Is Crohn's the new black?

New Topic Post Reply Printable Version
37 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 4/18/2009 7:35 PM (GMT -7)   
this is an odd post, but my massage therapist, very nice man I have known for years, told me the other day that all of a sudden, he keeps hearing of folks being diagnosed with crohns--HIS WORDS, "like a few years ago with fibromyalgia." so he got me thinking, is there more crohns, more diagnosis, or is he just anecdotally hearing things? I had never heard the word crohns 3 years ago when I was diagnosed, but still rarely hear about it. thoughts??

49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Jenn
Regular Member


Date Joined Oct 2004
Total Posts : 29
   Posted 4/18/2009 7:40 PM (GMT -7)   
If this is true and I can't say that I have heard it, frankly, this is one curve I am not thrilled to be ahead of.

inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 4/18/2009 8:09 PM (GMT -7)   
I don't know. I'd never heard of it before I got sick, but it seems like more and more people have friends/relatives with it or UC.
Hoping to stay in remission after the birth of a healthy baby girl. On Pentasa during my pregnancy, went med-free 2 months to nurse (stupid), but back on Pentasa and still nursing.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/18/2009 9:05 PM (GMT -7)   
No I don't think so. With CD there is more physical evidence than with fibro. I think that in general more people are getting IBD because of environmental factors.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 17.5mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.
 
Go Saskatchewan Roughriders!


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 4/18/2009 9:36 PM (GMT -7)   
Seriously, Everyone I know seems to know someone with it now. I hear alot about environmental factors but I have a feeling it's just one factor, one man made thing in the last 50 years. Probably some useless additive that triggers it.
SCD since 01, remission since 01, occasional Arby's breaks :)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/18/2009 10:28 PM (GMT -7)   
My dad had crohn's when I was growing up, and to me, it was this strange disease that no one had ever heard of before. My dad said no one he knew had ever heard of it either. A couple years after I was diagnosed (about 10 years ago or so), it seemed like a fair amount of people knew someone who also had crohn's. Today, it's unusual for me to talk to someone who hasn't at least heard of crohn's. At my local dog park, there are 3 other woman that I know of who have crohn's.
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 2 foods


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/18/2009 11:41 PM (GMT -7)   
Well, my experiance, I got sick with it 18 yrs ago and had only heard the term once from an old high school friend I ran into and in passing she mentioned she had CD and I asked her what it was but like I said we were in passing (I think her more so than me cuz she was probably looking for the can at the mall to use) so all she got out was "it's a stomach disease", so then of course I was still unaware of what it really meant when she said that, then get this, about 6 months later I get sick with it myself, run into her again at a grocery store and I freaked her out when I told her I had it too cuz she was like "when I gave you that simple explanation of what it was you looked so confused" and I was like "ya, but I sure as heck know exactly what you meant now cuz I'm living it too". Bizzare eh.

Then I run into one other friend from high school and we started hanging out for quite a few yrs (cuz besides me and her being friends our hubbies were also friends) then we drifted apart (she got divorced) then we ran into each other a couple yrs after we had drifted and she tells me she has UC. My son plays alot of sports (started baseball at the age of 4) and I've definitely met with a lot of people that have either UC, CD or IBS over the yrs to recently even. so basically here and there over the yrs I've run into quite a few people that either have it themselves or has a relative or knows someone eles that has an IBD.

Part of it to is that maybe more people are getting checked for it when they start having the changes from basically being normal to getting sick (I think alot of people many yrs ago lived in denial or were too embarassed to even talk to their docs so they'd hide it as best they could from people). If there wasn't such a stupid stigma about having to poop in our society I think the stats would show even more people with IBD then they currently show.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)

Post Edited (pb4) : 4/19/2009 12:44:25 AM (GMT-6)


Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 4/19/2009 7:58 AM (GMT -7)   
In 2000 when my best friends brother got very sick and no one could figure out what was wrong with him, everyone thought he was going to die. He found out after 18 months of dr and test that it was crohn's. I hadn't heard of it before. I live in a very small town, but come to find out there was another man (who I acutally knew for years) that has crohn's and a colostomy bag. I guess I assumed I would have known that he had the bag, who knows. I was dx'd in 2006 after being sick for almost a year before and I was shocked at a handful of others I knew/knew of had CD or someone in their family did. Now, I bet I've heard of 20-30 people who have it. The village I live in only has 2200 people so it's small. Not all of those people live here, but someone in my town know them. I think it's just becoming more known about whereas in the past it was misdiagnosed as IBS or something.
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


fimk
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 4/19/2009 8:18 AM (GMT -7)   
When I was dx there were no gi docs in town, now there are three.  To get dx I had to travel 300 miles to U of I med center in chicago. They found a gi doc in St Louis, 120 mile away, that became my doc til he retired.  Back then no body ever heard of crohns.  It is my opinion that there is better dx and what ever bug is causing crohns is becoming more wide spread.  JMHO.
Over 30 years experience! Dx 1976, surgery every seven years, the only effective long term drug has been very low doses of prednisone. Refuse to take anymore immune suppressants.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 4/19/2009 9:23 AM (GMT -7)   
I know 4 people from my small high school and three people from my small law school and 2 people from my previous work and 2 people from my current work with CD or UC so I would say it is more prevalent.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 4/19/2009 9:47 AM (GMT -7)   
i've been keeping my crohn's a "secret" from almost everyone for 20 years...now that i'm finally telling people it does seem like everyone knows someone with this ^$&*&$ disease!
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 4/19/2009 2:22 PM (GMT -7)   
interesting hearing ideas about this. Is it like when you are pregnant (or have a new car) and you just notice it more around you, or is it really being diagnosed more. I agree that people are being tested more. I am sure many of those with crohns in the past just had "tummy troubles" like my mom.
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 4/19/2009 5:10 PM (GMT -7)   
I have been told for years that I have IBS. It wasn't until I swallowed a pill camera last year that my diagnosis became "Ileitis, probably Crohns's." I wonder if the possible increase in Crohn's diagnoses is due to better tests.

DocGonzo
Regular Member


Date Joined Dec 2006
Total Posts : 151
   Posted 4/19/2009 7:12 PM (GMT -7)   
It's true, it's becoming an epidemic, and statistics confirm this. There has been an increase of over 300% in newly diagnosed cases in the past 20 years across the Globe. Genetic factors CANNOT account for this, so it's becoming clear that it has to be something in the environment. In that sense, all the research that is being done in the area of immunology and controlling or "turning-off" the immunological response is IMHO a blind alley. What the researchers should be focusing on is finding these environmental factors and finding a way to neutralize them. Whether it is a virus, a bacteria, a chemical, or something else, it doesn't matter, until we can positively identify the cause and treat it this disease will NEVER be conquered. Unfortunately, it seems that the big pharma companies are only after maximizing profits, and current mainstream approach favors this... I have high hope in independent researchers though, they're doing some amazing things and I'm willing to bet that the eventual cure will come from one of those teams.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 4/19/2009 7:37 PM (GMT -7)   
DocGonzo said...
What the researchers should be focusing on is finding these environmental factors and finding a way to neutralize them. Whether it is a virus, a bacteria, a chemical, or something else, it doesn't matter, until we can positively identify the cause and treat it this disease will NEVER be conquered. Unfortunately, it seems that the big pharma companies are only after maximizing profits, and current mainstream approach favors this... I have high hope in independent researchers though, they're doing some amazing things and I'm willing to bet that the eventual cure will come from one of those teams.


DocGonzo, I totally agree, and God bless the independent researchers!
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/19/2009 7:43 PM (GMT -7)   
Even though I'm forced to put my faith in biologics right now, and I'm very glad that they're an available option for us, I agree with doc that the breakthrough (if it ever happens) will be something very simple and inexpensive.
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 17.5mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.
 
Go Saskatchewan Roughriders!


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 4/19/2009 10:58 PM (GMT -7)   
I was actually thinkning this the other week, that there seems to be more people diagnosed, just from all the new posters on HW. It's sad that this disease may be the new 'epidemic'.
Jo

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 4/20/2009 3:45 AM (GMT -7)   
My 2 cents.........I think with the availability of information & connecting to other CD patients via the web, we are more likely to "own up" to having CD. Of the 27 yrs since I was diagnosed, it's only been in the last 5 years that I've openly told people about it. I have to credit finding this wonderful site & group of people who made me not feel so alone and isolated.
 


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/20/2009 5:02 AM (GMT -7)   
Well if this is the "new black," it is a decidedly un-fashionable condition to have. Anyone pretending to have this needs to walk in the shoes of those who have had multiple surgeries and can't leave the house.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 4/20/2009 5:15 AM (GMT -7)   
I had heard of it because of a cousin having UC and a family friend having crohns. My first GI (who retired) told me that it is normally diagnosed in the late teens to early 20's. I think that is probably true after reading to many postings on thie support site. I even see signs of it in my daugher (who is 15).

I know of two others who have this disorder....one is a student at the college where I work. He goes to a natural healing doctor and currently is in remission. The other is my sons teacher, who has had it since the 70's. He has had one operation, which put him into remission until recently. He is now on endocort along with his maintance drugs.

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 4/20/2009 7:02 AM (GMT -7)   
I wish that there was more known about what I have or people with it, just so they could do more for me, you know?
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 4/20/2009 7:34 AM (GMT -7)   
I was starting to think the same thing lately. When I was dx'd 20 years ago, NO ONE had this DD. Now it seems every time I turn around I hear "Oh, so-and-so was dx'd with Crohn's." I'm not sure why it is, but it is kind of weird. Maybe there's more awareness than there ever was before.

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 4/20/2009 8:01 AM (GMT -7)   
I know for some people it takes years and years to be diagnosed, but then are those like me who are quickly diagnosed with no later sign of the disease--so are some diagnosed to quickly and maybe that raises the numbers higher than they should be?
I am playing devil's advocate. yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 4/20/2009 10:14 AM (GMT -7)   
...don't know...but sometimes I think that as time goes, diagnosing becomes better. Also, with things like the activia commercials, people are willing to see their doctors more about things that used to be kept quiet. Also with all the emphasis on colon cancer and screening...maybe not all were "cancer" but some sort of IBD...

I honestly think my grandmother had this DD, though in that time and her background (immigrated from Mexico in the 20's)this was something you DID NOT talk about. Nope. nothing, not ever. You just did not talk about ANY type of issues with the lower half of the abdomen. She suffered in silence but my aunts had seen it (can't imagine this disease and having only an outhouse for much of my life). She passed from complications due to stomach surgery for her stomach cancer.

I notice younger people are getting the DX too. However, when I look back, I ALWAYS had issues with an "uspset stomach". Parents are much more proactive in their childrens health than in years past. We have a lot more information at our fingertips. Yeah, I think environment has to do with it, but again, I also think docs and patients are more aware of issues...again JMHO...
"The earth laughs in flowers"


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 4/20/2009 10:45 AM (GMT -7)   
I had bowel problems since I was a baby (my mom told me) I was also born with CP (Cerebral Palsy) and we 'think' that might have something to do with my colonic inertia. Do any of you know about colonic inertia and/or small bowel inertia?

By the way, I'm new to this board, I'm usually in the ostomies one.
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 

New Topic Post Reply Printable Version
37 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Saturday, December 03, 2016 9:14 PM (GMT -7)
There are a total of 2,732,392 posts in 301,013 threads.
View Active Threads


Who's Online
This forum has 151175 registered members. Please welcome our newest member, melissapsa.
262 Guest(s), 11 Registered Member(s) are currently online.  Details
PeteZa, bluelyme, dacarte3, Scaredy Cat, Girlie, NewspaperLover, JEN02, magoo2, Hawaii3654, Ggrlsav, BostonMarigold


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer