Can Crohns keep you from losing weight?

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Regular Member

Date Joined Jul 2008
Total Posts : 82
   Posted 4/12/2009 2:23 AM (GMT -6)   
I was diagnosed with Crohns in May 2008.  Looking back I guess I had a lot of symptoms over the years.  about 6 years ago I started becoming extremly fatigued to the point that I couldn't keep my eyes open at stop lights and I started gaining weight for no reason.  My diet or routine hadn't changed.  After being diagnosed, I was hospitalized in August and September before having surgery in November.  I had 18 inches of my small intestine removed.  Each time I was in the hospital and was restricted from eating I never lost any weight, nor did I after my surgery. I still have diarrea about 5-6 times a day some days even after my surgery, but the pain is gone and I am greatful for that.  I am a pretty healthy eater and exercise on a pretty regular basis.  I recently saw a picture of myself and broke down in tears.  I try so hard to lose weight and I can't get anywhere.  I don't know why I can't get anywhere or what else to do.  I am so tired of people thinking that if you have Crohn's you are skinny and weight just falls off of you.  Can it have an impact on your weight the other way and keep you from losing it????
Diagnosed with Crohns in May 08
Resection in November 08
Currently on no meds - waiting to see new doctor
Married, mother of 4

Regular Member

Date Joined Mar 2005
Total Posts : 357
   Posted 4/12/2009 7:30 AM (GMT -6)   
I feel that way...
32 year old female... diagnosed with Crohn's at age 16, then with proctitis in 2005... right hemi-coloctomy April 2001 (removed 12 inches)... currently taking 100mg 6MP, Canasa, acidolpholus, Protonix, B12 injections once a month, 20mg Prednisone, Bentyl and Percoset as needed... just started Remicade

Regular Member

Date Joined Aug 2008
Total Posts : 305
   Posted 4/12/2009 7:30 AM (GMT -6)   
There are alot of people with Crohn's that don't necessarily lose weight. I would think thats a sign that your Crohn's isn't severe. I envy you. I am one of the skinny Crohnies that would give almost anything to know what it's like to be chubby just one time. Please don't stress over your extra weight. Just be who God made you to be. I have looked back at pictures of me when I was young, muscular and healthy and it can conjure up some disturbing feelings if I let it too. If you were meant to be a chubby Crohnie then so be it but feel free to vent here anytime you want. You'll find that your not alone no matter what your dealing with. Best Wishes and Happy Easter. Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 4/12/2009 9:09 AM (GMT -6)   
Yes, having crohns can also make you stop being able to lose weight, because your body chemistry has gone into hoarding mode.  I have a CDAI of over 500 and I almost weigh 300 lbs. So that means I have extremely severe crohns, even with being fat. I am a former marathoner who cannot walk well due to massive ortho reconstruction (service injuries and the osto hit me hard and fast with this disease) and the pain that this disease has put in. I doubled my body weight when I become sick with disease (a hundred pounds of that was in 9 months of about wacky body chemistry...this was while I was in the hospital so followed less then 2000 cal and less then 30 grams of fat days). Some of us just have a surviror body chemistry where it hoards everything you eat. Especially when you can really only eat a very limited diet.
You are not alone:

Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 4/12/2009 8:16:51 AM (GMT-6)

Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 4/12/2009 9:40 AM (GMT -6)   
I cant keep on any wait. I gained 40 pounds on my last Pred.
But now it is starting to slowly go away :(
So i will properly loose them again.
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ ~

Elite Member

Date Joined Feb 2004
Total Posts : 20553
   Posted 4/12/2009 1:08 PM (GMT -6)   
I think there's a lot of crohnies that do know what it feels like to be chubby at least one time, or maybe everytime they go on pred and get pred weight gain...I don't know if a chubby crohnie necessarily means that they are a mild crohnie though, it is weird how the body can work and although it seems to make sense, the more you poop the skinnier you might be it doesn't always work that way for everyone (I think plenty on here can vouch for that). Age can really factor in as well, for many that hit around the mid 30's in age it seems that certain hromones kick in and weight gain happens and be much harder to lose even with a severe flare(s).

My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined Feb 2009
Total Posts : 269
   Posted 4/12/2009 4:31 PM (GMT -6)   

Hi Fongers

I really feel for you. I too have battled with my weight for years. I am approx 4 - 5 stone overweight. My consultant describes me as having moderate to severe crohns. I am currently on Infliximab to keep my crohns under control. Basically if I come off it I go in2 huge flare up and am in terrible pain

I never ever lose weight no matter how many times I go to the loo, sometimes 15 times per day. I have been trying to lose since Xmas and it has taken me over 3 months to lose 8lb and that is only because I am exercising (feeling the best i have for years and long may it continue)

Remember it is about how well you feel and how much you can enjoy life. So what if you are a bit chubby.  Just make the best of what you have, wear nice clothes, use make up, treat yourself to massage, pedicure. make yourself feel special. When I feel fat and ugly and see a skinny girl - i think well they dont have to go through what I go through everyday.

Good luck, be strong and love yourself the way you are


I believe I was given crohns because I am strong enough to cope

Regular Member

Date Joined Sep 2006
Total Posts : 237
   Posted 4/14/2009 3:55 AM (GMT -6)   
i am 5'8 and 113 right now. Obviously my doctor doesn't believe me when I tell him that something is wrong. That is Iowa...I wish you good luck and keep you in my prayers!
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