A Message From The Moderate Sufferer

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surpass
New Member


Date Joined Apr 2009
Total Posts : 1
   Posted 4/17/2009 12:52 AM (GMT -7)   
"Do not go where the path may lead, go instead where there is no path and leave a trail" -Emerson

I know that most of you are on this site looking for support from your fellow sufferers of Crohn's disease. I also know that a sample of the subset of people with this disease who have difficult or extraordinary symptoms and complications have a tendency to seek support on websites such as this. I have been reading your posts, and I have so much compassion for what you are going through. I felt it necessary to give an example of a patient who has this chronic illness but is generally well. I won't describe my whole history, but I am a lucky man, and lucky to be alive. The complications of this disease were particularly challenging in my youth, after being diagnosed at the age of 12. I have felt the pain, had the surgeries, felt the hopelessness, depression, and severe anxiety that so often accompany this illness. Even a brush with death as a kid (thank you to the surgeons who saved me) . I have now had the disease for 18 years. Being what I consider a moderate sufferer since then, I know the depths of the disease without really knowing its effects in the adult years. I respect the courage of all the sufferers of this disease and wish them all well.


I have been symptom free for nearly 10 years, with only minor activity in a very limited part of the small intestine post ileocolic resection. I take no medication.

Best wishes.

Post Edited (surpass) : 4/17/2009 12:42:52 PM (GMT-6)


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/17/2009 4:03 AM (GMT -7)   
Dear Surpass

Welcome to Healing Well. It is quite strange that you are a person who is here not to seek solace and support, but to provide support to others. I really appreciate this gesture.

I must say that you are a fighter and have strong will power. You are a living example for all of us, who at the drop of hat, give up our hopes and start thinking negative. I am sure all of us would get enough encouragement and support from people like you. Wishing you all the good health and many many years of disease free life.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/17/2009 4:03 AM (GMT -7)   
I really liked the quote by Emerson, which holds very true for you and describes your spirit in one line. Keep it up.


45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/17/2009 8:30 AM (GMT -7)   
yeah  Welcome new guy to healing well seems your doing great congrats i don't think i know a single patient with CD that isn't on anything no meds your really lucky did you just find this site,or have you been to other sites for CD before for support. You don't have to be sick to come here even if you don't need the support like us they also have chat rooms were you can share your words of wisdom and encouragment and your stories to anyone if you check the guide lines on the right side of the screen you will see that there is scheduled chats for CD and panic disorder or what ever room you want to chat in really you can talk about what evry you want. So tell me something is it your diet that keeps your crohns from comimg back or is it your positive attitude we all want to know what your doing so we can try it out ourselfs cheers to you for keeping yourself well good luck in the future and keep us posted. Your Friend Jenn smilewinkgrin
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/17/2009 11:59 AM (GMT -7)   
I find giving support to be a form of therapy for myself (I probably am looking at it in a selfish way) but being able to support others really does me good emotionally and although it always makes me sad to see a newbie (becausse that just means there's another person suffering out there) I'm glad we have each other and that's what helps me get through everyday with this ridiculous disease.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 4/19/2009 4:52 AM (GMT -7)   
I find that giving support and also receiving support gives me the stength to keep fighting this awfull disease.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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