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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 4/22/2009 11:23 AM (GMT -7)   
back in hospital, I have a partial resection obstruction which is causing me to vomit everyso often
Now being treated conservatively and will be considered for Inflexi something or other, what is this and what are others experiences of this are.
At the moment I am to up the steroids and I am being tested with under skin test for tuberculosis.
I also have MRSA as I am very unwell and must have picked it up on another hospital visit elsewhere for this is the first time here

also had a 'turn' today as I had just been discharged, went all weak, dizzy, confused, deathly white, very sick and a wheelchair was sent to take me back up on ward
Now waiting for neuro.
Will also see a dietitian, we dont have nuitrionists here in Ireland as have been dx with coeliac too.
I havent seen a dietitian since being dx with crohns in 1999
I'm a mess.
Twin cancelled flight back to london, she gone home to my flat as she has Parkinsons and gets very tired. but she has been my shining star.
xx to everyone,
Ann sad
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Chronic Muscle Myopaythy 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/22/2009 11:25 AM (GMT -7)   
Sounds like they are thinking of having you try Remicade (Infliximab). It is one of the biologics. I don't have any experience with it, but many others on the forum have. Hopefully someone will be along soon.

(((BIG HUGS))) Sure hope you get feeling better soon.

Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/22/2009 1:34 PM (GMT -7)   
:(... Sorry things aren't so good for you right now... I have not taken Remicade, either... but I'm sure someone else can help...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/22/2009 3:33 PM (GMT -7)   
Hi Ann Hope you feel better soon and I knoe those obstructions are not any fun.. hoping you are over the worst..certainly the REmicdae has been a help to many here and was good for when I had a fistula.. I took it for6 months with no side effects but was not able to take it too long ...Hope you get some help with your diet... best wishes lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail
"Blessed are those that can give without remembering and recieve without forgetting ~Aurthor Unknown~


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 4/22/2009 5:52 PM (GMT -7)   
Ann, Remicade works wonders for some, and does nothing for others...
I hope it works for you,I've been on it for three years, and it has steadily
reduced inflammation.I have personally witnessed the mini-blockages you
talk about. It's amazing how easy it is to find a place to puke...
Hope they figure it out for you...
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)


Iram
Regular Member


Date Joined Jul 2003
Total Posts : 145
   Posted 4/22/2009 6:36 PM (GMT -7)   
I am sorry Ann about your rough time, I was in hospital last month for 2 days with a flare-up. So, I can relate to your experience. I also vomiting and acute pains. Vomiting is the worse, the worse....hope you get better soon.

fimk
Regular Member


Date Joined Apr 2009
Total Posts : 51
   Posted 4/22/2009 8:33 PM (GMT -7)   
I have been in hospital many times with patial obstructions and pucking. I'm old fashioned in that I ask for an NG tube to relieve the pressure on the stomach and stop the puking. (NG tube is inserted through the nose and into the stomach and a small vacuum pump is attached to it to drain the stomach and keep it drained until the obstruction opens) Docs don't seem to want to do that anymore, it seems like they want to relie solely on drugs to relieve the pressure and pain. Ramicade did not work for me, but I know it has helped alot of other people. Good luck and hang in there, I will pray for you.
Over 30 years experience! Dx 1976, surgery every seven years, the only effective long term drug has been very low doses of prednisone. Refuse to take anymore immune suppressants.

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