/2009 10:02 PM (GMT -6)   
I have depleted my diet of almost anything tasty at this point, and it was well worth it! Since removing ALL grains, sugar, and dairy products, my life has changed for the best! But as far as the very worst thing I could eat... Hmmm, well, sugary things make me sick almost immediately. I LOVE ice cream, but having a bowl of that stuff is self-inflicting pain on myself! I will do soy ice cream occasionally, but that doesn't always sit right w/me either. Oh well, and to think I have always loved baking and once thought of being a pastry chef! Ha! That would be torture, I'm sure.
Currently taking: Humira 40mg/every other week, Zoloft 50 mg/day, vitamins and supplements
Have taken: Cyclosporine, Pentasa/Asacol, Aciphex, Imuran, Sulfasalizine, Cipro & Flagyl, Prednisone, various pain med's, Xanax
Surgeries: Appendectomy 2001, Ileocecotomy 2007

Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 4/10/2009 10:29 PM (GMT -6)   
I love to bake and decorate cakes and it does not bother me that i don't get to eat them :)
But i hate not being able to go to McDonald's and order a cheese burger..
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~

Regular Member

Date Joined Apr 2009
Total Posts : 45
   Posted 4/11/2009 12:06 AM (GMT -6)   
patientspiders...thanks! ill look for it!

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 4/11/2009 12:10 AM (GMT -6)   
Anything spicy...I tried it once while sick and will never do it again.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Oct 2008
Total Posts : 1342
   Posted 4/11/2009 1:37 AM (GMT -6)   
French fries always did me in. I think the problem was that I'd eat too many, at the neglect of whatever else I ordered. I used to love to drink milk too, and would usually have 3 cups a day. But right before I started SCD, it started to make me feel kind of bloated. But I'm with you patientspiders, whenever you have something like a brownie or cookie, there's got to be a nice glass of milk to go with it!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium
SCD since 12/01/08 - eating Stage 2 foods

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 4/11/2009 8:58 AM (GMT -6)   
Broccoli is my bad food. I loved broccoli as a kid, and if it didn't bother me, I could eat it just about every day. My body hates it though, it runs right through me, wreaking havoc and creating pain on it's way.

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05
Currently on Humira, Prilosec, Effexor, Seroquel, Calcium, Vit D, sublingual B12; phenergan, ultram, clonazepam as needed

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/11/2009 9:11 AM (GMT -6)   
I am with bar77, broccolli kills my guts. skull
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Apr 2006
Total Posts : 686
   Posted 4/11/2009 11:14 AM (GMT -6)   
Just Starbucks coffee drinks and hot cocoa. I'm fine with both from other places.

Remicade and 6MP

Regular Member

Date Joined Mar 2009
Total Posts : 52
   Posted 4/11/2009 11:35 AM (GMT -6)   
Black Beans!

Regular Member

Date Joined Dec 2008
Total Posts : 57
   Posted 4/11/2009 11:43 AM (GMT -6)   
Hi, I have had Crohn's and Colitis for 30 years and have only followed this diet for the past year. I eat no gluten, no wheat products whatsoever, no dairy of any sort, and no fresh vegetables and fruit. Of course living in South Florida, that's a killer about the fresh fruits and and vegetables! I am on Remicade, liada, opium and pamine for the Crohn's and Colitis and in all these years I have never been in remission. There have been times where I have had fewer trips to the potty but the GI is still trying to find the right combination of meds. But I do really believe in the diet because I know, for example when we used to go out to eat, if something was cooked in regular butter, I got really sick and had stomach pain in addition to all else. I also get B12 shots monthly and take Calcium, Vit D, Lovaza (fish oil), Flora Q, Biotin, Iron, and Centrum Liquid Vits with minerals. It is really difficult not eating any foods with gluten or lactose but I really believe it is worth it.

PS We never go out to eat anymore because it just isn't worth it for me. It hurts too much!!

Veteran Member

Date Joined Apr 2004
Total Posts : 2284
   Posted 4/11/2009 4:19 PM (GMT -6)   
Green bell peppers will cause me to flare within a half an hour after eating them. They are the one thing I know I absoluetly have to stay away from.

We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.
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Dx'd with Crohn's at age 12. Symptoms since age 5, RLS, Depression, Anxiety, and down right feel yucky some days.
Learning to live with this Disease rather than be its victim after 36 years.

Regular Member

Date Joined Apr 2009
Total Posts : 21
   Posted 4/11/2009 4:30 PM (GMT -6)   
raw broccoli

any kind of veg or fruit will eventually trigger me as does popcorn, but raw broccoli will land me in the hospital quicker n you can say "pooh"
"Live the light, light the love, smell the coffee, eat more flowers, don't forget the faeries, mind the moon and, remember, what goes out comes back in a big way!" Kat Smithey A Dianic Witch...
53 year old woman, bald, cranky :)
diagnosed 20 yrs ago - in "remission" for 6 years!~

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 4/11/2009 9:51 PM (GMT -6)   
i miss you popcorn and pistachios!
SCD since 01, remission since 01, occasional Arby's breaks :)

Forum Moderator

Date Joined Nov 2003
Total Posts : 7056
   Posted 4/11/2009 10:43 PM (GMT -6)   
Romaine lettuce - actually all lettuce - even one-half leaf on a sandwich. I have recently discovered that young, very tender leaves of red or green leaf lettuce is okay in small amounts.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.

Veteran Member

Date Joined Dec 2006
Total Posts : 559
   Posted 4/12/2009 2:57 AM (GMT -6)   
petittarte said...
Just Starbucks coffee drinks and hot cocoa. I'm fine with both from other places.

Pretty much any coffee does me in. Ditto for tea and cola - that is, anything with caffeine.
Crohn's since 1988
3 resections

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 4/12/2009 5:59 AM (GMT -6)   
Hi mine is Milk, lettuce and mushrooms nono

Regular Member

Date Joined Sep 2008
Total Posts : 28
   Posted 4/12/2009 6:50 AM (GMT -6)   
hiya. with me its nuts and beans

Regular Member

Date Joined Mar 2005
Total Posts : 357
   Posted 4/12/2009 7:35 AM (GMT -6)   
DAIRY DAIRY DAIRY... I had a bowl of cereal yesterday for breakfast, idk what I was thinking! But I felt it all day :( also, peanut butter, anything with coconut oil in it, or seeds in/on it, pork, fried foods....
Ides - in place of lettuce, I've found that field greens or spring mix, or spinach work well as a substitute!
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade

Regular Member

Date Joined Aug 2008
Total Posts : 305
   Posted 4/12/2009 7:45 AM (GMT -6)   
I have to avoid beans, corn, nuts, mushrooms and anything that doesn't digest well. I am like you, I have the arthritis from Crohns and usually pizza, hamburger, and most fatty meats cause my arthritis to flare big time but..........I still indulge myself occasionally. I look at it this way, I love good food and the stuff that bothers me the most is usually my favorite stuff but I'm going to treat myself to it no matter what it wants to do to me. There is a pizza place here in town called Maria's Pizza. It has been around for over 50 years and has by far the best pizza I have ever eaten. I know when I eat it I'm going to pay for it but I can't imagine life without it so "poo" on Crohn's disease. lol. By the way, sometimes if I'm very lucky I can get away with it and not get sore joints so it's sort of like gambling and I love a good poker game. Best wishes, Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony

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