My first surgery

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purplechevy
Regular Member


Date Joined Oct 2006
Total Posts : 51
   Posted 4/17/2009 9:57 PM (GMT -7)   
Well, here I am, at home recovering from my first surgery.  They took out some of my colon due to two absesses and the fact that it was in pretty bad shape due to my 12 years with crohns.  I have been home for about 3 weeks on Saturday.  Mostly doing pretty good.  Weening of the prednsoin that I was on for my flare-up.  Still having some pain.  Mostly after I eat.  Its like I can feel the food going thru, but it is in a different place on the inside of my tummy.  Kinda werid.  I think it has to do with having my colon redirected thru my body. I have no idea how much they did take out, as I never asked and really at the time didn't want to know.  When I go ssee my surgeon on my post- op, I will ask then.  I have an odd question though?  How long did it take to feel normal again to pass food thru you, and before it was comfortable to wear clothes on the insision area?  Right now it is driving me up a wall with anything rubbing on it.

<FONT>



<FONT color=purple>Crohns-colitis for 10 years, no surgery as of yet. Meds include: pentasa, metronidazole, iron, muti-vit, salmon oil


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 4/18/2009 5:24 AM (GMT -7)   
Glad your doing well.
I went back to work on light duty after being home for 2-1/2 weeks. At that point I did not have any problems with clothes rubbing on my incisions.
As for the food thing, I don't recall ever having that feeling. I didn't have any pain after I ate either.
You should keep a daily journal and list everything from what you ate,drink,BM,weird pains etc. and you'll be armed when you go to your doctor. It's way better than trying to remember all that.
I wish you all the best and wish you a speedy recovery.
Wolfie
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


SCE_Thor
New Member


Date Joined Apr 2009
Total Posts : 1
   Posted 4/18/2009 7:16 AM (GMT -7)   
The only thing I remember about my first was that my gutt wasn't making any noises. (not good really) The fact that your is making the noises says that things are moving really good. If you had frequent bowel movements before your going to have a few more per day.
 
I found that diet really helps control mine. You're going to want to stay away from roughage as much as possible though. At least until you're feeling really good. The roughage actually irritates the scar tissue, and if you eat to much it will cause the tissue to flare up and can cause a intestinal blockage. This is very painful, you feel like you need to go and the need to vomit but nothing will happen. It will send me to the hospital for about a weeks worth of bowel rest.
 
I'm not saying this to scare you, but to inform you of what can now happen. My GI just put me on Entocort because mine started to flare. I think I caught in time though. It wasn't as bad as the others have been.
 
Also I found that If I stay away from Alchohol, caffiene, chocolate, and Dairy (lactose intollorent) that the flare ups are kept way down and the trips to the bathroom are redused a little.
 
Glad to know all went well. I know it's a difficult disese to deal with but it can be controlled to a point.
 
Good luck and God bless.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/18/2009 7:39 AM (GMT -7)   

Hi purplechevy!!  First off I was wondering if you had open surgery or was it done via laproscope?  That one fact makes a lot of difference.  I had 2 open resections and like you I was not comfortable wearing anything too tight.  It takes a good six weeks for the open incision to heal and doctors say that it takes about a year to fully recover from the surgical changes.  When you have it done via laprascope you may heal faster much like Wolfie did, but with open its a little longer to recover.

You need to remember that they have gone in and manipulated your intestines, taken them out, checked them all over, removed the bad areas, then put them back into your body.  So it does take a fair amount of time to get back to our "new" normal.  I wouldn't go too crazy with your diet at this point.  Keep it easy to chew, easy to digest.  I personally have stayed on a low residue diet since my surgeries.  I eat alot of fish, chicken and turkey.  If I eat veggies they are usually cooked to mush, and eat no peels/skins or seeds.  As you heal you can slowly start adding things back into your diet.  I would try adding one new thing at a time so you can see which foods agree and which don't.

You may have D for a while until your body adjusts to the changes.  Things most often get better stool wise, but its not uncommon for some to continue to have D, but you may not have that if you didnt have your TI removed.  If it was removed be sure to ask your doc about B12 shots, because you will need them from now on if the terminal ileum was removed as we no longer absorb it.

Make sure to rest as needed and not overdo too soon.  I hope your surgery brings you to a long long remission.

Hugs,

Gail *Nanners*

 

 


Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/18/2009 9:02 AM (GMT -7)   
purplechevy said...
Well, here I am, at home recovering from my first surgery.  They took out some of my colon due to two absesses and the fact that it was in pretty bad shape due to my 12 years with crohns.  I have been home for about 3 weeks on Saturday.  Mostly doing pretty good.  Weening of the prednsoin that I was on for my flare-up.  Still having some pain.  Mostly after I eat.  Its like I can feel the food going thru, but it is in a different place on the inside of my tummy.  Kinda werid.  I think it has to do with having my colon redirected thru my body. I have no idea how much they did take out, as I never asked and really at the time didn't want to know.  When I go ssee my surgeon on my post- op, I will ask then.  I have an odd question though?  How long did it take to feel normal again to pass food thru you, and before it was comfortable to wear clothes on the insision area?  Right now it is driving me up a wall with anything rubbing on it.

Hi Purplechevy i'm glad to hear your home this part is great now its time for you to rest don't do anything that is going to hurt you such as sweeping the floors or mopping or vaccum even if you think your well enough cause its so easy to get scar tissue formed right after surgery and than you could get adhesions them you don't want. It took me about 4 weeks before i felt comfortable wearing my regular clothes again,stick to PJ's and baggy gym pants for now or dresses thats all i did much more comfortable,is your staples out and do you still have a packing on. Its going to take a while to feel like you again its differant for everyone i know that it seems like its taking forever but you will be back to you in no time and you'll forget all this pain you were in and hopefully you will feel good now that you got the diseased part out your on the mend god bless. By the way what Nanners said about your diet is freat advise eat light things nothing to heavy for a while. Good luck and i'm glad to here that you came out of your surgery well keep on trucking!!!!! Jenn yeah

Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


purplechevy
Regular Member


Date Joined Oct 2006
Total Posts : 51
   Posted 4/18/2009 2:26 PM (GMT -7)   
I had an open surgery. I am thinking I may have done a bit too much and am paying for it dearly now.  I am very sore today.  There is some pain on the inside. Not terrible, but it is there.  All they told me when I got out of the hospital was take it easy for two weeks, and then start slowly doing things.  I thought I was doing that.  A low resdue diet and I could start introducing things.  Guess I was wrong.  Great, I hope I did not mess things up too much.  I really wish I would have gotten better instructions.  Last thing I want is to go back to the hospital.
<FONT>



<FONT color=purple>Crohns-colitis for 12 years, First surgery as of March 09, bowel ressecetion. Meds include: pred, calcium with Vit D, salmon oil, vitiams.  Waiting to see what else the specialist will want me on!!


onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/18/2009 6:52 PM (GMT -7)   
purplechevy said...
I had an open surgery. I am thinking I may have done a bit too much and am paying for it dearly now.  I am very sore today.  There is some pain on the inside. Not terrible, but it is there.  All they told me when I got out of the hospital was take it easy for two weeks, and then start slowly doing things.  I thought I was doing that.  A low resdue diet and I could start introducing things.  Guess I was wrong.  Great, I hope I did not mess things up too much.  I really wish I would have gotten better instructions.  Last thing I want is to go back to the hospital.

Good evening purplechevy yes your right they should have told you these things and to take it easy and when your tired rest,i hope i didn't scare you i just didn't want you jumping into things to quick and hurting yourself thats all. Your the only one that know your well enough to tell if your doing something wrong and it hurts stop. The rule of thumb down here is 4 to 6 weeks after any major surgery. Adhesions take a while to form but one of the sure fire way to them is doing anything to soon after your surgery even if you think well the pain is going away and i feel real good just be carefull thats all i'm saying. Talk to ya soon Jenn yeah
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 4/18/2009 8:23 PM (GMT -7)   
I had nerve pain and sensitivity near my incisions for almost a year after my surgery. I hated wearing a shirt, I wore a sports bra at home but I had to wear a shirt at work and when I left the house. Apparently topless teaching is frowned upon in schools, LOL.

My surgeon said this is unusual so, of course, I get it.

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 4/19/2009 4:35 AM (GMT -7)   
It freaked me out when I came home and had such pain when passing stool. I would get a little panicky when I felt the urge to go to the bathroom. So I  ate very small amounts for about a month and tried to stick to a low residue diet. When you start to feel better I know it's hard to continue limit your activities. I did too much housework and started back to work too early. I have a nice  hernia above my belly button to prove it. As for the incision,  I had a spot that wouldn't heal so I had to wear stretchy pains for about 3 months. I was thrilled when I was able to wear jeans. Good luck to you and take care of yourself!!
 
Elizabeth
Dx'd with Crohns 1984 and polycystic kidney diease in 1996
I was in remission for 16 years, Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


purplechevy
Regular Member


Date Joined Oct 2006
Total Posts : 51
   Posted 4/19/2009 7:50 AM (GMT -7)   
Today I feel way better. Thanks everyone for helping. It really sucks for the lack of information for me. It was an experience I really do not want to do again anytime soon. I think one of the worst things for me was have the drainage tubes in my gut. Everytime I ate, I could feel my inners moving against the tubes. I am so sensitive to things and changes to my body.
<FONT>



<FONT color=purple>Crohns-colitis for 12 years, First surgery as of March 09, bowel ressecetion. Meds include: pred, calcium with Vit D, salmon oil, vitiams.  Waiting to see what else the specialist will want me on!!

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