First off, thank you so much for all of the replies from th previous thread. It means more than you'll ever know. I became dehydrated again, so I spent the day in the ER with lots of IV fluids. The are thinking I am so sick because 1. I had an infection. 2. A bad Crohn's flare.
The diarrhea is getting a little better right now, and I should be able to get my Remicade Thursday or Friday.
A couple of months ago, they thought I was having a rection to Remicade (we now think it was a panic attack.) I had them stop the infusion and left. I only received a little.
I went back a few weeks later and received 5mg/kg instead of my usual 10mg/kg because I was doing "well." Well, nine weeks later, and I feel as sick as when I was diagnosed. Do you think missing the one dose of Remi and then only receiving 1/2 of my usual dose, then waiting 9 weeks could cause a flare, or am I losing my mind?
Also, even thought my fluid and electrolytes are up, I'm not hungry AT ALL..... I keep drinking Gatorade.
Have you ever been so sick from Crohn's that you feel too week to walk?
Diagnosed with Crohn's March 2006, Fibromyalgia Nov. 2008, Anxiety Disorder since childhood
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 10 mg, Miralax, Prevacid 30mg, Vit B12, Vitamin D, Slow-FE (Iron), Hydrocortisone enemas
Imuran stopped 9/8/08 (possible Pancreatitis)
Paxil 40mg daily (for Panic disorder)
Xanax .5mg three times a day, 1mg at bedtime (for anxiety attacks)