Crohn's in small intestine? biopsy results, i am very confused

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Regular Member

Date Joined Mar 2009
Total Posts : 33
   Posted 4/16/2009 12:23 AM (GMT -6)   
So got some results from the colonoscopy biopsies, looks like im back on the crohn's forum lol, so the doctor talked to my mom and i did not get a chance to talk to em but she said that he said there is a mild amount of inflammation in the small intestine, does the colonoscopy go into the small intestine, im wondering because they said nothing was wrong initially after the procedure, is this microscopic inflammation? can anything else cause this cuz he said it might be crohn's but it might not? he said he wants to run some more tests, what should i be looking forward to, anything painful? Could this still just be post infectious ibs? i have back pain, right side discomfort/pain, mushy semi formed stools twice a day, loss of appetite, weight loss, fatigue. Just looking for some further information i wish my results were on but they are not yet so maybe i can provide some more info when i get that back.

so does this mean it is crohn's? or what else can cause this?
what tests should i be preparing myself mentally for?
what kinda of diet should i stick to, still low fat high fiber?
what does my future behold for my health?
19 year old male smoker, quit 40 minutes ago when i found out results, no history of problems,

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 4/16/2009 1:40 AM (GMT -6)   
Did they specify which part specifically? Mine is in the ileum being where the small and large intestines meet. This is not too uncommon either which I was asking....

It can definitely be crohn's, there is no any one diet but many of us stick to low fiber or the Specific Carbohydrate Diet and avoid junk food like the plague, and there really is no telling what the future holds. The best you can do is just take care of yourself, change your diet, make sure you avoid stress (dear god this is so important), and make sure you have plenty of support...I can't really answer much more at the moment, but I'd be happy to answer any more questions as someone who was also diagnosed at 19. I also quit smoking and drinking after diagnosis. A little difficult at times but worth it.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking:
Prednisone 10 mg, pentasa 2 pills 4x a day, bentyl as needed, omeprazole in the morning, prenatal multivitamin, humira every other week, and Align probiotics given to me by my GI.
Surgery for ectopic pregnancy most likely the result of severe Crohn's inflammation in July of 2008.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 4/16/2009 7:38 AM (GMT -6)   
The colonoscope can peek into the last few inches of the small bowel, known as the terminal ileum, which is one of the most common locations for Crohns inflammation. You really need more information on the biopsies -- if they showed deep inflammation in the bowel wall and/or granulomas, that would point very strongly to a CD diagnosis. As for future tests, the small bowel follow through (Xrays after drinking barium) and the pill camera are the two best ways to look at the entire small bowel. Neither are highly invasive or painful, nor do they require the extensive prep needed for the colonoscopy. You might request a copy of the pathology report from your scope biopsies and post the pertinent passages here, to which I am sure you would get ample responses.

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 4/16/2009 7:56 AM (GMT -6)   
I second the stress thing, do whatever you can to kill anything stressful or drama related in your life. Simplify everything as much as possible. It sometimes can do things that meds can't.
SCD since 01, remission since 01, occasional Arby's breaks :)

Regular Member

Date Joined Jul 2003
Total Posts : 145
   Posted 4/16/2009 8:04 AM (GMT -6)   
Yes, I have taken the stress thing very lightly until recently, my pcp keeps talking about stress. I am not sure how to manage it, my wife has been really on my case about stress (but ironically it makes thing worse). But, I plan to work more diligently and not kill myself trying to prove to others that I work as hard as they can.

By the way, ask them for a CT scan it will provide an accurate picture if there is any inflammation or scaring or blockage.
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