Anyone get really sleepy and tired from Imuran?

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NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 4/20/2009 7:05 AM (GMT -7)   
I have been taking 100mg of Imuran for over 2 weeks, and I am just dead beat tired from it. All I want to do is sleep and lay in bed. I am not sure what to do.
26m - Dx January 2005: UC/Crohn's
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/20/2009 8:12 AM (GMT -7)   
Yes, I had that experience when I was on Imuran. I think it gets better as your body gets used to the medication.

Good luck,
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 4/20/2009 8:46 AM (GMT -7)   
I have been on it for going on 3 mo's. I too still get tired about an hour or so after taking it. I normally take it after my biggest meal (which is lunch), however I am now trying different times of the day to help with the fatique.

I am lucky as it doesn't upset my stomach much.

Is it possible for you to take it before bed?

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 4/20/2009 8:57 AM (GMT -7)   
I take it before I sleep. When I was taking 50mg of Imuran, I did not see the fatigue problem.
26m - Dx January 2005: UC/Crohn's
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 4/20/2009 10:02 AM (GMT -7)   
Oh yeah I had that problem! Exhaustion, pure and simple. I did hear it would go away over time as the body adjusted to the med. I started having a reaction at 3 weeks (extreme nausea turned to vomiting non-stop) so I never found out if it did wear off. But, I remember that feeling well. A heavy feeling and not being able to move...

There is also a blood test which will check the amount in your blood (or something like that) to make sure your body metabolizes it correctly and the dose is accurate. Maybe you can ask your doctor about that if the fatigue continues.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 not enough response
--currently taking budesonide suppositories, 3mg at night.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 4/20/2009 11:09 AM (GMT -7)   
Lots of fatigue from it, main reason I don't want to start on it again.

It can last for weeks, but it should get better.
CD dx @ 13 (1987)
Prednisone 10mg every other day
Phenergen PRN
Celexa 20mg day
Zantac 300 - Twice Day
Pain Meds
Vitamins


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 4/20/2009 4:05 PM (GMT -7)   

Great! Not what I wanted to hear. My doctor wants me to go on Imuran as a preventative medication. I'm already tired enough without the drug.

I do have a question regarding alcohol. Can you drink alcohol while being on Imuran? I don't have a drinking problem, I just like to have a glass of wine  or beer or mixed fruity drink every now and then.

Sorry to Hi-jack this thread.


Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 4/20/2009 4:53 PM (GMT -7)   
I don't drink alchol at all....I never drank very much anyway....just a cocktail now and then.
I just decided that with all of the medication and supplements I am taking I just say no thank you:)

Why is your doctor wanting to put you on the drug as a preventative with all the side effects?

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 4/20/2009 10:12 PM (GMT -7)   
I drink moderately (a glass of wine a day kind of thing, when I don't have fevers). The only med I've quit for is Flagyl. And, my doctor knows I have my wine. Heck, moderate wine is good for a person under most circumstances. It doesn't upset my gut either - I've gone without plenty enough to know that without doubt.

That's just my case... Best to talk it over wtih your doctor. Keeping up on bloodwork would be good should you chose to continue with occasional drinking.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine  --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 not enough response
--currently taking budesonide suppositories, 3mg at night.  Started Cimzia first dose 2/10/09.  Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl


brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 4/21/2009 2:30 AM (GMT -7)   
I'm currently up to 175mg of Imuran. I went off of Imuran after I was at 150mg for two weeks to try and figure out why I've been so exhausted. In the two weeks I was off though I didn't notice any improvement in energy level so I'm back on. They tested my metabolite levels and that's why they upped my dosage. Now they're going to test and see if I have some deficiencies from being on a steroid (Entocort) for too long. My whole point is that you are definitely not alone on this. And if you get it figured out, please share. It might help me with figuring out why the heck I'm so tired too. Good luck!!

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 4/21/2009 4:10 AM (GMT -7)   
I read that unusual fatigue is a side effect. Before, I was not this tired. So, I am pretty sure that it is from Imuram.

For the person who was taken off Imuran because he was throwing up, what drug were you put on instead? Remicade?
26m - Dx January 2005: UC/Crohn's
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 4/21/2009 4:34 AM (GMT -7)   
HM, He told that it was the best preventative medication after my surgery. I'm on Asacol and he said that it was basically a entry level drug.
I'm considering it, but I already have fatigue and really drained by the end of the day. I don't want it to be worse.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Folic Acid, Multivitamin, Dbl. Calcium, Probiotics, Protonix, Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 4/21/2009 7:57 AM (GMT -7)   
What a tough choice to make Wolfie--I would make a pro/con list! It may be better to be really drained by the end of tha day than to have what caused you to need surgery in the first place pop back up. Of course on the other hand, if you can get several good years without being as tired..... well what is the better solution? It really sounds like you will just have to take a chance either way.

35/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with UC, then Crohn’s 2008

Current medications: Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily

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