I feel your pain. I have been on prednisone continously since August. I felt frustrated and flared when I tapered down 20mg, so I took evasive action. I got started on cimzia, finished up my 3rd loading phase, and feel it is starting to work. I will give it one week to fully take effect. Also I asked my Dr to prescribe some flagyl to help heal the fistulas...good luck. Ben
IRAM - PART 2
I accideltly cut myself off, so I'll continue.
The doctors and every one involved in my experiment were surprised but all were of the opionion that the pred. was sooner or later going to cause trouble in bone loss etc., but I again decided to stay with my research on that which was. 1. Crohn's feeds off of Calcium. and 2. Pred. also feeds off of Calcium so when I started on my maintenance I also kept up with my 1000 mgs or Calcium and Vit. D. so I've had no trouble there.
So, my question to doctors now is this. If pred. is really going to cause me a lot of trouble in my old age with bone loss and all the other things they worried about, I wonder what they consider "old age" My next birthday I'll be 82 years old, I lost my best friend and wife of 55 years about 4 years ago, and now, I feel so good I'm thinking about getting married again.
So, my advice to you is get your Adrenal glands checked, make sure they are working properly, stay on good terms with your doctor so he will listen to what you have to say, and work together to fight your Crohn's. What I did might not work for you like it did for me, remember most of us are different in how we react to Crohns, drugs, and just about everything else. I've never really had any problems with pred. no side effects at all, but some people can't even take aspirin without major problems.
Since I rarely post, got too many things going, let me tell you another thing or two. Keep a positive attitude, don't let Crohn's or anything else defeat you. I even turned down from my Priest "last rites" twice because I knew with my positive mind that nothing but death was going to stop me from the plans I had for my life, my wife and three children and now seven grandchildren and two great grand children.
I retired at 61 after a very successful carreer, never having missed more than 10 days including surgery from work and was the top man in my occupation for the last 25 years befor my retirement. I owe it all to positive attitude, and a whole lot of research on Crohn's.