life alittle easier!

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yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 4/18/2009 8:40 AM (GMT -7)   
I have arthritis due to CD and have battled with it for several years now. Having been very athletic all my life until the pain of arthritis finally turned me into a couch potato I've had trouble accepting my limitations. It's gotten to the point I dread certain activities like grocery shopping and so on. Today I did something I've never done. I used one of those electric shopping carts at Kroger. I was sort of humiliated just thinking about doing that until I got on it and shopped. This was the most enjoyable shopping experience I've had in a very long time. I am so grateful for the conveniences offered to those of us less capable and I am going to start taking advantage of them when I need them. It's time to check my ego at the door from now on. I just wanted to pass that along. Have a good weekend, Tony
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 8 months ago. Now on Remicade, B-12 injections and iron. Feeling much better!
God Bless. Tony


onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/18/2009 9:11 AM (GMT -7)   
 i Yellowfin that is great don't be ashamed of anything when ther is something out there to make our lives easier jump on it,i to suffer from arthritis and joined the gym doctors idea at first i thought i would die of the pain so now i go to aqua fit class in the water and it feels great on the joints i tell ya? So are you on anything for your athrirtis now like Celebrex or Fosamax or Tylenol arthritis i'm on the last 2 and the work prettty good for me another thing that works for me is the bikes at the gym really helps the legs.When i go to the mall or to get my food at super store differant story those floors kill me and i think i'll give those chairs a try myself thanks for the advise thats a great tip. Jenn yeah
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/18/2009 9:15 AM (GMT -7)   
Hey Tony,

You I have had this disease for about the same time and I actually think our Crohns is very similar. I had a doctor appt this past Thursday with the family doc and because of the arthritis pain I have been suffering I finally asked about a handicap pass and he is giving it to me. I will take whatever I can to ease the pain of this darn arthritis. Good for you!

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

omigrandma
Regular Member


Date Joined Dec 2008
Total Posts : 57
   Posted 4/18/2009 9:33 AM (GMT -7)   
Hi Tony, I am in a similar situation. I feel guilty for having asked for and received a handicapped parking sticker for my car. My Rheumi agreed with me, that with all the back, neck, knee, shoulder, ankle pains etc. it was an appropriate thing to have. But when I see the truly handicapped person get out of a car, I feel guilty. However, then my husband will remind me that I have had Crohn's and Colitis for 30 years and I am on Remicade and 10 other horribly nasty other medications and I would never have received the sticker if the doctor didn't think I was entittled to it, SO then why do I still feel guilty???

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/18/2009 1:09 PM (GMT -7)   
I had a partial blockage while at Disney World with my family a few years back. I had all the pain meds I needed and didn't want to go to the hospital since I was keeping hydrated, but I also didn't want to miss out on all the fun and stay in the hotel. I spent the vacation in a wheelchair so that I didn't have to move. As long as I remained still I could keep the pain at bay. I felt a little guilty, cause I certainly didn't look like I needed to be in a wheelchair, and it gives you a move to the front of the line pass. But we were with my Mom most of the time and she was also in a wheelchair due to COPD and on oxygen, so for the most part we would have been moved to the front of the line anyway.

But hey, life is difficult enough for us, we should take whatever little convenience we can get!
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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