Just wanted to send you hugs and good wishes. You've been through a lot. i've never had "real" surgery (just i/d for abscess) I am only imagine the nervousness around surgery. It's great to hear that living with the ostomy is a small price to pay. This disease takes so much away us, the least of which our dignity. I wish you the best! Take care of you...
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine --rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08 => STOPPED 10/3/08 not enough response
--currently taking budesonide suppositories, 3mg at night. Started Cimzia first dose 2/10/09. Dx Osteoporosis 10/08 started Forteo 1/27/09
--single mom to 11-yr-old girl