fibrostenotic crohn's--advice, help, suggestions, Please

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Regular Member

Date Joined Jul 2003
Total Posts : 145
   Posted 4/16/2009 10:34 PM (GMT -6)   
I have the official diagnosis of fibrostenotic crohn's, I am learning that is a different type of chron's...compared to inflammatory version...can any of you share any information, ideas, tips, treatment options, etc. Many thanks in advance.

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 4/17/2009 12:21 AM (GMT -6)   
Crohn's disease is often complicated by gastrointestinal strictures. Postoperative recurrence at the anastomotic site is common and repeated surgical interventions may be necessary. Medical treatment may relieve active inflammation, but fibrous strictures will not respond to this. Mechanical treatment methods consist of endoscopic balloon dilation, stricturoplasty or surgical resection. Fibrostenotic Crohn's disease does not respond to medical therapy and requires endoscopic or surgical treatment.

My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined May 2006
Total Posts : 229
   Posted 4/17/2009 1:57 AM (GMT -6)   
Well, pb4 hit it right on. I might just also add, while you may or may not know this already, fibrotic scarring doesn't occur without inflammation. So if you treat the inflammation, and if the scarring isn't too far gone, you may be able to avoid surgery. This is especially true if your stricture (narrowing due to fibrotic scar tissue and/or inflammation) is far down near your terminal ileum or colon, where they can mechanically dilate your stricture with a endoscope during a colonoscopy. Seems like some people on this site have had luck with that. Remember to eat a low-residue diet if you have a stricture. You can find what that entails on many regular search engine sites or even on here.  What kinda symptoms are you experiencing? If your not severely cramping, bloated or nauseated, then your fibrotic scarring probably isn't too far gone and the remaining inflammation can be treated with medications (and diet), and no surgery :)  People always say hang on to your guts.

Regular Member

Date Joined Jul 2003
Total Posts : 145
   Posted 4/17/2009 7:24 AM (GMT -6)   
Thank you CB4 and camjames, my GI tells me that the visual radiographic evidence does not shown any active inflammation and that there are several areas in the small bowel with discrete fibrotic scars hence it will not lend itself to surgery. He said that he detected 5 locations and there may be more that is not detectable by radiography. So it seems I am headed towards dilation or ballon endoscopy or potentially emergency surgery. They have ruled out elective surgery at this point time, I have been asking for it in the hope that it would go away.

My symptoms are consistent with fibrotic chorns in that I can asymptomatic for several months and then it would hit me, and it would me very very hard, which basically means violent vomiting, and severe pain. When the crohns acts up, I have no option but land up in the hospital for a few days. On a day to day basis, I don't show the signs of inflammatory crohns. My pain and distending activity is localized to the right quadrant of the abdomen. Involvement is anywhere between the Jujunem and Terminal ileum, cecum. The only medication that I am responding to steroid therapy (it is keeping down any active inflammation if at all any).
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