<<<mouth sores crohns or not please help broke out of hospital # days ago dont want to go b

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onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/11/2009 1:44 PM (GMT -7)   
devil   I wrote yesterday about sores in my mouth i thought at first it was thrust but its not just got out of the hospital dont want to go back but my mouth is killing me i cant eat it hurts to bad,the roof of my mouth is peeling and my tough is cracked wide open in small slits and as soon as i drink it feels like i am putting staight acid in my mouth,could it be crohns in my mouth what is it i never had it before,i am on Humira now could that be the problem.Please help me i am in great need and want to stay out of hospital if i could???Your Bowel Buddy Jenn. yeah
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/11/2009 4:28 PM (GMT -7)   
Hi Can you call emerg. or go to outpatients ? Is this the first time it has happened.. doesn't sound like it is much fun.. Hope you get some relief soon.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail
"Blessed are those that can give without remembering and recieve without forgetting ~Aurthor Unknown~


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/11/2009 4:31 PM (GMT -7)   
This is Crohn's i would say. I dont have any advise for you unless to go to the hospital :( good luck
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/11/2009 6:20 PM (GMT -7)   
Hello Jenn,

Was your mouth and throat sore when you got out of surgery? If it was, your thoat might be raw from the breathing tube they inserted when you were under anesthesia. It can take days to heal if they were rough with it. If this started after you came home, do you have any other new symptoms -- like a rash or itchiness, which could be a drug reaction.

I suggest you call your doctor and tell him what has happened. If you can't contact your doctor, call the ER and ask to speak to the doctor on call They may be able to shed some light on this.

I hope you get relief soon!!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/11/2009 7:10 PM (GMT -7)   
I agree with all the others.

In the mean-time, if you can possibly stand it, rinsing your mouth with salty water might help. I *know* this will hurt like billy-o, so only do this if you can cope with the pain.

But yes, I think this is something you need to discuss with your doctors. It could just be a bad case of oral thrush, but it could be a number of other things too. Whatever it is, it sounds nasty, so I think you do need some professional advice.
Co-Moderator Crohn's Forum.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 4/11/2009 10:02 PM (GMT -7)   
Sounds a bit like a real major Crohn's-associated "rash" or allergic-type reaction. about the only fast solution might be more prednisone - but you need to see a doctor - probably a dermatologist or? and soon.

onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/12/2009 5:41 AM (GMT -7)   
gachrons said...
Hi Can you call emerg. or go to outpatients ? Is this the first time it has happened.. doesn't sound like it is much fun.. Hope you get some relief soon.. lol gail

smhair Hi Gachrons thanks for your reply down here our ER is so busy the wait time is anywhere between 6 to 10 hours,and i really dont feel that well to sit and wait but i may have no choice this morning i woke up throwing up really sick to my stomache and i got a metalic taste in my mouth,i have been using Nystatin oral wash for thrush its helping some with the pain.I think i will go to the clinic this afternoon if there open but maybe cause easter there closed i am not sure.Thanks Your Bowel Buddy Jenn smurf .
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/12/2009 5:50 AM (GMT -7)   
Keeper said...
Sounds a bit like a real major Crohn's-associated "rash" or allergic-type reaction. about the only fast solution might be more prednisone - but you need to see a doctor - probably a dermatologist or? and soon.
idea Hi Keeper how are ya? I am on Prednisone now could that be the problem i guess i am worried it might be Crohns in my mouth,however i was put on 2 new pills only in the hospital for my kidneys but would i just get a reaction now i am going to go to the clinic if there open,i never even thought of an allergic reaction i got all kinds so allergies,Tuesday i go to the city to see my GI about increasing my Humira i would like to wait to see her cause she knows my history so much better than any doctor here.Thanks for your response. Your Bowel Buddy Jenn yeah .
.
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/12/2009 6:22 AM (GMT -7)   
isergodur said...
This is Crohn's i would say. I dont have any advise for you unless to go to the hospital :( good luck

:-) Thanks Isergodur i would say that it is my crohns to i dont want it to be,i go to Halifax on Tuesday to see my GI and my kidney doctor so i guess i will know than i dont think our clinics are open today being easter sunday and all and the ER if you dont go in by ambulance you wait for hours and i dont feel that good to sit that long and maybe they wont know the problem they will for sure in the city i am glad i got an appointment so quick.Thanks again Jenn yeah
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/12/2009 1:24 PM (GMT -7)   
Hi Jenn Let us know how things are going... lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail
"Blessed are those that can give without remembering and recieve without forgetting ~Aurthor Unknown~


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/12/2009 2:19 PM (GMT -7)   
I use oral ladocaine on my mouth sores, but please see a doc.
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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