Constant bleeding

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poppy100
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/11/2009 2:38 AM (GMT -7)   
Hello everybody. Just would like to say that I've been reading many posts throughout the months and now thought it was time for me to contribute somewhat. This forum is excellent and very active and I'm hoping it will help me with some of the issue's I have currently.
 
My story goes back 10 years ago to the time when I had a polyp removed and then a colonoscopy procedure to follow, the results were inflammation in the ileum and Crohn's. My symptoms at the time were pain located at the left lower side with slight diarrhoea.
 
Now through the years I have suffered with rectal bleeding on and off, ( more on however ) Medication up to this point was Pentasa 1500mg. Now going up to recent times ( last year ) I had another colonoscopy done because of the bleeding. My GI found intestines to be all OK which was strange because my bleeding was still present. I'm really worried at the moment because the bleeding has got alot worse and is happening with every bowel movement. My GI has put on uniroid first of all but to no avail, now I'm taking Ascol 250mg suppository 1 per day. ( started yesterday )
 
This persistent heavy bleeding is starting to get me rather concerned now. I just wondered if anybody out there had or is having any similar issues?
 
Thank you all so much.
 
 

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/11/2009 2:52 AM (GMT -7)   
How much blood are we talking about, Poppy?
Co-Moderator Crohn's Forum.


poppy100
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/11/2009 5:06 AM (GMT -7)   
Hi there Ivy.

I'm bleeding during every bowel movement and leaking some after for about 20 Min's, its hard to say the amount but I would guess its around 3 teaspoon fall's. Bright red. I don't have any diarrhoea.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/11/2009 7:18 AM (GMT -7)   
Could it possibly be bleeding from external and internal hemmoroids?
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 4/11/2009 9:17 AM (GMT -7)   
Poppy - I'm a bleeder too. That happens to me daily, but it takes a toll and though I have to remind myself, it's not normal. Have you tried CortEnemas? A different enema with cortisone in it. It sounds like you've got some rectal disease too? Is that why you're on the enemas? That's why I bleed - my rectum is badly ulcerated.

Maybe it's time to talk to your doctor about a stronger medication? Has the doctor ever mentioned any of the immune modulators? Then again, I found the Cortenemas to be quite effective with rectal bleeding.

It's a scary thing to happen so regularly. I'm so sorry you have to go through this!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 not enough response
--currently taking budesonide suppositories, 3mg at night.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/11/2009 11:31 AM (GMT -7)   
If this is a new symptom then be sure to get the doc to check it out, don't leave it to see if it will clear up on it's own, it may get even more out of control and the more out of control the harder it will be to treat.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


fldirt
Regular Member


Date Joined Apr 2009
Total Posts : 30
   Posted 4/11/2009 2:02 PM (GMT -7)   
Poppy100,
Before I was dx with Crohn's in 1978, I too was bleeding with almost every bowel movement. I was in nursing school at the time with lots of stress. I was going between diarrhea & constipation so I had it checked out. Turns out I had lots of anal fissures that were bleeding when I had a solid BM. The doctor had to sew them up & I had to have a unit of blood & that was when they said I had Crohn's. So has your doctor done a look see to see if anything is there? Proctoscopy ,Sigmoidoscopy?
Take care

poppy100
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/11/2009 2:35 PM (GMT -7)   
fldirt, thank you for your reply yes doctor has done sigmoidoscopy,but seemed confused as to what it is said maybe colitis,bowel protruding, or my crohns,even mention burst blood vessels, but as i said this has been going on for long time.i did not kow the medication was enenmas .i was on . thanks to any one who answered.

poppy

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/11/2009 4:15 PM (GMT -7)   
I have been bleeding none stop for 6 months the doc says that he cant do anything for me so i just wait and wait. I stopped eating wheat and the bleeding has stopped for the most part. I just get regular blood tests to see that i dont need blood or iron. Good luck it is hard to see all this blood coming out me your bottom.
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/11/2009 4:28 PM (GMT -7)   
A bleeding crohnie often indicates that there is disease activity in the colon/rectom region and there is something your doc can do to try and aid with it, rectal meds would be necessary if your rectom has disease activity going on.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 4/11/2009 7:54 PM (GMT -7)   
Poppy100, I bled so much for awhile I was so anemic I couldn't function very well. I had iron and B12 shots that helped get some energy. Started to recover a little. I agree it sounds like rectal problems that might need more serious attention. Since I started stool softeners it has really helped my battered rectum and bleeding has almost stopped. med. enemas great too. Hope you can find the answer and feel better soon.

lovemyboys09
Regular Member


Date Joined Apr 2009
Total Posts : 249
   Posted 4/16/2009 8:55 PM (GMT -7)   
I have been bleeding for the past 1 1/2 years every time I have a bm. I am taking 12 asacol a day and now take proctifoam enema beacuse the canasa supp wasn't working. It is scary for me at first but since its been going on so long I tend to ignore it. My GI knows its going on and we are trying different things....he keeps reminding me its not normal because I kind of blow it off. I went and saw him today and I have had joint pain and stomach pain and I told him that it sucked but I have to laugh and keep a good a attitude because I have a 5 year old and a 7 month old and feel like a 90 yr old with joint pain. If I don't laugh and stay positive....I would sure be crying by now.
Diagnosed w/crohns in October 07
Taken off meds January 08 because of pregnacy
Back to gastro Dr. January 09 (new dr.)
Diagnosed w/ UC instead; told should have never gotten off meds
taking Asacol and Canasa
Flaring still as of 04/09
 


WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 4/21/2009 10:46 AM (GMT -7)   
I have just got a bad period of bleeding under control. I had to go on IV Sudo-Medrol in hospital for a couple of days. The bleeding was because of inflammation in my rectum. I am using various rectal meds now to keep things under control until the flare-up is over. I don't think you should accept that the bleeding is just happening. The GI team at the hospital were clear that it should be under control even though my gastroenterologist was much more conservative. He made me wait several weeks, until finally I took myself to the emergency room and the doctors there took over. I'm glad I went, as the bleeding was miserable.

ExJohnson
Regular Member


Date Joined Feb 2009
Total Posts : 128
   Posted 4/21/2009 2:05 PM (GMT -7)   
Hey everyone,

I have very similar experiences and very recently too. TMI for sqeamish, skip ahead, straining on the toilet two weeks ago, I could see blood literaly spraying on the toilet bowl.

Fortunately, I am taking antibiotics and some hydrocortisone suppositories, and they have really turned me around in the past five days. It's a ten day treatment, so I'm going to go the full ten, and then call my doc. I couldn't walk ten days ago, and now I feel much better. Hope this helps someone.
I am a pre-30yr. old who has been diagnosed with Crohn's for 14 years.  Symptoms change from cramping and weight loss to severe anemia with fatigue and diarrhea. 
I'm DONE (D-O-N-E, DONE!!!) with immuno-suppressants.  Tremble, yee Pharmacuetical companies, for you will not withstand the aggressive onslaught of our healing!
new prescription from natural doc,
3.5 grams Chlorella daily.
4.5 mg Low Dose Naltrexone nightly. 

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