lonely and isolated

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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/15/2009 4:57 PM (GMT -7)   
What to do you do when you are sick and cant get far from the lovely toilet.

I am starting to feel a bit lonely and isolated. I can watch a movie with my fiancé at home because he understands all the trips to the toilet but I feel like I cant bring anyone else home because of the constant trips.
And at the moment he is getting ready for the spring exams so he is not around :(

What do you do to make your life bearable ?
I watch lots of TV shows but I am getting kind of sick of that.
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/15/2009 5:13 PM (GMT -7)   
Hi there Isergodur.

Here are some things that have really helped me:

1. studying by correspondence. Find an institution that offers self-paced study, as you don't want to be tied down to deadlines. It's also important to ensure that the course won't require you to get out of the house and interract with people, as this can be tricky when your Crohn's is uncontrolled.
2. Pen Friends! For years, I've been a member of this pen friend club and it has really helped to reduce the feelings of isolation. A lot of people who apply to become pen friends are isolated or unhappy themselves, so you're likely to find some kindred spirits that way. You can also find pen friends on the net, if that helps.
3. Find a safe place that's near your home, that has a toilet and understanding people, that is fairly easy for you to get to. For me, it's the library: three blocks away, with a toilet, with lovely staff. I can't get there when I'm incredibly unwell, but it's the first place I go to when I can leave the house and am desperate for company. You might be able to find a cafe or a nice shop or something like that near you. Just getting out of the house helps reduce feelings of isolation.

I'm sorry you're having a tough time.

Ivy.
Co-Moderator Crohn's Forum.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/15/2009 6:46 PM (GMT -7)   
Thanks Ivy the library is a great place.
I will have to try that..

I am just not feeling the best at the moment both in body and mind :(
But I sure hope things keep getting better for me and all of us.
24 year old female
Diagnosed with Crohn's disease in December 2008..
Medication - Asacol, Remicade, Entocort, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 4/15/2009 6:47 PM (GMT -7)   
During a flare I do pretty much the same thing...and read, listen to a lot of music, and write. I also waste a lot of time on facebook when I can't get away.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 4/15/2009 7:46 PM (GMT -7)   
I video game online and chat to gamers that's what helps me in a flare up. TV gets be a drag sometimes.
Crohns for 13 years
1 surgery so far
2 times in hospital for blockages
MEDS:
Remicade
Imuran
B12 Injections


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 4/15/2009 9:16 PM (GMT -7)   
I took a long bike ride today, so beautiful out ..you almost forget about whats out there just for being scared of accidents. Sometimes you just have to say I dont give a crap, if I have accident or accidents on the way, oh well. its not like they haven't happened before , the cleanup is worth it and sometimes not caring keeps the anxiety away.
SCD since 01, remission since 01, occasional Arby's breaks :)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/15/2009 9:27 PM (GMT -7)   
Isergoder, I forgot to mention one other thing that helped me tremendously, and that is Guiding / Scouting. In my country there are "Lone" Scouting / Guiding groups for people who find it hard to get out of the house, and I was in Lones for *years* (until I got too old and had to leave, *sob*) and it really helped to give my housebound life some meaning. You're still quite young: I wonder if you'd be able to join a Lone Ranger or Rover group in Iceland?
Co-Moderator Crohn's Forum.

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