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*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 4/22/2009 3:35 PM (GMT -7)   

Hey everyone,

 

I’m going in for my first abscess surgery tomorrow at the royal Brisbane. I could not be more ready for it; the abscess area under the skin is now going black and the pain is unbearable. I have been waking up in the night with pressure pain and no matter how i sleep or walk, it is intensely painful. It has gotten distinctly worse over the last 2 days since going off the anti’s.

 

So I am at work (stupid, I know) struggling to get through this day but determined to only have the Friday off work. I was in tears this morning and short of breath due to the infection, but I am determined I will not be that victim sick person who leaves work early. I have so much work to get through!

 

I am fasting today and doing bowel prep tonight before bed because I know the enema will be too painful for me right now. They offered me bowel prep instead, saying it will help with the healing process if the bowel is clean and I can do the prep instead of doing the enema. Glad I don’t have to take the enema but not looking forward to the dreaded bowel prep!

 

My sister is going to pick me up after the surgery and I will stay at hers over the weekend so she can look after me. Hopefully I will be zoned out on pain meds and just sleep!

 

Anyone know what else I can expect from this? They said I will be given a lot of pain meds. A seton is planned to be inserted into my fistula. The abscess is off the side of the fistula so they will drain it while I’m under. Thank god for that!

 

I hope you are all well, will let you know how the surgery went once I am back on my feet!


lovemyboys09
Regular Member


Date Joined Apr 2009
Total Posts : 249
   Posted 4/22/2009 3:39 PM (GMT -7)   
Im doing a bowel prep for a colonoscopy tommorrow morning. I am def not looking forward to drinking that stuff! Good Luck!
Diagnosed w/crohns in October 07
Taken off meds January 08 because of pregnacy
Back to gastro Dr. January 09 (new dr.)
Diagnosed w/ UC instead; told should have never gotten off meds
taking Asacol and Canasa
Flaring still as of 04/09
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/22/2009 3:42 PM (GMT -7)   
Hi You know I'am sending you my best wishes never had any surgery in that area,I am glad they are finally getting you in for this.. It is great your Sister will be their for you ,keep in touch... lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail
"Blessed are those that can give without remembering and recieve without forgetting ~Aurthor Unknown~


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 4/22/2009 5:33 PM (GMT -7)   
Hope your surgery goes well.
Treat yourself to something special, over the weekend,
you deserve it...
diagnosed 1981
remission until 2006
Remacade,resection
B-12,Pentasa,Loperamide,
Entocort, 6mp,Hydrochlorothiazide
Remission since surgery
and 8-week Remacade.
d since 1981(enjoy the look
on Dr's faces)


orngie
Regular Member


Date Joined Feb 2009
Total Posts : 161
   Posted 4/22/2009 5:42 PM (GMT -7)   
Best of luck to you for a successful procedure and an uncomplicated recovery.

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 4/22/2009 11:06 PM (GMT -7)   

Thanks everyone!! I am looking forward to the situation being in some way resolved, and I have great faith in my surgeon Dr Clark, I have heard great things about him and he seems like a very honourable and experienced professional, with LOTS of colorectal and IBD experience.

 

Hopefully once this seton is in the abscesses will be a thing of the past – does anyone know what the success rate is for these procedures? The abscess I have at the moment is unbearable, the only thing that keeps me going is the knowledge that it will be over soon! The abscess is not mid-fistula, but rather right of the fistula. So I am thinking they will scrape out the abscess and then insert the seton. Gosh, sounds so painful – I am ready for pain as last time I had an examination under anaesthetic ‘down there’ it was sooo painful for the two days afterwards.

 

I have been told I will have a LOT of pain meds to tide me over. Woo for that – I’ve had enough of pain for the moment!

 


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/23/2009 4:36 AM (GMT -7)   
Hi Phoebe!

I'm glad you are having this procedure! I felt so much better right after the surgery. Less "toxic". I didn't have much pain at all, but I stayed ahead of the pain by taking the pain meds on schedule. I strongly recommend that hand-help shower sprayer as the best way to keep the area clean. I can't imagine living without it and can't recommend it enough. Hire someone to do it if you don't know how. And take plenty of sitz baths. Other than that you will just need a lot of patience. It will heal! This ordeal will soon be over!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


crohn's pt mom
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 4/23/2009 11:22 AM (GMT -7)   
Good Luck. My daughter had relief because the pressure pain was gone and her abscess is huge and she had it for quite awhile.  I truly hope you get that kind of relief.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/23/2009 11:40 AM (GMT -7)   
Oh phoebeskye, I hope everything goes well today and you have a very quick recovery and that darned fistula takes a hike already (((HUGS)))


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/23/2009 12:35 PM (GMT -7)   
Good luck phoebeske, do keep us posted on how you are doing!

Hugs
Gail *Nanners*
Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Bluize
Veteran Member


Date Joined Mar 2005
Total Posts : 635
   Posted 4/23/2009 12:54 PM (GMT -7)   
Good luck tomorrow. It will be over soon. I wish you a speedy recovery! I agree, treat yourself to something nice.
Susan
 
28 years with Crohns in the term ileum.  Feb 07 Resection.  No meds currently..but there will be some I'm sure. Taking acidophilus.


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 4/25/2009 5:41 PM (GMT -7)   

Hi everyone, thanks again for all the well wishes! The surgery went well, I was very drowsy for a long time afterwards, but was lucky to be first on the dr’s list of surgeries that day so i went in at 8am. I am staying at my sisters at the moment and told work i would be back in on Monday but i am thinking of taking tomorrow off. Yesterday i was very sore (as t be expected), and today not AS sore but still i have difficulty sitting etc and walking is still very tender.

 I have to admit the appearance of the drains scared me initially, the way it looks like a big hole, when really it’s like a lip holding the fistula open so the drains don’t get lost. My setons are red and look sort of like tag ties. the drains themselves arre very small and i think once the swelling is down and i get used to the look of the stretched fistula hole i will feel better about it all.. at the moment i am scared to go to the toilet and have been having salt baths and rinsing with a shower head after BM’s. But it still stings to go to the toilet and i am scared of the whole prospect of it. I know this is for the best and things will clear up soon, its just the initial appearance of the hole left by the fistula scared me. I am so relived to have the pressure gone from the abscess, now it’s just a matter of adjusting to my new life with setons and this hole appearance they have left.

 

It’s unfortunate i didn’t get to speak with the surgeon following the op....... i was expecting the red tags but not really the large hole it seems to have left. I have a follow up with my new gastro in 4 weeks. I’m just not sure how fast i can expect this hold to shrink with the seton in. I want it to shrink fast! And i have been told the setons are in place in order to close the fistula – i just want some kind of understanding of how fast the hole will close up. I was expecting a seton to be poking through my tiny initial fistula hole, and not expecting the plug hole, or stretching which has occurred. But i have great faith in this surgeon and i know he knows what he is doing.

I think once i am pain-free it will help me in general too. Still sore to go to the toilet, get up and sit down etc. But then again the surgery was only on Friday!!!

 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 4/25/2009 5:54 PM (GMT -7)   
Hi Glad your back and hope someone who knows about it will pop in ..glad to hear your surgery is done and wishing you a good recovery.. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,hemmies,and still alive.lol gail
"Blessed are those that can give without remembering and recieve without forgetting ~Aurthor Unknown~


crohn's pt mom
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 4/25/2009 6:23 PM (GMT -7)   
My daughter was left with a "hole" and she cried whenever she went to the bathroom - that gets better soon.  She thought the hole was closed because it didn't bother her as much but the dr said it was still there. She still has her setons in we are waiting to start cimzia.  Don't do too much too soon.  She was feeling better about 3 weeks after surgery but after sitting on a plane for several hours and walking around on vacation last week she's got alot of pain again.  She still has drainage from all her drains but the worst seems to be the drain that comes out right next to her girlie parts, lowest point of gravity - it's painful.  Don't be afraid to take your pain meds as needed.
 
We've got our fingers and toes crossed for you -  prayers too.

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 4/25/2009 6:42 PM (GMT -7)   
I think the hole is just from them cleaning out the abscess. My seton will be 3 this Sept. and I don't have a huge hole anymore...just little there my red :) seton comes out. You've gone through the worse. Just keep hanging in there.

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/25/2009 6:51 PM (GMT -7)   

Hello Phoebe!   turn turn turn

How wonderful that you are doing well!!  It all sounds quite normal, if that gives you any comfort.  Just stay on top of your pain meds.  Keep a schedule on a pad of paper and write down everything you take and when you take it so there is no confusion (or fear of overdosing).  I tried to make sure I had pain meds on board when I typically had to use the bathroom.  I usually go after meals, for example.  So I tried to time the doses so they would be in full effect.  I never let the pain meds lapse!  But I am really really a chicken about pain.  I found I didn't really have much pain at all -- really -- after about the 3rd or 4th day.  I also learned how to get out of bed (roll off -- don't sit up), how to lay in bed, etc.  yeah yeah

And welcome to the seton club!!   tongue   A rare bunch we are too!  My doctor calls them body art or unusal body piercing.  Yes, extreme body piercing and not for the faint of heart!  I've had red, white, and blue ones.  I think the color indicates the thickness, but I am just guessing.  My current two are a very fashionable red!

My largest abscess (actually twin abscesses -- both large and very deep) left me with a wound hole the size of a small ice cream scoop.  While I love my surgeon, he didn't warn me about it.  I was alone at the time and had a friend bring me home right after the surgery.  The friend didn't stay because I said "I'll be fine".  Well, I had to pee, so out comes the bandages and I had to look with a mirror -- and I nearly fainted when I saw the large, deep whole!  I felt woozy and went down on my knees and held on to the toilet to steady myself.   shocked   shocked   shocked   I thought how can I handle that?!  How can you even go to the bathroom and clean it!!  I was petrified.  I didn't have a hand-held shower sprayer yet.  I am so glad you have your sister with you!!  For emotional support if nothing else! 

I asked my doctor about the cleaning.  How can it not get infected with poop and pee down there???  He said to work hard to keep it clean but understand that the body is used to dealing with poop and pee down there.  Pee is usually sterile anyway.  With no sprayer, I used wet wipes on the outside and then tried to swoosh the wound clean in a tub of water.  Not very easy.  With subsequent surgeries, I got the sprayer and just sprayed the wound out gently and learned to stop worring about it.  There is only so much you can do.  The rest you have to give to God to deal with and he knows what he is doing since he designed our bodies.

Also, I found that guaze stuck to the wound tissue.  Hurt like blazes when I pulled it off.  Everyone said that is good because it pulls off dead tissue.  Good!  They can do it too themselves sometime!!  (I really pity burn patients because that is what they do to them.  I would need morphine.   rolleyes   )  Finally, a nurse said to wet the guaze with sterile saline before putting it in.  The salt keeps the wound sterile and promotes healing, and the guaze will come off much easier.  It is wonderfull!  You can get sterile saline at the pharmacy.  My doctor's assistant actually wrote me a perscription for large quanities of sterile saline and I got it for dirt cheep!  It is best not to use regular water because it isn't sterile and doesn't have the healing salt.

I suggest you get you sister to look at the wound every day or so.  I know this is gross on many levels and a lot to ask of her, but it is good to have a second pair of eyes watching the wound to make sure it is looking OK.  My wound hole actually got larger at first.  What happens is that the skin stretches and the wound flattens.  Hard to desribe, but all quite normal.

Don't be bashful about calling your doctor's office if you have any questions or concerns.  That is what they are there for.  He has a nurse of phyician's assistant that may have more time than the doctor to take your call.  In my experience, nurses are compasionate and will spend time on the phone with you explaining things and giving suggestions.  This is your first time (and hopefully your last) so of course you have questions!!

As to the time for the wound to close. You won't like my answer.  Lets just say weeks.  I don't know how mine compares to your and there isn't a hard and fast rule.  Unfortunately, we Crohnies heal more slowly too.  And immune suppresser drugs will slow things even more.  I asked my surgeon about when I could start sitting and when I could go back to work.  He said whenever I felt good enough -- but that the longer I was off the wound the faster it would heal.  Sitting on an open wound is not good for it.  You stretch it and how can you keep it clean at work??  The last thing you need is for it to get infected.  That will just delay things.  So I know you won't like me saying this but prepare for a least 2 - 3 weeks of at minimum (mine took 10 weeks).  Have a frank converstion with your boss and ask if there is anything work you can do from home.  See what he says.  Don't get pessimistic until you talk to him.  You don't need to tell the boss exactly what you have (eekk!!), maybe just that you have had surgery and have a significant incision that will take time to heal.  Offer him your doctor's phone number and ask if he needs a note from your doctor.  Try to not be so hard on yourself if you physically just can't go back until the wound closes -- even if that means weeks.  I truly hope this is not the case and you heal rapidly!!   yeah   yeah yeah
 
The best thing to do now is to sleep, and fill your time with happy things like cheerful movies and books.  I am praying for patience for you and quick healing!  Take care!!  And congratulations on being on the road to healing!  That abscess is GONE!!!

Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 4/26/2009 5:45 AM (GMT -7)   
Oh fallcolours, thank you thank you THANK YOU so much for your post!! And everyone else!! I had a similar experience with my surgery, I didn’t look at it until I got home and needed to use the loo, and I burst into tears after seeing the hole (it’s about the diameter of a 5cent piece Australian - though I just realised you won’t know the circumference of our currency!!). If it will take weeks for the hole to heal, I can handle that, I think I just need to adjust to it being there – and like you said, it seems crazy that an open wound ‘down there’ wouldn’t get infected or dirty! I have been having salt baths after BM’s, but like you said, that will be difficult at work, I think I will take a spray bottle and do the best I can while I’m there......

My sister has been great; I’m back in my flat tonight with my boyfriend, who was there before and after the surgery...... I had told work I would be back Monday (thinking I would be) – but I am going to call in sick tomorrow because I haven’t ‘practiced’ sitting properly yet, and I’m still scared to do it, to be honest. But like you said, at least the abscess is GONE – I felt immediate pressure relief after the surgery, unfortunately after the anesthetic wore off the pain came. What pain meds were you prescribed? I feel like my drs have been stingy – I have only been prescribed paracetamol, which doesn’t really cut it in terms of managing the pain, so I have been buying neurophen plus which has codeine. Trying to stay on top of taking 2 every 4 hours.

I can feel the difference in freedom of movement after one day so I hope it gets better and fast. My boss knows I went in for surgery Friday (I had to take that day off too) so she will understand when I call in sick tomorrow but I can’t afford to have more than tomorrow off considering I took Friday off as well. So I hope tomorrow sees me get that much better. In an ideal world I would be able to lie down for 3 weeks and let it heal, but unfortunately life gets in the way and I need to pay my rent :( and hold down a job, so I will just try and make things as easy as possible on my bottom and take it 1 day at a time..... one day at a time is the only way I can look at life these days.

Honestly, your post has made me feel so much better, I cannot thank you enough – I LOVED the story of the body piercings – mine are bright red too!!! I think I will grow to love them because I know what they are preventing – those godawful abscesses. When coming round from the anesthetic one of the drs walked past me and said the op was a success but there was a lot of infection and it was a big abscess – so I guess that would explain the big hole. Once it has gotten smaller I will be less down about it all I’m sure. I’ve been a bit of a zombie the last 2 days, depressed and overwhelmed and not wanting to talk to anyone, just crying. I am sure the worst is over now and one day at a time (I think standing for long periods is the worst for me so I will try and get a nice cushion for my chair at work).

I have taken your advice and bought a shower attachment for rinsing after BM’s which I think will help immensely, but I do worry about what I will do when ‘out and about’ apart from the spray bottle; I guess I will just have to hope I don’t have to do BM’s during the day and only in the mornings.

Ohh and rolling off the bed – I know what you mean!! I haven’t laid down on my right side for months now! I am trying to re-introduce sleeping on my back rather than just my left side at the moment (my drains are on my right cheek). So I figure I’ll trial the back lying, and then right side eventually. I will ‘practice’ sitting tomorrow and getting up and down to get ready for work.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/26/2009 6:03 AM (GMT -7)   

Hey Phobesky, glad to hear your surgery is over and you are recovering well.  Be sure to take it easy and not overdo.  Sending healing thoughts and prayers your way.

Hugs

Gail*Nanners*


Gail*Nanners* Co-Moderator for Anxiety/Panic Forum
Been living with Crohn's Disease for 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, and Calcium and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia and Osteoarthritis and Anxiety. Currently my Crohns is in remission.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/26/2009 11:51 AM (GMT -7)   

Hi Phoebe!!

My wound was about 1.75 inches long by 1 inch wide (2.5 cm = 1 inch).   rolleyes   rolleyes   rolleyes   How big is your 5 cent piece?  Salt baths sound great.  The saline didn't hurt me at all, an dI hope the salts baths don't hurt you.

Speaking of pain -- Eeek!!!!   smhair   Is paracetamol just acetaminophen???  That would not cut it at all!!  I was given plenty of percoset (acetaminophen and oxycodone).  After 4 -5 days I was able to start using less percoset and more acetaminophen (Tylenol).  I would call them immediately and demand a narcotic like percoset!!!  These doctors just have no clue!!   mad

I understand the zombie feeling!  But it is amazing to feel less toxic.  My body just said "Ahhhh!! That's better!"   Unfortunately, I always feel icky for a day or two after surgery because of the anesthesia.  It makes me feel nauseous, anxious, and generally unwell.  Once my body gets rid of it, I am fine.  I now make sure they give me anti-nausea and anxiety meds in the OR.  That helps but I still don't feel right for two days.  I hope your zombie feeling passes quickly.  Although the best thing you can do is right now is just be quiet. 

And of course you feel overwhelmed.  I did in a serious way!!   sad    Who wouldn't!!  But you have good people around you that aren't going to let you down.  Please remember that they feel great helping you out.  It is in our nature to want to help and it makes us feel needed.  They also know that they now have someone there for them if/when they need it, and that certainly is a comforting thought.

Is there a away you can work half days?  I would hope your boss would understand surgery -  she probably has had surgery herself.  My work grants advanced sick leave for those who are short on leave but have a real medical need.   You get the paycheck now, and later as you earn more sick leave you it payback.  Your situation would certainly qualify for advanced sick leave where I work.   Or maybe you could work extra days/Saturdays after you are well to pay it back.  Just some thoughts.  Honestly I am hoping you find a way to be out for a week in order to give your body the best shot at quick healing!

Yes, I love my setons!!  They save us and for that I love them.  So now you have joined the Seton Sister club!!  Congratulations!!  Whenever you feel down or someone is not being nice to you, just remember that you have something so special and fashionable that they don't have!!  And that you could totally gross them out by describing what you have!

And I love my shower sprayer!!  I sit on the side of the tub with one leg in, which makes it quite easy.  I squated in the tub for a while until my knees started complaining.  I use a spray bottle when I am out, and I can adjust the strength of the spray. That helps.  I was really stressed out about cleaning until I got the spray bottle.  Just do the best you can and clean up with the shower sprayer when you get home.
 
I also kept on my left side because the cellulitis was so bad on the right side.  I used several pillows to prop up mys legs and knees.  It took a while to get situated.  Ridiculous!!  It totally tired me out!   tongue
 
I am so glad to hear you are on the mend.  There will be good days and bad days, but you have turned the corner now and are moving in the right direction!  yeah yeah yeah



Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


crohn's pt mom
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 4/26/2009 6:26 PM (GMT -7)   

my  daughter came home with percoset. which she took for almost two months after her first surgery in Feb. But she was afraid of being addicted to them so she has tried just tylenol and/or advil.  But after our vacation she's been taking vicodin. She also has baby wipes in her purse for when she's not at home.

I do think it that when she hurried back to work it effected her recovery.  But I understand the need for a paycheck too.

Although the dr. said it shouldn't help, she has an inflatable donut she sits on.  The kind men use after prostate surgery, I remember my friends Dad having one.  Pillows didn't really work for her.  It's the hole in the middle which relieves pressure where her manmade "hole" is (very near her 'gina).

 


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 4/26/2009 7:11 PM (GMT -7)   
Hey Pheobe I'm so glad everything went well for you. As you know Dr Clark is also my surgeon and they dont get any better than him. He did my ileostomy and will also be doing my next surgery, I have to have my anus and rectum removed in a few months time and wouldnt go to anyone else. Keep us posted on your progress, I wish you well and hope this fixes you. take care

onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/26/2009 7:39 PM (GMT -7)   
Hi Phoebe i didn't get to give you any well wishes before your surgery sorry i just got home and noticed that you are all done now and you got everything behind you no pun intended so how is your bum? I had an absecess very large and about the size of a small orange which i keep on poking at it to relieve the presure but it keep filling up everytime i would rupture it but the ANTI"s never worked finally they said they had to lance it and found that hiding under it was a fistula (my Absecess and my fistula was on my right check of my bum which ripped my bum opened all the time) i couldn't sit lay down the only comfort i got was laying on my side with a pillow between my knees. So the fistula started a whole new set of problems for me they couldn't do it in my hospital cause they only pass out band-aids (HA HA) so they sent me to the city for both the absesess healed rather quickly i found the seton by the way mine was pretty pink but that was back in 1998 but i had spasms in my rectal area were the seton was but once i started the site baths it eased up i to was scared to go to the bathroom the first time but all went well,the fistula has to heal from the inside out so you will still have some drainage i had to wear a panty liner for a while but in a few weeks i felt alot better and we don't heal that great anyway,i was scheduled to begin Remicade right after the rectal surgery i had only 2 infusions that is 1 a week so 2 all togther and they were able to remove the seton it didn't hurt coming out honest i was just relieved to get it out. Another idea for you while your waiting to heal get some of those pre-moistened tissue the non-scented ones of course till your bum heals up its alot easier than that rough old toilet paper for now. Another thing you said was about the hole you got and it looks like a lip or flap mine never healed that way its like when you mold clay in your hands and bake it,it keeps its shape well that is the best way i can describe it to you but it doesn't bother me at all now i do still to this day use the pre-moistened-tissue (TIOLET-PAPER) first wipe only than the moist tissue just to make sure that area is clean were the skin was torn away. I hope you find this INFO helpfull to you and good luck i know what your going through i've been there to its not nice rectal surgery you know i told my husband that i would sooner have a ruptured bowel and go for emergency surgery than have rectal surgery cause you don't realize there are so many muscles in your bum you need to use for walking sitting standing even brushing your teeth you feel it in your rectal area don't you think Phoebe. Get well soon sorry for the long post and sorry i didn't get to give you best wishes before your surgery but your on the road to recovery now feel good Phoebe.  Your Friend Jenn smilewinkgrin yeah ))))))))))))HUGS((((((((((((
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 4/29/2009 2:55 AM (GMT -7)   
Fallcolours, andorable, crohn’s pt mum, jen, EVERYONE, thank you so much for your replies. I know we here it a lot here but I would feel so much more alone if it weren’t for this place and the comfort and advice I receive here.
The pain is still very high and I am whisning now that I had demanded some better pain meds. Going to the bathroom is the hardest for me, it stings so much I really look forward to the salt bath afterwards. I just cant wait to get back to some sort of normal life. I am getting used to the look of the drains I guess, and I am looking forward to that hole closing up so it wont look so scary! Its been draining quite a bit but a small liner has been doing the job.

Fallcolours, that abscess hole sounds huge!! You must have been so scared! No wonder you wanted me to get in and get this abscess sorted!! I now know just how much worse it was for leaving it and how much better it is for getting it sorted – it could have grown exponentially!! If I hadn’t gone out and sought the help of the surgeon and dr I would no doubt have ended up in another ER having it drained and left un-resolved.
Work has been very undertstanding,I went in for my 1st day yesterday and really shouldn’t have been there; I went and slept on the toilet floor during lunch because I just so badly needed to lie down. I have a big cushion and walk as little as possible, so I am taking it gently and being as kind to myself as I possibly can. Standing for a long time is definitely a no-no at the moment, more than 5 mins standing and I am in so much pain.

It is a long weekend here this weekend (hooray) so I am just looking forward to getting past the next two days at work and really relaxing for 3 days over the weekend. I am going to be so kind to myself and do nothing but read and relax! My body needs it. I was really pale and tired and felt so terrible at work yesterday; today I downed a prednisone because I knew I couldn’t go on without one but at least it helped with my energy levels and appetite.
It has been much harder than I anticipated and I’m sure it will be hard for a while now, but hopefully I am over the worst. My follow up appt is in a months time, I am on augmentin and flagyl between now and then.

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/29/2009 3:20 AM (GMT -7)   
I also feel that you must take rest. Don't rush to work. Let your body heal properly. Take Care. my fistula is leaking for the last over 3 years non-stop. 24/7. Niagra Falls.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


dreamer06
Regular Member


Date Joined Jun 2008
Total Posts : 221
   Posted 4/29/2009 6:59 AM (GMT -7)   
Good luck. I am going in for abcess surgery today. It is easy and you will do fine. The hard part is over now just let everyone else do what they can to help you. If you need anything just ask.
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