Humira too cold??? Need answer ASAP

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mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 4/19/2009 7:08 PM (GMT -7)   
Nevermind!
20 y/o, diagnosed 6/2007. On Humira, no wheat or corn syrup, low sugar, low dairy.

Post Edited (mkl11) : 4/19/2009 9:06:19 PM (GMT-6)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/19/2009 7:41 PM (GMT -7)   
You would have to call Humira to get a reliable answer on this. I would also recommend that you but a thermometer for the mini fridge, since I believe the package says to store at 2 to 8 degrees Celsius. Perhaps the fridge was at 1 degree?
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 17.5mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.
 
Go Saskatchewan Roughriders!


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 4/19/2009 7:43 PM (GMT -7)   
Yes, that's a good idea Rider Fan. I've always taken medication from this fridge so I think I'll go ahead and take it. It was literally a few seconds and it could have been the air bubble. As long as it was not frozen in any way I think it's fine...
20 y/o, diagnosed 6/2007. On Humira, no wheat or corn syrup, low sugar, low dairy.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/19/2009 7:47 PM (GMT -7)   
How have you done on the Humira?
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 17.5mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.
 
Go Saskatchewan Roughriders!


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 4/19/2009 7:52 PM (GMT -7)   
Pretty well. I started end of October and have really felt it kick in the throughout the last month. I can eat a wider range of food, including salads, I can drink milk, and I have enough energy to work out again. Still avoiding the wheat, which I think is a good call. I do notice a bit of a difference as I approach the end of the two weeks between medicine, but as long as I watch what I eat then, I'm fine.

I noticed you just began Humira...any difference yet?
20 y/o, diagnosed 6/2007. On Humira, no wheat or corn syrup, low sugar, low dairy.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/19/2009 8:29 PM (GMT -7)   
Wow, so it took a good 4-5 months for you.

Maybe some help, but I'm not sure yet. No weight gain, maybe less gas, but the big test will be when I test my hemoglobin in 2 weeks. I've managed to get down to 15mg of pred from 20 last month.

It's been 7 weeks, I was hoping I'd feel great by now, but I guess I have to be patient. Was considering trying 1 shot a week, but will stick with 2 week intervals for now I guess...
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 15mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 4/19/2009 9:03 PM (GMT -7)   
That's still a bit early to really see improvement, if that's any consolation. I guess 3 months is the norm to see a difference. I did slowly start to feel better fairly soon after treatment (around beginning of January...I started Oct 31 to be exact) but really felt the full effect as of the past month.

My Crohn's is atypical to begin with, my pain problem being lots of bleeding (never had much D), narrow stools, pain, and generally feeling crappy. I guess to put it in perspective, when I started Humira I was barely getting by with at least 10-11 hours of sleep a night. Now I'm a regular college student again and can manage on 6-7, though I try to keep it at 8. So in that respect it's been great. Plus I can eat a hell of a lot more variety.

I think the diet change has made the biggest difference to be honest, and I hope the GFCF diet works for you. I ESPECIALLY hope you get off the Pred. That's some horrible stuff. For me, I'm not Gluten Free, but Wheat Free. I think my main problem with wheat was breaking down the fiber matrix of the stuff, particularly in bread form. I'd get HORRIBLY ill when I ate a piece of bread. So while I'm not careful about salad dressings, soups, or fried foods, I just stay away from the things where the main ingredient is wheat. Maybe just something to keep in mind as you figure out the diet that works. Overall, I find leaving out the wheat forces me to eat better as well as eat more often, so I'm snacking on good stuff like fruit (which I can eat again!) instead of processes, wheat-y stuff.
20 y/o, diagnosed 6/2007. On Humira, no wheat or corn syrup, low sugar, low dairy.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/20/2009 8:02 AM (GMT -7)   
My symptoms are actually similar you yours. I also never have much D, but I do have lots of bleeding (in the small bowel) and I generally feel crappy. I also can't gain weight. I don't get much pain usually, unless it's from gas and bloating. Take care!

Mike
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. 15mg prednisone. Udo's Choice Probiotics (30 billion). Can't tolerate any iron supplements or infusions.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!

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